WLS Codebooks

Note: Codebooks contain frequency data from the private data release. For some variables, these differ from the frequencies in the public release. Variables that differ between the public and private versions include "(not available on public release)" as part of the variable description, or a note indicating the difference between the public and private versions.

Phone: Non-Normative Extension Interview

Nonnormative Extension Phone Interview

For respondents that were identified as having a child with a developmental
disability or long-term, serious mental illness, an additional module was
administered that asked about the child's condition and the respondent's
experience caring for the child.

GH001-GH002:     Health of child
GH003-GH021:     Daily activities of child
GH022:           How many hours does respondent help child
GH023-GH076:     Activities of daily living and who helps
GH077-GH083:     Living situation of child
GH084-GH089:     Social participation of child
GH090-GH104:     Negative behavior problems of child
GH105-GH114:     Mental health care of child
GH115-GH119:     Future care for child
GH120-GH122:     Respondent's participation in support groups
GH123-GH124:     Employment of the child
GH125:           Focus child's roster ID

gh001: How would you rate the health of the child with a developmental disability or long-term, serious mental illness?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H080
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3260 3756 7016
-1 DON'T KNOW 2 0 2
1 EXCELLENT 21 27 48
2 GOOD 51 62 113
3 FAIR 25 26 51
4 POOR 6 17 23
5 VERY POOR 3 4 7

gh002: How is the health of the child with a developmental disability or long-term, serious mental illness compared to 5 years ago?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H081
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3260 3756 7016
-1 DON'T KNOW 1 1 2
1 BETTER 21 31 52
2 ABOUT THE SAME 70 67 137
3 WORSE 16 37 53

gh003: Does the child with a developmental disability or long-term, serious mental illness have a job without special supports?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H082
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3310 3839 7149
1 YES 0 3 3
2 NO 60 53 113

gh004: Does the job of the child with a developmental disability or long-term, serious mental illness have special supports?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H082SEL
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3320 3812 7132
-1 DON'T KNOW 1 2 3
1 YES 11 20 31
2 NO 36 58 94
Note: This question is only asked for selected children where the R said the child is working.

gh005: How many hours a week does the child with a developmental disability or long-term, serious mental illness work?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H083
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3334 3834 7168
-1 DON'T KNOW 0 8 8
0 - 24 4 13 17
25 - 37 10 7 17
38 - 40 20 17 37
42 - 60 2 16 18

gh006: Does the child with a developmental disability or long-term, serious mental illness participate in a supported or transitional employment program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H084
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3260 3756 7016
-1 DON'T KNOW 3 1 4
1 YES 18 20 38
2 NO 87 115 202

gh007: How many hours per week does the child with a developmental disability or long-term, serious mental illness participate in a supported or transitional employment program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H085
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 1 0 1
-2 3351 3875 7226
-1 DON'T KNOW 1 2 3
0 1 0 1
1 2 0 2
2 1 0 1
3 1 1 2
4 2 0 2
10 0 1 1
12 0 1 1
15 1 0 1
20 2 5 7
24 1 3 4
25 1 0 1
30 4 2 6
32 0 1 1
35 0 2 2
40 1 2 3

gh008: Does the child with a developmental disability or long-term, serious mental illness attend a sheltered workshop?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H086
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 1 1 2
-2 3313 3833 7146
-1 DON'T KNOW 0 1 1
1 YES 13 18 31
2 NO 43 42 85
Note: This is only asked of children with a developmental disability.

gh009: How many hours per week does the child with a developmental disability or long-term, serious mental illness attend a sheltered workshop?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H087
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3357 3877 7234
-1 DON'T KNOW 0 1 1
2 1 0 1
10 0 1 1
12 0 1 1
20 2 2 4
24 1 1 2
25 1 2 3
30 5 4 9
32 0 2 2
35 0 1 1
40 3 3 6

gh010: Does the child with a developmental disability or long-term, serious mental illness attend a day activity program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H088
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 1 1 2
-2 3313 3833 7146
1 YES 9 8 17
2 NO 47 53 100
Note: This is only asked of children with a developmental disability.

gh011: How many hours per week does the child with a developmental disability or long-term, serious mental illness attend a day activity program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H089
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3361 3887 7248
-1 DON'T KNOW 1 0 1
1 1 0 1
2 1 0 1
4 0 1 1
5 0 1 1
8 1 1 2
9 0 1 1
10 0 1 1
15 0 1 1
20 1 0 1
24 0 1 1
30 2 0 2
35 0 1 1
40 2 0 2

gh012: Does the child with a developmental disability or long-term, serious mental illness go to a Department of Vocational Rehabilitation, day treatment or clubhouse program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H090
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 0 2 2
-2 3319 3818 7137
-1 DON'T KNOW 3 1 4
1 YES 0 5 5
2 NO 48 69 117

gh013: Which of the three programs - a Department of Vocational Rehabilitation, day treatment program, or clubhouse program - does the child with a developmental disability or long-term, serious mental illness attend?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H090_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 0 2 2
-2 3370 3890 7260
1 DVR 0 1 1
2 DAY TREATMENT PROGRAM 0 1 1
3 CLUBHOUSE PROGRAM 0 1 1

gh014: Is that a DVR, day treatment program or clubhouse program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H090_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 0 3 3
-2 3370 3892 7262

gh015: Is that a DVR, day treatment program or clubhouse program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H090_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh016: How many hours per week does the child with a developmental disability or long-term, serious mental illness go to a Department of Vocational Rehabilitation program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H091
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3894 7264
30 0 1 1

gh017: How many hours per week does the child with a developmental disability or long-term, serious mental illness go to a day treatment program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H092
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3894 7264
6 0 1 1

gh018: How many hours per week does the child with a developmental disability or long-term, serious mental illness go to a clubhouse program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H093
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3894 7264
6 0 1 1

gh019: Is the child with a developmental disability or long-term, serious mental illness involved in any volunteer activities?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H094
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3260 3756 7016
-1 DON'T KNOW 3 2 5
1 YES 28 30 58
2 NO 77 104 181

gh020: How many hours per week does the child with a developmental disability or long-term, serious mental illness participate in volunteer activities?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H095
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3342 3865 7207
-1 DON'T KNOW 2 7 9
0 1 2 3
1 2 1 3
2 5 9 14
3 8 2 10
4 3 5 8
5 1 1 2
6 0 1 1
8 0 1 1
10 4 1 5
12 1 0 1
30 1 0 1

gh021: Where does the child with a developmental disability or long-term, serious mental illness spend most of their day?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H096
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1645 1468 3113
-3 REFUSED 2 4 6
-2 3305 3816 7121
-1 DON'T KNOW 1 3 4
1 AT HOME 25 32 57
2 OUTSIDE OF HIS/HER HOME 12 2 14
3 ABOUT HALF AT HOME, HALF OUTSIDE HOME 1 1 2

gh022: Not including social or entertainment activities or watching TV, how many hours in a typical week do you help your child with a developmental disability or long-term, serious mental illness in care related activities, such as getting dressed, grooming, shopping, transportation, chores or other activities?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H099a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3260 3756 7016
-1 DON'T KNOW 1 6 7
0 75 89 164
1 6 7 13
2 4 6 10
3 2 2 4
4 3 3 6
5 1 2 3
6 1 2 3
7 2 0 2
8 2 1 3
10 8 4 12
14 0 1 1
15 1 2 3
18 0 1 1
20 1 1 2
21 0 2 2
24 0 1 1
54 0 1 1
80 1 0 1
97 0 5 5

gh023: How much help does the child with a developmental disability or long-term, serious mental illness need with grooming?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H099b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3260 3756 7016
-1 DON'T KNOW 1 2 3
1 NONE 79 92 171
2 A LITTLE 12 22 34
3 SOME 7 10 17
4 A LOT 9 10 19

gh024: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - first response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3342 3853 7195
0 NO ONE 2 5 7
1 MOTHER 12 22 34
2 FATHER 1 1 2
5 AGENCY 9 8 17
6 WIFE 4 6 10

gh025: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - second response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3357 3882 7239
1 MOTHER 2 1 3
2 FATHER 9 8 17
3 SISTER 2 3 5
4 BROTHER 0 1 1

gh026: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - third response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3366 3893 7259
1 MOTHER 1 0 1
2 FATHER 2 1 3
4 BROTHER 1 1 2

gh027: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - fourth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3894 7264
6 WIFE 0 1 1

gh028: Who helps the child with a developmental disability or long-term, serious mental illness with grooming - fifth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh029: How much help does the child with a developmental disability or long-term, serious mental illness need with cooking and cleaning?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 4 6
-2 3260 3756 7016
-1 DON'T KNOW 1 1 2
1 NONE 67 85 152
2 A LITTLE 10 15 25
3 SOME 7 12 19
4 A LOT 23 22 45

gh030: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - first response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100c_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3330 3846 7176
0 NO ONE 1 1 2
1 MOTHER 19 30 49
2 FATHER 1 0 1
3 SISTER 2 0 2
5 AGENCY 10 8 18
6 WIFE 7 10 17

gh031: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - second response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100c_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3355 3880 7235
1 MOTHER 3 1 4
2 FATHER 11 11 22
3 SISTER 0 1 1
4 BROTHER 0 1 1
5 AGENCY 0 1 1
6 WIFE 1 0 1

gh032: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - third response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100c_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3368 3891 7259
2 FATHER 1 0 1
3 SISTER 0 2 2
4 BROTHER 0 1 1
5 AGENCY 1 0 1
6 WIFE 0 1 1

gh033: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - fourth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100c_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3893 7263
4 BROTHER 0 1 1
6 WIFE 0 1 1

gh034: Who helps the child with a developmental disability or long-term, serious mental illness with cooking and cleaning - fifth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H100c_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh035: How much help does the child with a developmental disability or long-term, serious mental illness need with getting up and going in the morning?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H101
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 4 6
-2 3260 3756 7016
-1 DON'T KNOW 1 4 5
1 NONE 78 95 173
2 A LITTLE 13 15 28
3 SOME 10 14 24
4 A LOT 6 7 13

gh036: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - first response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H102_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3341 3860 7201
0 NO ONE 4 1 5
1 MOTHER 11 19 30
2 FATHER 2 0 2
5 AGENCY 8 10 18
6 WIFE 4 5 9

gh037: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - second response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H102_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3360 3886 7246
2 FATHER 9 9 18
3 SISTER 1 0 1

gh038: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - third response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H102_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh039: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - fourth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H102_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh040: Who helps the child with a developmental disability or long-term, serious mental illness with getting up and going in the morning - fifth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H102_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh041: How much help does the child with a developmental disability or long-term, serious mental illness need with traveling to places s/he needs to go?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H103
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 4 6
-2 3260 3756 7016
-1 DON'T KNOW 1 1 2
1 NONE 59 73 132
2 A LITTLE 14 9 23
3 SOME 11 15 26
4 A LOT 23 37 60

gh042: Who helps the child with a developmental disability or long-term, serious mental illness with travel - first response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H104_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3322 3834 7156
-1 DON'T KNOW 1 0 1
0 NO ONE 1 0 1
1 MOTHER 20 36 56
2 FATHER 7 2 9
3 SISTER 1 0 1
4 BROTHER 0 1 1
5 AGENCY 8 8 16
6 WIFE 10 14 24

gh043: Who helps the child with a developmental disability or long-term, serious mental illness with travel - second response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H104_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3346 3864 7210
1 MOTHER 2 1 3
2 FATHER 18 27 45
3 SISTER 1 2 3
4 BROTHER 1 0 1
6 WIFE 2 1 3

gh044: Who helps the child with a developmental disability or long-term, serious mental illness with travel - third response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H104_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3364 3884 7248
1 MOTHER 2 0 2
2 FATHER 1 1 2
3 SISTER 0 3 3
4 BROTHER 0 1 1
5 AGENCY 2 3 5
6 WIFE 1 3 4

gh045: Who helps the child with a developmental disability or long-term, serious mental illness with travel - fourth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H104_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3369 3895 7264
6 WIFE 1 0 1

gh046: Who helps the child with a developmental disability or long-term, serious mental illness with travel - fifth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H104_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh047: How much help does the child with a developmental disability or long-term, serious mental illness need with grocery shopping?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H105A
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3260 3756 7016
-1 DON'T KNOW 1 6 7
1 NONE 63 83 146
2 A LITTLE 11 11 22
3 SOME 5 11 16
4 A LOT 28 25 53

gh048: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - first response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H105B_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3327 3848 7175
1 MOTHER 21 28 49
2 FATHER 4 2 6
3 SISTER 1 0 1
4 BROTHER 0 2 2
5 AGENCY 14 11 25
6 WIFE 3 4 7

gh049: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - second response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H105B_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3356 3881 7237
1 MOTHER 1 0 1
2 FATHER 12 11 23
3 SISTER 1 2 3
6 WIFE 0 1 1

gh050: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - third response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H105B_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3368 3894 7262
2 FATHER 1 0 1
5 AGENCY 1 0 1
6 WIFE 0 1 1

gh051: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - fourth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H105B_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh052: Who helps the child with a developmental disability or long-term, serious mental illness with grocery shopping - fifth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H105B_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh053: How much help does the child with a developmental disability or long-term, serious mental illness need with shopping for personal items?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H106A
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1624 1440 3064
-2 3323 3839 7162
1 NONE 4 9 13
2 A LITTLE 7 7 14
3 SOME 6 11 17
4 A LOT 27 20 47

gh054: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - first response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H106B_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3330 3857 7187
1 MOTHER 23 29 52
2 FATHER 2 0 2
3 SISTER 2 1 3
5 AGENCY 9 7 16
6 WIFE 4 1 5

gh055: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - second response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H106B_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3355 3879 7234
1 MOTHER 1 1 2
2 FATHER 9 10 19
3 SISTER 2 4 6
6 WIFE 3 1 4

gh056: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - third response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H106B_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3365 3893 7258
1 MOTHER 2 1 3
2 FATHER 1 0 1
3 SISTER 0 1 1
5 AGENCY 1 0 1
6 WIFE 1 0 1

gh057: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - fourth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H106B_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3369 3895 7264
2 FATHER 1 0 1

gh058: Who helps the child with a developmental disability or long-term, serious mental illness with shopping for personal items - fifth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H106B_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh059: How much help does the child with a developmental disability or long-term, serious mental illness need with doing household chores, such as dishes or cleaning?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H107
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3260 3756 7016
-1 DON'T KNOW 2 4 6
1 NONE 67 94 161
2 A LITTLE 13 11 24
3 SOME 9 14 23
4 A LOT 17 13 30

gh060: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - first response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H108_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3331 3857 7188
0 NO ONE 1 0 1
1 MOTHER 20 27 47
2 FATHER 1 0 1
3 SISTER 1 0 1
5 AGENCY 10 9 19
6 WIFE 6 2 8

gh061: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - second response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H108_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3357 3879 7236
1 MOTHER 2 0 2
2 FATHER 11 12 23
4 BROTHER 0 1 1
6 WIFE 0 3 3

gh062: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - third response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H108_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3368 3894 7262
1 MOTHER 1 0 1
2 FATHER 1 0 1
5 AGENCY 0 1 1

gh063: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - fourth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H108_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh064: Who helps the child with a developmental disability or long-term, serious mental illness with household chores - fifth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H108_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh065: How much help does the child with a developmental disability or long-term, serious mental illness need with taking medications?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H109
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 4 6
-2 3264 3763 7027
-1 DON'T KNOW 1 1 2
1 NONE 60 80 140
2 A LITTLE 15 10 25
3 SOME 9 18 27
4 A LOT 19 19 38

gh066: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - first response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H110_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3327 3848 7175
-1 DON'T KNOW 0 1 1
0 NO ONE 2 1 3
1 MOTHER 19 27 46
2 FATHER 5 0 5
4 BROTHER 0 1 1
5 AGENCY 13 13 26
6 WIFE 4 4 8

gh067: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - second response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H110_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3354 3885 7239
1 MOTHER 2 2 4
2 FATHER 12 7 19
3 SISTER 1 0 1
6 WIFE 1 1 2

gh068: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - third response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H110_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3368 3894 7262
1 MOTHER 1 0 1
2 FATHER 1 1 2

gh069: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - fourth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H110_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh070: Who helps the child with a developmental disability or long-term, serious mental illness with taking medications - fifth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H110_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh071: How much help does the child with a developmental disability or long-term, serious mental illness need with managing his/her money?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H111
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 4 6
-2 3260 3756 7016
-1 DON'T KNOW 0 3 3
1 NONE 40 55 95
2 A LITTLE 14 12 26
3 SOME 11 16 27
4 A LOT 43 49 92

gh072: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - first response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H112_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3302 3818 7120
-1 DON'T KNOW 2 1 3
0 NO ONE 2 5 7
1 MOTHER 26 40 66
2 FATHER 16 4 20
3 SISTER 3 2 5
5 AGENCY 15 13 28
6 WIFE 4 12 16

gh073: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - second response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H112_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3351 3875 7226
1 MOTHER 2 2 4
2 FATHER 13 17 30
3 SISTER 1 0 1
5 AGENCY 0 1 1
6 WIFE 3 0 3

gh074: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - third response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H112_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3367 3890 7257
1 MOTHER 1 0 1
2 FATHER 1 1 2
3 SISTER 0 3 3
5 AGENCY 1 1 2

gh075: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - fourth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H112_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3894 7264
4 BROTHER 0 1 1

gh076: Who helps the child with a developmental disability or long-term, serious mental illness with managing the child's money - fifth response?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H112_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3895 7265

gh077: Where does the child with a developmental disability or long-term, serious mental illness currently live?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H113A, H113B
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 1 2 3
-2 3260 3756 7016
-1 DON'T KNOW 0 1 1
0 WITH RESPONDENT 30 33 63
1 GROUP LIVING 12 20 32
2 INDEPENDENT LIVING 53 74 127
4 INSTITUTION 2 1 3
6 HOMELESS 3 0 3
7 OTHER FAMILY MEMBER 9 8 17
Note: This is only valid if the child is not currently living with the respondent.

gh078: Has the child with a developmental disability or long-term, serious mental illness lived with the respondent in the past six months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H113C
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 2 4
-2 3290 3789 7079
-1 DON'T KNOW 1 0 1
1 YES 3 7 10
2 NO 74 97 171

gh079: What level of supervision does the child with a developmental disability or long-term, serious mental illness have at his/her place of residence?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H114
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1623 1432 3055
-2 3358 3875 7233
1 100% SUPERVISION BY STAFF 5 10 15
2 STAFF PRESENT SOME OF THE TIME 5 5 10
3 NO STAFF ARE PRESENT 0 4 4
Note: This is only asked if the child lives in a group home.

gh080: How long does it take for the respondent to drive to the residence of the child with a developmental disability or long-term, serious mental illness?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H115
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 2 4
-2 3290 3789 7079
-1 DON'T KNOW 3 3 6
1 WITHIN 5 MINS 13 17 30
2 WITHIN 1/2 HOUR 23 34 57
3 WITHIN 1 HOUR 9 12 21
4 WITHIN 1/2 DAY 17 19 36
5 FURTHER THAN 1/2 DAY 13 19 32
Note: This is only asked if the child does not live with the respondent.

gh081: How satisfied is the respondent with the living situation of the child with a developmental disability or long-term, serious mental illness?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H116
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 2 4
-2 3290 3789 7079
1 NOT AT ALL SATISFIED 10 8 18
2 SOMEWHAT SATISFIED 26 35 61
3 VERY SATISFIED 42 61 103
Note: This is only asked if the child does not live with the respondent.

gh082: How satisfied are you with having the child with a developmental disability or long-term, serious mental illness living with you?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H117
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 0 1 1
-2 3340 3862 7202
1 NOT AT ALL SATISFIED 3 1 4
2 SOMEWHAT SATISFIED 11 7 18
3 VERY SATISFIED 16 24 40
Note: This is only asked if the child lives with the respondent.

gh083: Is the child with a developmental disability or long-term, serious mental illness on a waiting list for housing?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H118
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3260 3756 7016
-1 DON'T KNOW 2 3 5
1 YES 7 7 14
2 NO 99 126 225

gh084: How many times per year does the child with a developmental disability or long-term, serious mental illness socialize with relatives?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H119
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 3 4 7
-2 3260 3756 7016
-1 DON'T KNOW 3 9 12
0 - 5 25 23 48
6 - 24 23 32 55
36 - 52 27 23 50
60 - 156 20 30 50
208 - 365 9 18 27

gh085: How many times per year does the child with a developmental disability or long-term, serious mental illness socialize with friends?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H120
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 3 3 6
-2 3260 3756 7016
-1 DON'T KNOW 14 27 41
0 8 13 21
1 1 0 1
2 4 1 5
4 2 0 2
6 2 0 2
12 1 5 6
24 2 2 4
36 1 2 3
48 1 5 6
52 19 21 40
72 0 1 1
104 9 15 24
156 3 12 15
208 6 4 10
260 3 2 5
364 3 0 3
365 28 26 54

gh086: How many times per year does the child with a developmental disability or long-term, serious mental illness participate in recreational activities?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H121
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 3 4 7
-2 3261 3757 7018
-1 DON'T KNOW 9 17 26
0 33 41 74
1 - 24 20 31 51
25 - 52 22 28 50
72 - 365 22 17 39

gh087: How many times per year does the child with a developmental disability or long-term, serious mental illness work on a hobby?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H122
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 3 3 6
-2 3261 3756 7017
-1 DON'T KNOW 6 24 30
0 42 52 94
2 0 2 2
4 1 0 1
6 1 0 1
12 3 2 5
24 1 1 2
48 1 0 1
52 4 6 10
84 1 0 1
104 5 4 9
156 3 5 8
208 3 4 7
260 2 1 3
365 33 35 68

gh088: How many times per year does the child with a developmental disability or long-term, serious mental illness walk, play sports, or get some kind of physical exercise?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H123
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 3 3 6
-2 3260 3756 7016
-1 DON'T KNOW 6 13 19
0 17 22 39
12 4 2 6
24 1 2 3
36 1 1 2
52 11 10 21
96 1 0 1
104 7 16 23
156 10 11 21
180 1 1 2
208 4 4 8
260 6 2 8
364 0 2 2
365 38 50 88

gh089: How many times per year does the child with a developmental disability or long-term, serious mental illness participate in religion?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H124
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 3 3 6
-2 3260 3756 7016
-1 DON'T KNOW 6 10 16
0 43 53 96
1 - 36 21 30 51
52 32 33 65
60 - 365 5 10 15

gh090: Has the child with a developmental disability or long-term, serious mental illness hurt him/herself in last 6 months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H127
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 3 7
-2 3260 3756 7016
-1 DON'T KNOW 1 4 5
1 YES 9 8 17
2 NO 96 124 220

gh091: Has the child with a developmental disability or long-term, serious mental illness destroyed, deliberately broken, or defaced any property in last 6 months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H129
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 3 7
-2 3260 3756 7016
-1 DON'T KNOW 2 3 5
1 YES 9 10 19
2 NO 95 123 218

gh092: Has the child with a developmental disability or long-term, serious mental illness had any disruptive behaviors that interfered with the activity of others in the last 6 months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H130
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 3 7
-2 3260 3756 7016
-1 DON'T KNOW 3 5 8
1 YES 20 13 33
2 NO 83 118 201

gh093: Has the child with a developmental disability or long-term, serious mental illness had any repetitive behaviors in the last 6 months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H131
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 3 7
-2 3260 3756 7016
-1 DON'T KNOW 2 5 7
1 YES 19 29 48
2 NO 85 102 187

gh094: Has the child with a developmental disability or long-term, serious mental illness had any socially offensive behaviors in the last 6 months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H132
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 3 7
-2 3260 3756 7016
-1 DON'T KNOW 2 2 4
1 YES 24 24 48
2 NO 80 110 190

gh095: Has the child with a developmental disability or long-term, serious mental illness been withdrawn in last 6 months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H133
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 3 7
-2 3260 3756 7016
-1 DON'T KNOW 1 4 5
1 YES 40 45 85
2 NO 65 87 152

gh096: Has the child with a developmental disability or long-term, serious mental illness been uncooperative in last 6 months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H134
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 3 7
-2 3260 3756 7016
-1 DON'T KNOW 1 4 5
1 YES 29 23 52
2 NO 76 109 185

gh097: Has the child with a developmental disability or long-term, serious mental illness hurt people or animals in last 6 months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H128
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 3 7
-2 3260 3756 7016
-1 DON'T KNOW 1 2 3
1 YES 5 5 10
2 NO 100 129 229

gh098: Has the child with a developmental disability or long-term, serious mental illness hurt the respondent or someone else in the household in the last 6 months?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H139
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3365 3890 7255
1 YES 1 2 3
2 NO 4 3 7

gh099: How often has the child with a developmental disability or long-term, serious mental illness hurt the respondent or someone else in the household?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H140
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3369 3893 7262
2 ON A COUPLE OF OCCASIONS 0 1 1
3 ON SEVERAL OCCASSIONS 1 1 2

gh100: Has the child with a developmental disability or long-term, serious mental illness threatened physical violence?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H137
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3366 3892 7258
1 YES 0 1 1
2 NO 4 2 6

gh101: How often has the child with a developmental disability or long-term, serious mental illness threatened physical violence?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H138
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3894 7264
1 ONCE 0 1 1

gh102: Has the child with a developmental disability or long-term, serious mental illness been verbally abusive to you or someone in your household?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H135
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 4 8
-2 3260 3756 7016
1 YES 17 14 31
2 NO 89 121 210

gh103: How often has the child with a developmental disability or long-term, serious mental illness been verbally abusive?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H136
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3353 3881 7234
1 ONCE 1 1 2
2 ON A COUPLE OF OCCASIONS 9 4 13
3 ON SEVERAL OCCASSIONS 4 5 9
4 ON MORE THAN SEVERAL OCCASSIONS 3 4 7

gh104: To what extent is your family isolated because of the behavior of the child with a developmental disability or long-term, serious mental illness?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H141
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REF 4 4 8
-2 3260 3756 7016
1 NOT AT ALL SOCIALLY ISOLATED 76 112 188
2 ONLY A LITTLE ISOLATED 15 10 25
3 SOMEWHAT ISOLATED 13 8 21
4 EXTREMELY SOCIALLY ISOLATED 2 5 7

gh105: How old was the child with a developmental disability or long-term, serious mental illness when s/he first started having mental health problems?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H142
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3319 3818 7137
-1 DON'T KNOW 0 1 1
0 - 14 13 15 28
15 - 17 8 18 26
18 - 20 8 20 28
21 - 30 15 14 29
32 - 42 5 6 11
Note: This is only asked for children with mental health conditions.

gh106: What age category was the child with a developmental disability or long-term, serious mental illness in when s/he first started having mental health problems?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H142b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3894 7264
1 DURING CHILDHOOD 0 1 1
Note: This is only asked if gh105 is DK or refused

This is only asked for children with mental health conditions.

gh107: How old was the child with a developmental disability or long-term, serious mental illness when s/he first received a mental health diagnosis?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H143
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3319 3818 7137
-1 DON'T KNOW 1 3 4
5 - 17 12 12 24
18 - 20 10 21 31
21 - 25 10 13 23
26 - 30 10 16 26
32 - 42 6 9 15
Note: This is only asked for children with mental health conditions.

gh108: What age category was the child with a developmental disability or long-term, serious mental illness in when s/he first received a mental health diagnosis?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H143b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3370 3892 7262
2 DURING YOUNG ADULTHOOD 0 1 1
4 AFTER AGE 25 0 2 2
Note: This is only asked if gh107 is DK or refused.

This is only asked for children with mental health conditions.

gh109: Has the child with a developmental disability or long-term, serious mental illness ever been admitted for an overnight stay in a hospital for mental health problems?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H144
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3319 3818 7137
-1 DON'T KNOW 0 1 1
1 YES 39 52 91
2 NO 10 21 31
Note: This is only asked for children with mental health conditions.

gh110: How old was the child with a developmental disability or long-term, serious mental illness when s/he was first admitted for an overnight stay in a hospital for mental health problems?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H145
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1631 1452 3083
-3 REFUSED 2 3 5
-2 3320 3818 7138
-1 DON'T KNOW 2 2 4
11 - 17 9 11 20
18 - 20 8 12 20
21 - 25 7 15 22
26 - 32 7 11 18
33 - 39 5 2 7
Note: This is only asked for children with mental health conditions and have been admitted overnight for a hospital stay.

gh111: What age category was the child with a developmental disability or long-term, serious mental illness in when s/he was first admitted for an overnight stay in a hospital for mental health problems?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H145b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3369 3893 7262
-1 DON'T KNOW 0 1 1
2 DURING YOUNG ADULTHOOD 0 1 1
4 AFTER AGE 25 1 0 1
Note: This if only asked for children with mental health conditions that have been admitted overnight for a hospital stay.

This is only asked if gh110 is DK or refused.

gh112: How many times has the child with a developmental disability or long-term, serious mental illness been hospitalized for mental health or emotional problems?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H146
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1633 1458 3091
-3 REFUSED 2 4 6
-2 3317 3805 7122
-1 DON'T KNOW 0 5 5
1 6 16 22
2 8 5 13
3 8 10 18
4 8 5 13
5 1 5 6
6 1 4 5
7 0 1 1
8 1 1 2
9 0 1 1
10 1 2 3
12 0 1 1
15 1 0 1
20 2 1 3
25 1 0 1
30 0 2 2
40 1 0 1
Note: This is only asked for children with mental health conditions.

gh113: During the past six months, has the child with a developmental disability or long-term, serious mental illness received services from a mental health community support program?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H168
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 2 3 5
-2 3319 3818 7137
-1 DON'T KNOW 4 6 10
1 YES 17 18 35
2 NO 28 50 78
Note: This is only asked for children with mental health conditions.

gh114: Where does the child with a developmental disability or long-term, serious mental illness usually go for mental health care?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H169
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1638 1449 3087
-3 REFUSED 2 3 5
-2 3320 3818 7138
-1 DON'T KNOW 2 6 8
1 NOWHERE 6 3 9
2 FAMILY DOCTOR 1 7 8
3 V.A. HOSPITAL 1 1 2
4 OUTPATIENT MENTAL HEALTH CLINIC 3 7 10
5 PRIVATE PSYCHIATRIST 10 14 24
6 EMERGENCY ROOM 1 0 1
8 OTHER 5 12 17
97 DOESN'T NEED TREATMENT 2 6 8

gh115: When you are no longer alive or able to care for or do what you do for the child with a developmental disability or long-term, serious mental illness, is there a family member who will be most involved with the child's care?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H170
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 5 6 11
-2 3260 3756 7016
-1 DON'T KNOW 7 7 14
1 YES 74 78 152
2 UNCERTAIN, BUT ABLE TO GUESS 4 6 10
3 NO, CHILD NEEDS NO HELP 5 13 18
4 NO ONE INVOLVED W/ CHILD 9 15 24
5 NO, R DOES NOT CARE FOR CHILD 6 14 20

gh116: Who will be involved in the future care of the child with a developmental disability or long-term, serious mental illness?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H171
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3292 3811 7103
1 CHILD'S MOTHER 19 0 19
2 CHILD'S FATHER 0 7 7
4 CHILD'S SISTER 32 32 64
5 CHILD'S BROTHER 18 24 42
7 CHILD'S UNCLE 0 1 1
8 CHILD'S COUSIN 0 2 2
11 CHILD'S CHILD 1 0 1
12 CHILD'S SPOUSE 5 14 19
13 MULTIPLE SIBLINGS 2 2 4
14 PROFESSIONAL 0 1 1
16 STEP MOTHER 1 1 2

gh117: Who will be second most involved in the care of the child with a developmental disability or long-term, serious mental illness after the person most involved is no longer able to care for the child?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H172
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3351 3888 7239
-1 DON'T KNOW 2 1 3
4 CHILD'S SISTER 6 0 6
5 CHILD'S BROTHER 4 3 7
12 CHILD'S SPOUSE 1 0 1
13 MULTIPLE SIBLINGS 0 1 1
14 PROFESSIONAL 1 0 1
16 STEP MOTHER 5 2 7

gh118: Have you spoken with the person who will take care of the child with a developmental disability or long-term, serious mental illness about taking care of the child?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H173
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1623 1432 3055
-2 3292 3811 7103
-1 DON'T KNOW 1 0 1
1 YES 50 56 106
2 NO 25 27 52

gh119: Has the person named to take care of the child with a developmental disability or long-term, serious mental illness agreed to take care of the child?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H174
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3320 3839 7159
-1 DON'T KNOW 1 1 2
1 YES 47 55 102
2 NO 2 0 2

gh120: Are you a member of a support group related to the condition of your child with a developmental disability or long-term, serious mental illness?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H175
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REFUSED 4 6 10
-2 3260 3756 7016
1 YES 13 13 26
2 NO 93 120 213

gh121: What is the name of the support group related to the condition of your child with a developmental disability or long-term, serious mental illness?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H176
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REF 3 2 5
-2 3354 3880 7234
1 THE ARC 3 1 4
2 NATIONAL ALLIANCE OF MENTALLY ILL 4 4 8
3 AUTISM SOCIETY OF AMERICA 1 0 1
4 AL-ANON 1 0 1
6 ADVOCATES FOR THE DEVELOP. DISABLED 4 8 12

gh122: How helpful has the group related to the condition of your child with a developmental disability or long-term, serious mental illness been?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H177
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-3 REF 3 2 5
-2 3354 3880 7234
1 NO HELP AT ALL 1 1 2
2 A LITTLE HELPFUL 2 1 3
3 SOMEWHAT HELPFUL 4 3 7
4 A LOT OF HELP 6 8 14

gh123: Does the child with a developmental disability or long-term, serious mental illness have competitive employment, that is employment that does not have specialized supports?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H082, H082SEL, H083, H084, H085
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3260 3756 7016
1 YES 36 61 97
2 NO 74 78 152

gh124: Does the child with a developmental disability or long-term, serious mental illness have employment that has specialized supports?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: H082, H082SEL, H083, H084, H085
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 3260 3756 7016
1 YES 22 30 52
2 NO 88 109 197

gh125: ID of the child about whom the questions in gnonnorm module are being asked.

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: nnID
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-9 ITEM NOT ON PATH 2 1 3
-2 3257 3750 7007
101 40 53 93
102 38 29 67
103 20 28 48
104 6 16 22
105 2 11 13
106 4 3 7
107 1 2 3
108 0 2 2
Note: -9 codings "ITEMS NOT ON PATH" are for former NN cases in the archived GH300-GH30317 with no extension intervie

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