WLS Codebooks

Note: Codebooks contain frequency data from the private data release. For some variables, these differ from the frequencies in the public release. Variables that differ between the public and private versions include "(not available on public release)" as part of the variable description, or a note indicating the difference between the public and private versions.

Phone: Non-Normative Extension Interview

Nonnormative Extension Phone Interview

For respondents that were identified as having a child with a developmental
disability or long-term, serious mental illness, an additional module was
administered that asked about the child's condition and the respondent's
experience caring for the child.

CH001-CH002:     Health of child

CH003-CH021:     Daily activities of child

CH022:           How many hours does respondent help child

CH023-CH076:     Activities of daily living and who helps

CH077-CH083:     Living situation of child

CH084-CH089:     Social participation of child

CH090-CH104:     Negative behavior problems of child

CH105-CH114:     Mental health care of child

CH115-CH119:     Future care for child

CH120-CH122:     Respondent's participation in support groups

CH123-CH124:     Employment of the child

CH125:           Focus child's roster ID

ch001: How would you rate the health of the child with a developmental disability or long-term, serious mental illness?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H080
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
1 EXCELLENT 16 19 35
2 GOOD 25 36 61
3 FAIR 11 28 39
4 POOR 5 11 16
5 VERY POOR 3 0 3

ch002: How is the health of the child with a developmental disability or long-term, serious mental illness compared to 5 years ago?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H081
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
1 BETTER 11 24 35
2 ABOUT THE SAME 39 43 82
3 WORSE 10 27 37

ch003: Does the child with a developmental disability or long-term, serious mental illness have a job without special supports?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H082
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1972 2142 4114
1 YES 17 40 57
2 NO 40 53 93

ch004: Does the job of the child with a developmental disability or long-term, serious mental illness have special supports?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H082SEL
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270
Note: This question is only asked for selected children where the R said the child is working.

ch005: How many hours a week does the child with a developmental disability or long-term, serious mental illness work?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H083
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2013 2200 4213
-1 DON'T KNOW 0 1 1
10 0 3 3
16 1 1 2
17 1 0 1
18 1 0 1
20 1 5 6
22 1 0 1
24 0 1 1
25 1 2 3
28 0 1 1
30 2 1 3
35 1 1 2
40 7 15 22
50 1 5 6
55 0 1 1
60 0 2 2
80 0 1 1

ch006: Does the child with a developmental disability or long-term, serious mental illness participate in a supported or transitional employment program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H084
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 3 1 4
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 2 1 3
1 YES 11 14 25
2 NO 44 78 122

ch007: How many hours per week does the child with a developmental disability or long-term, serious mental illness participate in a supported or transitional employment program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H085
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2019 2226 4245
-1 DON'T KNOW 0 1 1
0 1 0 1
1 0 1 1
2 1 1 2
3 0 1 1
5 0 1 1
6 0 1 1
10 1 0 1
15 1 0 1
17 1 0 1
20 1 2 3
24 0 1 1
25 0 2 2
30 1 1 2
35 0 1 1
40 4 1 5

ch008: Does the child with a developmental disability or long-term, serious mental illness attend a sheltered workshop?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H086
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 3 1 4
-3 REFUSED 1 3 4
-2 1985 2193 4178
-1 DON'T KNOW 0 1 1
1 YES 9 8 17
2 NO 32 34 66
Note: This is only asked of children with a developmental disability.

ch009: How many hours per week does the child with a developmental disability or long-term, serious mental illness attend a sheltered workshop?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H087
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2021 2232 4253
2 1 0 1
5 1 1 2
6 1 0 1
7 0 1 1
8 0 1 1
14 0 1 1
15 0 1 1
20 2 0 2
21 1 0 1
24 0 1 1
30 1 0 1
35 1 1 2
40 1 1 2

ch010: Does the child with a developmental disability or long-term, serious mental illness attend a day activity program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H088
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 3 4
-2 1985 2193 4178
-1 DON'T KNOW 0 1 1
1 YES 8 5 13
2 NO 36 38 74
Note: This is only asked of children with a developmental disability.

ch011: How many hours per week does the child with a developmental disability or long-term, serious mental illness attend a day activity program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H089
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2022 2235 4257
-1 DON'T KNOW 2 1 3
2 1 0 1
5 0 1 1
6 1 0 1
8 0 1 1
14 0 1 1
15 1 0 1
16 1 0 1
20 1 0 1
24 0 1 1
35 1 0 1

ch012: Does the child with a developmental disability or long-term, serious mental illness go to a Department of Vocational Rehabilitation, day treatment or clubhouse program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H090
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 2 2
-2 2015 2188 4203
-1 DON'T KNOW 2 1 3
1 YES 1 3 4
2 NO 12 46 58

ch013: Which of the three programs - a Department of Vocational Rehabilitation, day treatment program, or clubhouse program - does the child with a developmental disability or long-term, serious mental illness attend?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H090_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 0 1
-2 2029 2237 4266
2 DAY TREATMENT PROGRAM 0 2 2
3 CLUBHOUSE PROGRAM 0 1 1

ch014: Is that a DVR, day treatment program or clubhouse program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H090_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 3 3
-2 2030 2237 4267

ch015: Is that a DVR, day treatment program or clubhouse program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H090_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch016: How many hours per week does the child with a developmental disability or long-term, serious mental illness go to a Department of Vocational Rehabilitation program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H091
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch017: How many hours per week does the child with a developmental disability or long-term, serious mental illness go to a day treatment program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H092
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2238 4268
2 0 1 1
30 0 1 1

ch018: How many hours per week does the child with a developmental disability or long-term, serious mental illness go to a clubhouse program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H093
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2239 4269
3 0 1 1

ch019: Is the child with a developmental disability or long-term, serious mental illness involved in any volunteer activities?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H094
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 1 2 3
1 YES 14 19 33
2 NO 45 73 118

ch020: How many hours per week does the child with a developmental disability or long-term, serious mental illness participate in volunteer activities?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H095
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2016 2221 4237
-1 DON'T KNOW 0 5 5
0 2 1 3
1 0 1 1
2 5 2 7
3 3 2 5
4 1 0 1
5 0 1 1
6 0 2 2
7 0 1 1
13 1 0 1
15 0 2 2
16 2 0 2
30 0 1 1
40 0 1 1

ch021: Where does the child with a developmental disability or long-term, serious mental illness spend most of their day?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H096
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 2 0 2
-3 REFUSED 1 5 6
-2 2007 2205 4212
-1 DON'T KNOW 2 0 2
1 AT HOME 16 25 41
2 OUTSIDE OF HIS/HER HOME 1 4 5
3 ABOUT HALF AT HOME, HALF OUTSIDE HOME 1 1 2

ch022: Not including social or entertainment activities or watching TV, how many hours in a typical week do you help your child with a developmental disability or long-term, serious mental illness in care related activities, such as getting dressed, grooming, shopping, transportation, chores or other activities?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H099a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 6 7
-2 1969 2141 4110
-1 DON'T KNOW 5 4 9
0 31 68 99
1 4 2 6
2 4 2 6
3 2 1 3
5 0 2 2
6 0 2 2
7 0 3 3
8 3 1 4
10 2 4 6
12 1 0 1
14 1 0 1
15 1 1 2
20 1 0 1
30 2 0 2
45 0 1 1
84 1 0 1
90 0 1 1
97 2 1 3

ch023: How much help does the child with a developmental disability or long-term, serious mental illness need with grooming?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H099b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 3 2 5
1 NONE 34 58 92
2 A LITTLE 7 11 18
3 SOME 7 11 18
4 A LOT 9 12 21

ch024: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - first response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2007 2206 4213
0 NO ONE 1 6 7
1 MOTHER 13 12 25
2 FATHER 1 1 2
5 AGENCY 7 10 17
6 WIFE 1 5 6

ch025: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - second response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2016 2226 4242
-1 DON'T KNOW 0 1 1
1 MOTHER 0 3 3
2 FATHER 12 5 17
3 SISTER 1 1 2
4 BROTHER 0 1 1
5 AGENCY 0 2 2
6 WIFE 1 1 2

ch026: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - third response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2025 2237 4262
3 SISTER 2 0 2
4 BROTHER 0 2 2
5 AGENCY 3 1 4

ch027: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - fourth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2028 2239 4267
3 SISTER 0 1 1
4 BROTHER 2 0 2

ch028: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - fifth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2239 4269
6 WIFE 0 1 1

ch029: How much help does the child with a developmental disability or long-term, serious mental illness need with cooking and cleaning?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 3 1 4
-3 REFUSED 2 5 7
-2 1969 2141 4110
-1 DON'T KNOW 1 2 3
1 NONE 26 55 81
2 A LITTLE 1 8 9
3 SOME 9 8 17
4 A LOT 19 20 39

ch030: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - first response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100c_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2001 2208 4209
0 NO ONE 1 1 2
1 MOTHER 15 18 33
2 FATHER 2 1 3
5 AGENCY 8 8 16
6 WIFE 3 4 7

ch031: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - second response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100c_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2018 2232 4250
2 FATHER 11 4 15
3 SISTER 1 0 1
4 BROTHER 0 1 1
5 AGENCY 0 1 1
6 WIFE 0 2 2

ch032: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - third response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100c_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2027 2239 4266
3 SISTER 1 1 2
5 AGENCY 2 0 2

ch033: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - fourth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100c_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2029 2240 4269
4 BROTHER 1 0 1

ch034: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - fifth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H100c_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch035: How much help does the child with a developmental disability or long-term, serious mental illness need with getting up and going in the morning?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H101
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 4 0 4
1 NONE 32 59 91
2 A LITTLE 6 13 19
3 SOME 7 7 14
4 A LOT 11 15 26

ch036: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - first response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H102_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2007 2205 4212
0 NO ONE 1 4 5
1 MOTHER 10 18 28
2 FATHER 4 0 4
5 AGENCY 7 11 18
6 WIFE 1 2 3

ch037: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - second response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H102_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2023 2230 4253
-1 DON'T KNOW 0 1 1
2 FATHER 7 4 11
5 AGENCY 0 1 1
6 WIFE 0 4 4

ch038: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - third response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H102_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2027 2240 4267
3 SISTER 1 0 1
5 AGENCY 1 0 1
6 WIFE 1 0 1

ch039: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - fourth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H102_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2029 2240 4269
4 BROTHER 1 0 1

ch040: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - fifth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H102_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch041: How much help does the child with a developmental disability or long-term, serious mental illness need with traveling to places s/he needs to go?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H103
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 3 1 4
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 2 1 3
1 NONE 20 50 70
2 A LITTLE 3 8 11
3 SOME 7 9 16
4 A LOT 25 25 50

ch042: Who helps the child with a developmental disability or long-term, serious mental illness with travel - first response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H104_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 1995 2198 4193
-1 DON'T KNOW 0 1 1
0 NO ONE 0 2 2
1 MOTHER 18 21 39
2 FATHER 3 0 3
5 AGENCY 7 10 17
6 WIFE 7 8 15

ch043: Who helps the child with a developmental disability or long-term, serious mental illness with travel - second response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H104_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2012 2222 4234
-1 DON'T KNOW 0 1 1
1 MOTHER 1 3 4
2 FATHER 16 7 23
4 BROTHER 0 3 3
6 WIFE 1 4 5

ch044: Who helps the child with a developmental disability or long-term, serious mental illness with travel - third response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H104_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2023 2234 4257
2 FATHER 1 1 2
3 SISTER 2 1 3
5 AGENCY 2 1 3
6 WIFE 2 3 5

ch045: Who helps the child with a developmental disability or long-term, serious mental illness with travel - fourth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H104_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2029 2238 4267
3 SISTER 0 1 1
4 BROTHER 1 1 2

ch046: Who helps the child with a developmental disability or long-term, serious mental illness with travel - fifth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H104_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2239 4269
4 BROTHER 0 1 1

ch047: How much help does the child with a developmental disability or long-term, serious mental illness need with grocery shopping?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H105A
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 3 1 4
-3 REFUSED 2 5 7
-2 1969 2141 4110
-1 DON'T KNOW 3 5 8
1 NONE 26 56 82
2 A LITTLE 2 5 7
3 SOME 4 7 11
4 A LOT 21 20 41

ch048: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - first response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H105B_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2003 2208 4211
0 NO ONE 0 1 1
1 MOTHER 12 16 28
2 FATHER 4 2 6
3 SISTER 1 0 1
5 AGENCY 9 11 20
6 WIFE 1 2 3

ch049: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - second response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H105B_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2020 2233 4253
-1 DON'T KNOW 0 1 1
1 MOTHER 1 1 2
2 FATHER 9 2 11
4 BROTHER 0 1 1
6 WIFE 0 2 2

ch050: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - third response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H105B_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2026 2238 4264
2 FATHER 1 1 2
3 SISTER 1 0 1
5 AGENCY 1 0 1
6 WIFE 1 1 2

ch051: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - fourth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H105B_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2029 2240 4269
4 BROTHER 1 0 1

ch052: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - fifth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H105B_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch053: How much help does the child with a developmental disability or long-term, serious mental illness need with shopping for personal items?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H106A
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 3 1 4
-3 REFUSED 2 5 7
-2 1969 2141 4110
-1 DON'T KNOW 3 5 8
1 NONE 26 56 82
2 A LITTLE 2 5 7
3 SOME 4 7 11
4 A LOT 21 20 41

ch054: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - first response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H106B_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2005 2213 4218
1 MOTHER 13 20 33
2 FATHER 3 2 5
5 AGENCY 8 4 12
6 WIFE 1 1 2

ch055: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - second response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H106B_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2019 2230 4249
-1 DON'T KNOW 0 1 1
1 MOTHER 2 1 3
2 FATHER 8 3 11
5 AGENCY 0 2 2
6 WIFE 1 3 4

ch056: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - third response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H106B_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2026 2237 4263
2 FATHER 2 0 2
3 SISTER 1 1 2
5 AGENCY 0 2 2
6 WIFE 1 0 1

ch057: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - fourth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H106B_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch058: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - fifth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H106B_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch059: How much help does the child with a developmental disability or long-term, serious mental illness need with doing household chores, such as dishes or cleaning?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H107
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 3 1 4
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 5 1 6
1 NONE 32 55 87
2 A LITTLE 2 10 12
3 SOME 7 13 20
4 A LOT 11 14 25

ch060: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - first response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H108_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2011 2203 4214
0 NO ONE 0 4 4
1 MOTHER 10 17 27
2 FATHER 1 1 2
5 AGENCY 7 11 18
6 WIFE 1 4 5

ch061: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - second response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H108_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2023 2229 4252
1 MOTHER 1 3 4
2 FATHER 6 5 11
5 AGENCY 0 2 2
6 WIFE 0 1 1

ch062: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - third response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H108_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2028 2238 4266
2 FATHER 1 0 1
3 SISTER 0 1 1
5 AGENCY 1 0 1
6 WIFE 0 1 1

ch063: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - fourth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H108_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2238 4268
4 BROTHER 0 1 1
5 AGENCY 0 1 1

ch064: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - fifth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H108_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch065: How much help does the child with a developmental disability or long-term, serious mental illness need with taking medications?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H109
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1972 2145 4117
-1 DON'T KNOW 5 1 6
1 NONE 25 56 81
2 A LITTLE 3 9 12
3 SOME 5 7 12
4 A LOT 19 17 36

ch066: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - first response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H110_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2003 2208 4211
0 NO ONE 0 2 2
1 MOTHER 14 17 31
2 FATHER 1 0 1
5 AGENCY 9 11 20
6 WIFE 3 2 5

ch067: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - second response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H110_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2017 2230 4247
1 MOTHER 1 3 4
2 FATHER 11 4 15
3 SISTER 1 0 1
6 WIFE 0 3 3

ch068: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - third response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H110_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2026 2237 4263
2 FATHER 1 1 2
3 SISTER 1 1 2
5 AGENCY 1 0 1
6 WIFE 1 1 2

ch069: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - fourth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H110_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2029 2240 4269
4 BROTHER 1 0 1

ch070: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - fifth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H110_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch071: How much help does the child with a developmental disability or long-term, serious mental illness need with managing his/her money?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H111
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 3 1 4
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 4 2 6
1 NONE 15 38 53
2 A LITTLE 2 7 9
3 SOME 9 10 19
4 A LOT 27 36 63

ch072: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - first response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H112_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 1992 2187 4179
-1 DON'T KNOW 0 1 1
0 NO ONE 0 3 3
1 MOTHER 19 28 47
2 FATHER 8 4 12
3 SISTER 2 0 2
4 BROTHER 0 2 2
5 AGENCY 8 7 15
6 WIFE 1 8 9

ch073: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - second response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H112_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2018 2225 4243
1 MOTHER 1 4 5
2 FATHER 10 6 16
4 BROTHER 0 1 1
5 AGENCY 0 1 1
6 WIFE 1 3 4

ch074: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - third response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H112_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2027 2239 4266
5 AGENCY 1 1 2
6 WIFE 2 0 2

ch075: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - fourth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H112_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch076: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - fifth response?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H112_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270

ch077: Where does the child with a developmental disability or long-term, serious mental illness currently live?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H113A, H113B
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 4 4
-2 1969 2141 4110
0 WITH RESPONDENT 22 22 44
1 GROUP LIVING 10 7 17
2 INDEPENDENT LIVING 18 58 76
3 FOSTER HOME 0 1 1
4 INSTITUTION 4 4 8
5 JAIL/PRISON 1 1 2
6 HOMELESS 1 0 1
7 OTHER FAMILY MEMBER 5 2 7
Note: This is only valid if the child is not currently living with the respondent.

ch078: Has the child with a developmental disability or long-term, serious mental illness lived with the respondent in the past six months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H113C
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 4 4
-2 1991 2163 4154
1 YES 4 3 7
2 NO 35 70 105

ch079: What level of supervision does the child with a developmental disability or long-term, serious mental illness have at his/her place of residence?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H114
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2020 2233 4253
-1 DON'T KNOW 1 0 1
1 100% SUPERVISION BY STAFF 5 4 9
2 STAFF PRESENT SOME OF THE TIME 3 3 6
3 NO STAFF ARE PRESENT 1 0 1
Note: This is only asked if the child lives in a group home.

ch080: How long does it take for the Sibling Respondent to drive to the residence of the child with a developmental disability or long-term, serious mental illness?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H115
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 4 4
-2 1991 2163 4154
-1 DON'T KNOW 0 4 4
1 WITHIN 5 MINS 2 9 11
2 WITHIN 1/2 HOUR 17 26 43
3 WITHIN 1 HOUR 5 10 15
4 WITHIN 1/2 DAY 6 9 15
5 FURTHER THAN 1/2 DAY 9 15 24
Note: THis is only asked if the child does not live with the respondent.

ch081: How satisfied is the Sibling Respondent with the living situation of the child with a developmental disability or long-term, serious mental illness?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H116
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 4 4
-2 1991 2163 4154
1 NOT AT ALL SATISFIED 7 10 17
2 SOMEWHAT SATISFIED 13 27 40
3 VERY SATISFIED 19 36 55
Note: THis is only asked if the child does not live with the respondent.

ch082: How satisfied are you with having the child with a developmental disability or long-term, serious mental illness living with you?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H117
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 1 2
-2 2008 2218 4226
2 SOMEWHAT SATISFIED 4 7 11
3 VERY SATISFIED 17 14 31
Note: This is only asked if the child lives with the respondent.

ch083: Is the child with a developmental disability or long-term, serious mental illness on a waiting list for housing?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H118
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 2 5 7
-2 1969 2141 4110
-1 DON'T KNOW 1 2 3
1 YES 5 4 9
2 NO 53 88 141

ch084: How many times per year does the child with a developmental disability or long-term, serious mental illness socialize with relatives?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H119
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 3 4 7
0 - 4 14 17 31
5 - 12 15 21 36
20 - 52 15 24 39
104 - 208 11 19 30
260 - 365 2 9 11

ch085: How many times per year does the child with a developmental disability or long-term, serious mental illness socialize with friends?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H120
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 10 21 31
0 9 8 17
2 1 2 3
10 0 1 1
12 5 8 13
20 0 1 1
24 1 2 3
36 1 1 2
48 1 0 1
52 6 9 15
104 1 6 7
120 1 0 1
156 3 7 10
208 2 2 4
240 0 1 1
260 4 2 6
312 0 3 3
364 1 1 2
365 14 19 33

ch086: How many times per year does the child with a developmental disability or long-term, serious mental illness participate in recreational activities?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H121
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 8 14 22
0 12 26 38
2 0 2 2
4 3 3 6
6 0 2 2
10 1 0 1
12 8 14 22
20 1 0 1
24 0 6 6
36 1 2 3
48 1 0 1
52 17 17 34
60 1 1 2
104 3 5 8
156 0 1 1
208 1 0 1
312 0 1 1
365 3 0 3

ch087: How many times per year does the child with a developmental disability or long-term, serious mental illness work on a hobby?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H122
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 10 21 31
0 9 28 37
3 1 0 1
12 1 3 4
24 0 1 1
52 9 7 16
104 4 2 6
156 3 2 5
208 1 1 2
260 1 1 2
288 0 1 1
364 3 1 4
365 18 26 44

ch088: How many times per year does the child with a developmental disability or long-term, serious mental illness walk, play sports, or get some kind of physical exercise?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H123
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 2 5 7
-2 1969 2141 4110
-1 DON'T KNOW 6 14 20
0 11 14 25
1 0 1 1
12 1 1 2
24 1 0 1
36 1 0 1
48 0 1 1
52 6 7 13
72 0 1 1
104 4 7 11
156 2 8 10
180 2 1 3
208 1 4 5
260 3 1 4
364 2 2 4
365 19 32 51

ch089: How many times per year does the child with a developmental disability or long-term, serious mental illness participate in religion?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H124
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 2 5 7
-2 1969 2141 4110
-1 DON'T KNOW 3 10 13
0 19 37 56
1 2 0 2
2 0 7 7
3 1 1 2
4 0 3 3
5 1 1 2
6 2 0 2
8 1 0 1
10 0 1 1
12 4 4 8
24 2 6 8
25 1 0 1
36 0 1 1
45 1 0 1
52 20 19 39
72 0 1 1
104 2 3 5

ch090: Has the child with a developmental disability or long-term, serious mental illness hurt him/herself in last 6 months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H127
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 6 7
-2 1969 2141 4110
-1 DON'T KNOW 5 2 7
1 YES 6 9 15
2 NO 49 82 131

ch091: Has the child with a developmental disability or long-term, serious mental illness destroyed, deliberately broken, or defaced any property in last 6 months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H129
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 6 7
-2 1969 2141 4110
-1 DON'T KNOW 3 4 7
1 YES 9 6 15
2 NO 48 83 131

ch092: Has the child with a developmental disability or long-term, serious mental illness had any disruptive behaviors that interfered with the activity of others in the last 6 months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H130
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 6 7
-2 1969 2141 4110
-1 DON'T KNOW 5 3 8
1 YES 17 22 39
2 NO 38 68 106

ch093: Has the child with a developmental disability or long-term, serious mental illness had any repetitive behaviors in the last 6 months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H131
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 3 4 7
1 YES 17 15 32
2 NO 40 75 115

ch094: Has the child with a developmental disability or long-term, serious mental illness had any socially offensive behaviors in the last 6 months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H132
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 3 2 5
1 YES 17 25 42
2 NO 40 67 107

ch095: Has the child with a developmental disability or long-term, serious mental illness been withdrawn in last 6 months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H133
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 2 5 7
-2 1969 2141 4110
-1 DON'T KNOW 3 1 4
1 YES 15 41 56
2 NO 41 52 93

ch096: Has the child with a developmental disability or long-term, serious mental illness been uncooperative in last 6 months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H134
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 3 3 6
1 YES 19 23 42
2 NO 38 68 106

ch097: Has the child with a developmental disability or long-term, serious mental illness hurt people or animals in last 6 months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H128
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 3 2 5
1 YES 4 6 10
2 NO 53 86 139

ch098: Has the child with a developmental disability or long-term, serious mental illness hurt the respondent or someone else in the household in the last 6 months?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H139
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 0 1 1
-2 2026 2234 4260
1 YES 2 2 4
2 NO 2 3 5

ch099: How often has the child with a developmental disability or long-term, serious mental illness hurt the respondent or someone else in the household?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H140
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2028 2238 4266
1 ONCE 0 1 1
2 ON A COUPLE OF OCCASIONS 1 0 1
3 ON SEVERAL OCCASSIONS 1 1 2

ch100: Has the child with a developmental disability or long-term, serious mental illness threatened physical violence?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H137
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2028 2236 4264
1 YES 1 0 1
2 NO 1 4 5

ch101: How often has the child with a developmental disability or long-term, serious mental illness threatened physical violence?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H138
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2029 2240 4269
2 ON A COUPLE OF OCCASIONS 1 0 1

ch102: Has the child with a developmental disability or long-term, serious mental illness been verbally abusive to you or someone in your household?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H135
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 2 1 3
1 YES 9 14 23
2 NO 49 79 128

ch103: How often has the child with a developmental disability or long-term, serious mental illness been verbally abusive?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H136
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2021 2226 4247
-1 DON'T KNOW 1 0 1
1 ONCE 0 1 1
2 ON A COUPLE OF OCCASIONS 5 8 13
3 ON SEVERAL OCCASSIONS 2 3 5
4 ON MORE THAN SEVERAL OCCASSIONS 1 2 3

ch104: To what extent is your family isolated because of the behavior of the child with a developmental disability or long-term, serious mental illness?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H141
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REF 1 5 6
-2 1969 2141 4110
-1 DK 1 0 1
1 NOT AT ALL SOCIALLY ISOLATED 37 64 101
2 ONLY A LITTLE ISOLATED 5 11 16
3 SOMEWHAT ISOLATED 13 16 29
4 EXTREMELY SOCIALLY ISOLATED 4 3 7

ch105: How old was the child with a developmental disability or long-term, serious mental illness when s/he first started having mental health problems?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H142
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 2 2
-2 2014 2188 4202
-1 DON'T KNOW 1 3 4
0 - 10 2 11 13
12 - 14 3 9 12
15 - 17 2 14 16
18 - 25 6 8 14
26 - 46 2 5 7
Note: This is only asked for children with mental health conditions.

ch106: What age category was the child with a developmental disability or long-term, serious mental illness in when s/he first started having mental health problems?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H142b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270
Note: This is only asked if ch105 is DK or refused

This is only asked for children with mental health conditions.

ch107: How old was the child with a developmental disability or long-term, serious mental illness when s/he first received a mental health diagnosis?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H143
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 2 2
-2 2014 2188 4202
-1 DON'T KNOW 2 2 4
4 - 16 2 13 15
17 - 19 5 7 12
20 - 24 4 8 12
25 - 30 1 12 13
32 - 40 2 8 10
Note: This is only asked for children with mental health conditions.

ch108: What age category was the child with a developmental disability or long-term, serious mental illness in when s/he first received a mental health diagnosis?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H143b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270
Note: This is only asked if ch107 is DK or refused.

This is only asked for children with mental health conditions.

ch109: Has the child with a developmental disability or long-term, serious mental illness ever been admitted for an overnight stay in a hospital for mental health problems?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H144
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 2 2
-2 2014 2188 4202
1 YES 13 39 52
2 NO 3 11 14
Note: This is only asked for children with mental health conditions.

ch110: How old was the child with a developmental disability or long-term, serious mental illness when s/he was first admitted for an overnight stay in a hospital for mental health problems?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H145
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2017 2201 4218
9 - 16 1 9 10
17 - 19 4 6 10
20 - 24 4 7 11
25 - 29 3 7 10
30 - 48 1 10 11
Note: This is only asked for children with mental health conditions and have been admitted overnight for a hospital stay.

ch111: What age category was the child with a developmental disability or long-term, serious mental illness in when s/he was first admitted for an overnight stay in a hospital for mental health problems?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H145b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2030 2240 4270
Note: This if only asked for children with mental health conditions that have been admitted overnight for a hospital stay.

This is only asked if ch110 is DK or refused.

ch112: How many times has the child with a developmental disability or long-term, serious mental illness been hospitalized for mental health or emotional problems?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H146
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2017 2201 4218
-1 DON'T KNOW 0 2 2
1 4 13 17
2 1 8 9
3 3 5 8
4 3 1 4
5 0 3 3
6 0 1 1
7 1 0 1
8 0 2 2
12 0 1 1
15 0 1 1
20 0 2 2
50 1 0 1
Note: This is only asked for children with mental health conditions.

ch113: During the past six months, has the child with a developmental disability or long-term, serious mental illness received services from a mental health community support program?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H168
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 2 2
-2 2014 2188 4202
-1 DON'T KNOW 3 6 9
1 YES 1 10 11
2 NO 12 34 46
Note: This is only asked for children with mental health conditions.

ch114: Where does the child with a developmental disability or long-term, serious mental illness usually go for mental health care?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H169
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 0 2 2
-2 2015 2198 4213
-1 DON'T KNOW 2 4 6
1 NOWHERE 0 5 5
2 FAMILY DOCTOR 2 6 8
3 V.A. HOSPITAL 0 5 5
4 OUTPATIENT MENTAL HEALTH CLINIC 2 6 8
5 PRIVATE PSYCHIATRIST 4 10 14
6 EMERGENCY ROOM 1 0 1
8 OTHER 3 4 7
97 DOESN'T NEED TREATMENT 1 0 1

ch115: When you are no longer alive or able to care for or do what you do for the child with a developmental disability or long-term, serious mental illness, is there a family member who will be most involved with the child's care?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H170
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
-1 DON'T KNOW 1 10 11
1 YES 45 57 102
2 UNCERTAIN, BUT ABLE TO GUESS 1 4 5
3 NO, CHILD NEEDS NO HELP 6 8 14
4 NO ONE INVOLVED W/ CHILD 5 8 13
5 NO, R DOES NOT CARE FOR CHILD 2 7 9

ch116: Who will be involved in the future care of the child with a developmental disability or long-term, serious mental illness?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H171
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-4 NOT ASCERTAINED 1 0 1
-2 1984 2179 4163
1 CHILD'S MOTHER 15 0 15
2 CHILD'S FATHER 0 1 1
4 CHILD'S SISTER 13 25 38
5 CHILD'S BROTHER 11 21 32
6 CHILD'S AUNT 1 1 2
7 CHILD'S UNCLE 2 0 2
11 CHILD'S CHILD 1 2 3
12 CHILD'S SPOUSE 1 8 9
13 MULTIPLE SIBLINGS 1 2 3
15 FRIEND 0 1 1

ch117: Who will be second most involved in the care of the child with a developmental disability or long-term, serious mental illness after the person most involved is no longer able to care for the child?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H172
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 2015 2239 4254
-1 DON'T KNOW 2 0 2
4 CHILD'S SISTER 9 0 9
5 CHILD'S BROTHER 2 1 3
13 MULTIPLE SIBLINGS 1 0 1
14 PROFESSIONAL 1 0 1

ch118: Have you spoken with the person who will take care of the child with a developmental disability or long-term, serious mental illness about taking care of the child?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H173
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 1987 2179 4166
1 YES 31 44 75
2 NO 12 17 29

ch119: Has the person named to take care of the child with a developmental disability or long-term, serious mental illness agreed to take care of the child?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H174
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 1999 2196 4195
1 YES 29 42 71
2 NO 2 2 4

ch120: Are you a member of a support group related to the condition of your child with a developmental disability or long-term, serious mental illness?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H175
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REFUSED 1 5 6
-2 1969 2141 4110
1 YES 5 5 10
2 NO 55 89 144

ch121: What is the name of the support group related to the condition of your child with a developmental disability or long-term, serious mental illness?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H176
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REF 1 5 6
-2 2024 2230 4254
-1 DK 0 1 1
2 NATIONAL ALLIANCE OF MENTALLY ILL 1 0 1
6 ADVOCATES FOR THE DEVELOP. DISABLED 4 4 8

ch122: How helpful has the group related to the condition of your child with a developmental disability or long-term, serious mental illness been?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H177
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-3 REF 1 5 6
-2 2024 2230 4254
1 NO HELP AT ALL 1 0 1
2 A LITTLE HELPFUL 0 1 1
3 SOMEWHAT HELPFUL 1 3 4
4 A LOT OF HELP 3 1 4

ch123: Does the child with a developmental disability or long-term, serious mental illness have competitive employment, that is employment that does not have specialized supports?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H082, H082SEL, H083, H084, H085
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 1972 2142 4114
1 YES 17 40 57
2 NO 41 58 99

ch124: Does the child with a developmental disability or long-term, serious mental illness have employment that has specialized supports?

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: H082, H082SEL, H083, H084, H085
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-2 1969 2141 4110
1 YES 11 14 25
2 NO 50 85 135

ch125: ID of the child about whom the questions in gnonnorm module are being asked.

Data source: Sibling Respondent      Collected in: 2005      Mode: phone
Source variables: NNid
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2407 2101 4508
-9 ITEM NOT ON PATH 1 3 4
-2 1968 2135 4103
101 21 30 51
102 18 39 57
103 12 17 29
104 5 10 15
105 3 0 3
106 0 3 3
107 1 1 2
108 1 1 2
111 0 1 1
Note: -9 codings "ITEMS NOT ON PATH" are for former NN cases in the archived CH300-CH30313 with no extension interview

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