WLS Codebooks

Note: Codebooks contain frequency data from the private data release. For some variables, these differ from the frequencies in the public release. Variables that differ between the public and private versions include "(not available on public release)" as part of the variable description, or a note indicating the difference between the public and private versions.

Phone: End of Life Preparations

SEOLPREP  End of Life Preparations Module           

OVERVIEW 

With some minor exceptions (listed in the next paragraph), the sibling version
of the End of Life Preparations module is exactly like the graduate version. 
Thus, please read the COR for the graduate module (cor854EOLPrepGradPhone.doc)
for information about sampling, coding, and problems experienced in preparing
this module.

The only differences between the graduate and sibling versions of this module 
are that:
1) sibling variables begin with 'c' instead of 'g';
2) siblings don't have the 6 pattern variables -- named gy116rec,
gy118rec, gy120rec, gy125rec, gy126rec, and gy146rec in the grad
module -- which indicate which child in the child roster received a
given end-of-life instruction;
3) for siblings, variables cy016re, cy018re, cy020re, cy025re,
cy026re, and cy034re through cy038re are based on raw variables
(wpa4a, wpa4d, wpa4g, wpb2, wpb3, and wpc1_a through _e) that have
slightly different answer categories here than in the grad or grad-
spouse versions.  Specifically, the "CHILD/CHILD-IN-LAW/GRANDCHILD"
category was replaced with 6 separate categories in the sibling
instrument: DAUGHTER, SON, DAUGHTER-IN-LAW, SON-IN-LAW, GRANDDAUGHTER,
and GRANDSON.  The difference between sibling and other versions is,
ultimately, relatively minor, since open-ended coding was used to
identify sons, daughters, etc. in a large proportion of cases for
grads and grad-spouses.  But for siblings, unlike grads or grad-spouses, 
the catch-all category "CHILD/CHILD-IN-LAW/GRANDCHILD" is completely 
eliminated.
	
The EOL questions were administered to a randomly selected 70% subsample to
reduce the overall length of the survey.  However, all siblings who were
Wiscville residents were asked these questions, because, in the mid-1990s,
major health care organizations in this area implemented a large-scale advance
directive education program.  Siblings were considered to be in the Wiscville 
sample if they lived in the Wiscville area 1) at the time of the 1993-1994
survey or 2) at the time of the 2003-2005 survey.


BRIEF VARIABLE DESCRIPTIONS

cy001re:          Wiscville resident flag (100% of Wiscville residents 
                  will get this module).  

cy002re:          EOLFLAG for sample selection (70% of respondents will
                  get this module, except for Wiscville residents, who 
                  are sampled at 100%, as mentioned).

cy003re:          Has Sibling respondent made *any* preparations for end of 
                  life? (i.e., positive response to at least one of cy004re, 
                  cy010re, cy020re, and cy030re.)

cy004re:          Has Sibling respondent made medical plans in case of future
                  serious illness?

cy010re-cy021re:  Sibling respondent's discussion of health care plans and 
                  preferences (With anyone? Spouse? Kids? Whom?  How well 
                  does person understand?).

cy022re-cy026re:  Legal arrangements for someone to make decisions about 
                  Sibling respondent's medical care (Any?  Who has, or would 
                  have, that authority?  Spouse? Kids?).

cy030re-cy038re:  Sibling respondent's living will or advance directive
                  (Exists?  Given to spouse?  To kids?  To whom?).

cy040re-cy046re:  Inheritance plans (Who would get Sibling respondent's
                  assets?  Does Sibling respondent have will?  Etc.).

cy060re-cy062re:  Sibling respondent's hopes/plans for last days or weeks of
                  life  (Where spent?  Discontinue treatments?).

cy065re:          How strictly to follow Sibling respondent's wishes for 
                  end of life medical care.

cy070rec:         At what stage in the Terri Schiavo case did Sibling 
                  respondent complete the WLS phone survey?


Note: See Cor 929 in Appendix U for variable creation details

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