WLS Codebooks

Note: Codebooks contain frequency data from the private data release. For some variables, these differ from the frequencies in the public release. Variables that differ between the public and private versions include "(not available on public release)" as part of the variable description, or a note indicating the difference between the public and private versions.

Phone: End of Life Preparations

GEOLPREP End of Life Preparations Module
Graduate Instrument 2004, Phone

For more information on the End of Life Preparations Module see COR853 in
Appendix U.

OVERVIEW 

This module is new in 2004, as is the companion "End of Life -- Death"  module.
Note that beneficiaries of life insurance are listed in the Assets Module, not
in this module.

The EOL questions were administered to a randomly selected 70% subsample to
reduce the overall length of the survey.  However, all of the Wiscville
residents were asked these questions, because in the 1990s this area was the
site of a large-scale intervention study which encouraged people to make end of
life preparations such as living wills.  Respondents were considered to be in
the Wiscville sample if they lived in the Wiscville area 1) at the time of the
1993 survey, 2) when tracked for 2004 survey, and/or 3) at the time of the 2004
interview.

BRIEF VARIABLE DESCRIPTIONS

    GY001RE:            Wiscville  Resident Flag (100% of Lacrosse 
                        Residents Will Get This Module).

    GY002RE:            Eolflag for Sample Selection (70% of 
                        Respondents Will Get This Module, Except 
                        for Wiscville Residents, Who are Sampled at 
                        100%, As Mentioned).

    GY003RE:            Has R Made *Any* Preparations for End of Life?
                        (I.E., Positive Response to at Least One of 
                        Gy004Re, Gy010Re, Gy020Re, And Gy030Re.)

    GY004RE:            Has R Made Medical Plans in Case of Future 
                        Serious Illness?

    GY010RE-GY021RE:    R's Discussion of Health Care Plans And 
                        Preferences (With Anyone?  Spouse?  Kids?
                        Whom?  How Well Does Person Understand?).

    GY022RE-GY026RE:    Legal Arrangements for Someone to Make 
                        Decisions About R's Medical Care (Any?  Who 
                        Has, or Would Have, That Authority?  Spouse? 
                        Kids?).

    GY030RE-GY038RE:    R's Living Will or Advance Directive (Exists?
                        Given to Spouse?  to Kids?  to Whom?).

    GY040RE-GY046RE:    Inheritance Plans (Who Would Get R's Assets, 
                        or Spouse's?  Does R Have Will?  Etc.).

    GY060RE-GY064SP:    Hopes/Plans for Last Days or Weeks of Life 
                        (Where Spent?  Discontinue Treatments?  for R 
                        And Spouse).

    GY065RE,GY066SP:    How Strictly to Follow Wishes for End of Life 
                        Medical Care (for R And Spouse).

    GY070REC:           At What Stage in the Terri Schiavo Case Did 
                        R Complete the WLS Phone Survey?


Note: See Cor 854 in Appendix U for variable creation details

gy001re: Is respondent a Wiscville resident?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: LACFLAG

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
0 R IS NOT WISCVILLE RESIDENT 3279 3788 7067
1 R IS WISCVILLE RESIDENT 91 107 198
Note: "Wiscville" is a pseudonym for a hospital referral region in Wisconsin which, in the mid-1990s, major health care organizations implemented a large-scale advance directive education program. Respondents were considered to be in the Wiscville sample if they lived in the Wiscville area either at the time of the 1992-93 survey or at the time of the 2003-2005 survey.

gy002re: Is respondent in 70% End-of-Life Sample?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: eolflag

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-2 91 107 198
0 R IS NOT IN END-OF-LIFE SAMPLE 1016 1143 2159
1 R IS IN END-OF-LIFE SAMPLE 2263 2645 4908
Note: Does not apply to Wiscville residents, since 100% of them will get the End of Life modules.

gy003rec: Have you made any preparations for the end of life?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY004RE, GY010RE, GY022RE, GY030RE

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 1025 1152 2177
1 YES 1860 2225 4085
2 NO 420 448 868
Note: If R said "YES" for any of the 4 items (GY004RE, GY010RE, GY022RE, GY030RE) this variable is coded 1, "YES". If R said "NO" or "in process" for all 4 of the items (GY004RE, GY010RE, GY022RE, GY030RE), this variable is coded 2, "NO".
Note: Preparations for end of life include 1 or more of the following: the plans you have made about the types of medical treatment you want if you becomes seriously ill in the future; discussion of health care plans and preferences; legal arrangements for someone to make decisions about the respondent's medical care; living will/advance directive. These individual items are represented by variables GY004RE, GY010RE, GY022RE, and GY030RE, respectively.

gy004re: Have you made plans about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa1

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 4 1 5
-2 1016 1143 2159
-1 DON'T KNOW 8 4 12
1 YES 1296 1727 3023
2 NO 981 950 1931

gy010re: Have you discussed your plans and preferences with anyone about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 4 0 4
-2 1016 1143 2159
-1 DON'T KNOW 1 1 2
1 YES 1598 2053 3651
2 NO 686 628 1314

gy011rec: With how many people have you discussed your plans and preferences about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY010RE, GY018RE, GY020RE

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 1021 1144 2165
0 686 628 1314
1 781 604 1385
2 546 844 1390
3 271 605 876
Note: This variable has a maximum value of three. If R said "YES" to GY010RE, this variable will be at least 1. It will be 2 if R also named someone for GY018RE, and 3 if R also named someone for GY020RE.

gy012rec: Have you discussed with your spouse your plans and preferences about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY010RE, GY016RE, GY018RE, GY020RE

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 1710 1775 3485
1 YES 1328 1336 2664
2 NO 267 714 981
Note: This variable is set to 1 "YES" if "spouse" is mentioned in GY016RE, GY018RE, or GY020RE (i.e., if any of those variables are set to 1 SPOUSE; 2 SPOUSE AND CHILDREN; 167 SPOUSE AND OTHER RELATIVES; 169 SPOUSE,KID(S),&OTHER RELATIVES; 170 SPOUSE AND NONRELATIVES; or 172 SPOUSE, KID/GKID & NONRELATIVES). It is set to "NO" if none of the people mentioned in those variable is the spouse. It is set to -2 "INAPPROPRIATE" if no spouse is mentioned and any of the three constituent variables is -1 or -3, or if this question doesn't apply because R is not in the End-of-Life sample or didn't discuss health care plans with anyone. In a few (very rare) cases, respondents who in our records are not currently married nonetheless list a spouse. These cases are retained.

gy013rec: How well does your spouse understand your plans and preferences about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY012REC, GY017RE, GY019RE, GY021RE

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 1 1 2
-2 1977 2489 4466
-1 DON'T KNOW 0 1 1
1 EXTREMELY WELL 1048 1016 2064
2 SOMEWHAT WELL 266 293 559
3 NOT VERY WELL 12 22 34
4 NOT AT ALL 1 3 4
Note: This variable shows the level of understanding associated with the person or people referred to in variable GY012REC above. Thus, if GY012REC is based on GY016RE, this variable replicates GY017RE; if it's based on GY018RE, this replicates GY019RE; and if it's based on GY020RE, this variable replicates GY021RE.

gy014rec: Have you discussed with one or more of your children your plans and preferences about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY010RE, GY016RE, GY018RE, GY020RE

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 1710 1775 3485
1 YES 757 1482 2239
2 NO 838 568 1406
Note: This variable is set to 1 "YES" if one or more children (including stepchildren) is mentioned in GY016RE, GY018RE, or GY020RE (i.e., if any of those 3 variables is set to 2 SPOUSE AND CHILD/CHILDREN; 10 SON; 11 MULTIPLE SONS; 12 DAUGHTER; 13 MULTIPLE DAUGHTERS; 14 CHILD/CHILD-IN-LAW/GRANDCHILD (M or F); 15 MULTIPLE CHILDREN (GENDER UNSPECIFIED); 16 MULTIPLE CHILDREN, MIXED SEX; 46 STEPSON; 66 STEPDAUGHTER; 70 SON AND DAUGHTER-IN-LAW; 71 DAUGHTER AND SON-IN-LAW; 72 MULTIPLE CHILDREN AND CHILDREN-IN-LAW; 73 CHILD(REN) AND STEPCHILD(REN); 168 CHILDREN AND OTHER RELATIVES; 169 SPOUSE,KID(S),&OTHER RELATIVES; 171 MULTIPLE: KIDS/GRANDKIDS & NONRELATIVES; or 172 MULTIPLE:SPOUSE, KID/GKID & NONRELATIVES).
This variable is set to "no" if none of the people mentioned in GY016RE, GY018RE, and GY020RE is a child. It is set to -2 "INAPPROPRIATE" if any of the three constituent variables is -1 or -3, or if this question doesn't apply because R is not in the End-of-Life sample or didn't discuss health care plans with anyone. In rare cases, respondents who according to our records are childless may nonetheless name a child. These cases are retained.

gy015rec: How well do/es your child/ren understand your plans and preferences about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY014REC, GY017RE, GY019RE, GY021RE

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 2548 2343 4891
-1 DON'T KNOW 2 3 5
1 EXTREMELY WELL 439 1020 1459
2 SOMEWHAT WELL 290 434 724
3 NOT VERY WELL 24 24 48
4 NOT AT ALL 2 1 3
Note: If a child or children are mentioned more than once in GY016RE, GY018RE, GY020RE, this variable refers to the level of understanding associated with the *first* mentioned child(ren). This variable will thus replicate either GY017RE, GY019RE, or GY021RE -- whichever one first pertains to children.

gy016re: Who is the first person with whom you discussed your plans and preferences about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4a

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 1 1 2
-2 1707 1772 3479
-1 DON'T KNOW 2 2 4
1 SPOUSE 1285 1256 2541
2 SPOUSE AND CHILD/CHILDREN 2 4 6
10 SON 63 155 218
11 MULTIPLE SONS 4 2 6
12 DAUGHTER 80 317 397
13 MULTIPLE DAUGHTERS 0 13 13
14 CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) 14 46 60
15 MULTIPLE CHILDREN (GENDER UNSPECIFIED) 12 48 60
16 MULTIPLE CHILDREN, MIXED SEX 7 12 19
20 BROTHER 14 21 35
21 MULTIPLE BROTHERS 0 2 2
22 SISTER 15 46 61
26 MULTIPLE SIBLINGS, MIXED SEX 1 2 3
29 WHOLE FAMILY 1 2 3
32 MALE COUSIN 0 2 2
33 NEPHEW 3 0 3
40 FATHER-IN-LAW 1 0 1
41 BROTHER-IN-LAW 0 1 1
42 SON-IN-LAW 0 2 2
50 GRANDDAUGHTER 0 1 1
51 MOTHER 0 3 3
53 NIECE 2 9 11
54 MULTIPLE NIECES 1 0 1
62 DAUGHTER-IN-LAW 0 2 2
65 STEPSISTER 0 1 1
66 STEPDAUGHTER 1 1 2
69 OTHER FEMALE RELATIVE 0 1 1
70 SON AND DAUGHTER-IN-LAW 1 2 3
72 MULTIPLE CHILDREN AND CHILDREN-IN-LAW 0 1 1
82 COUSIN (GENDER UNSPECIFIED) 0 1 1
84 MULTIPLE NEPHEWS AND NIECES, MIXED SEX 1 0 1
99 OTHER MULTIPLE RELATIVES 0 1 1
100 MALE LOVER/PARTNER/FIANCE 0 2 2
101 FEMALE LOVER/PARTNER/FIANCE 8 1 9
102 LOVER/PARTNER/FIANCE(E) (GENDER UNSPECIFIED) 7 5 12
105 FRIEND(S) 11 22 33
106 CO-WORKER(S) 1 1 2
109 ROOMMATE (GENDER UNSPECIFIED) 3 0 3
120 PHYSICIAN/HEALTHCARE PROFESSIONAL 15 15 30
121 HOSPITAL/CLINIC 1 1 2
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 2 1 3
126 SOCIAL WORKER 1 1 2
130 INSURANCE COMPANY/AGENT 9 5 14
131 FINANCIAL ADVISOR/PLANNER 1 3 4
132 ATTORNEY/LAWYER 12 27 39
135 BANK OFFICER/TRUST DEPARTMENT AT BANK 1 0 1
160 FORMER HUSBAND 0 1 1
161 FORMER WIFE 2 0 2
168 MULTIPLE: KID(S) AND OTHER RELATIVES 0 1 1
170 MULTIPLE: SPOUSE AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 1 0 1
171 MULTIPLE: KIDS/GRANDKIDS AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 0 2 2
172 MULTIPLE: SPOUSE, KID/GRANDKID AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 1 1 2
173 MULTIPLE: OTHER RELATIVE(S) AND NON-RELATIVE(S) 0 3 3
174 MULTIPLE: NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY, BANK) 2 2 4
180 SOMEONE'S NAME, RELATIONSHIP UNKNOWN 5 0 5
199 OTHER 4 2 6

gy116rec: Pattern variable indicating which child/ren, if any, with whom the respondent has discussed their plans and preferences about the types of medical treatment they want if they become seriously ill in the future.

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4a, z1t

Frequencies
Value Label Male Female Total
System missing - NR 1621 1431 3052
"-2" 2459 2422 4881
"-5" Partial Interview 65 70 135
"1" 6 33 39
"11111111" 0 1 1
"11222" 0 1 1
"122222" 1 6 7
"2122222" 2 1 3
"22122" 1 10 11
"2212222" 0 1 1
"22222" 63 69 132
"2222221" 0 2 2
"2222222" 10 19 29
Note: Only 13 of 70 values are listed.
Note: This variable is provided for convenience, but it is NOT guaranteed to capture all cases when R named a child in GY016RE. Omissions may occur if 1) R did not select "2 CHILD/CHILD-IN-LAW/GRANDCHILD" in response to wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9, but did indicate one or more children via some other route, such as in an open-ended response to "9 OTHER"; or 2) the child(ren) named did not appear in the child roster at the time that this variable was coded. However, whenever R selected "2 CHILD/CHILD-IN-LAW/GRANDCHILD" and went on to name specific children, a best effort was made to match those first names with names in the child roster, generating this pattern variable.
Each digit in this variable represents one child from R's child roster (and the digits are listed in the same order as the children in the roster). If R named a given child in GY016RE, that child's digit is set to 1; otherwise the child's digit is set to 2. E.g., a respondent with 3 children who named the eldest child and the youngest child would have this variable set to "121"; a respondent with 5 children who named none of them would have it set to "22222".
Please note that the child roster includes deceased children, as well as adopted and other non-biological children.
This variable is set to -2 INAP if R is not in sample (GY002RE == 0); if R did not discuss health care plans and preferences with anybody (GY016RE < 1); if R did not answer "2 CHILDCHILD-IN-LAW/GRANDCHILD" in response to any of wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9; or if R does not have any children listed in the child roster. It is set to -5 if the R dropped out of the interview before reaching this module ("-5 PARTIAL INTERVIEW").

gy017re: How well does the first person with whom you discussed your plans and preferences about the types of medical treatment you want if you become seriously ill in the future understand these plans?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4b

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 1 2 3
-2 1710 1775 3485
-1 DON'T KNOW 0 4 4
1 EXTREMELY WELL 1230 1550 2780
2 SOMEWHAT WELL 339 457 796
3 NOT VERY WELL 21 33 54
4 NOT AT ALL 4 4 8
Note: In a handful of cases, not all people named in GY016RE had the same level of understanding in GY017RE. In those cases, the level of understanding of the *first* person named was recorded.

gy018re: Who is the second person with whom you have discussed your plans and preferences about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4d

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 2488 2376 4864
1 SPOUSE 36 67 103
2 SPOUSE AND CHILD/CHILDREN 1 0 1
10 SON 176 253 429
11 MULTIPLE SONS 20 31 51
12 DAUGHTER 201 492 693
13 MULTIPLE DAUGHTERS 29 29 58
14 CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) 42 45 87
15 MULTIPLE CHILDREN (GENDER UNSPECIFIED) 38 74 112
16 MULTIPLE CHILDREN, MIXED SEX 74 137 211
20 BROTHER 13 24 37
21 MULTIPLE BROTHERS 0 1 1
22 SISTER 20 56 76
23 MULTIPLE SISTERS 0 6 6
26 MULTIPLE SIBLINGS, MIXED SEX 4 1 5
29 WHOLE FAMILY 2 4 6
30 GRANDSON 1 1 2
31 FATHER 0 1 1
33 NEPHEW 1 4 5
40 FATHER-IN-LAW 1 0 1
41 BROTHER-IN-LAW 2 1 3
42 SON-IN-LAW 2 4 6
46 STEPSON 1 1 2
50 GRANDDAUGHTER 0 1 1
51 MOTHER 2 3 5
52 FEMALE COUSIN 2 0 2
53 NIECE 1 7 8
54 MULTIPLE NIECES 0 1 1
61 SISTER-IN-LAW 6 8 14
62 DAUGHTER-IN-LAW 3 2 5
66 STEPDAUGHTER 3 1 4
69 OTHER FEMALE RELATIVE 2 0 2
70 SON AND DAUGHTER-IN-LAW 0 2 2
72 MULTIPLE CHILDREN AND CHILDREN-IN-LAW 1 3 4
73 CHILD(REN) AND STEPCHILD(REN) 0 2 2
82 COUSIN (GENDER UNSPECIFIED) 1 2 3
99 OTHER MULTIPLE RELATIVES 0 6 6
100 MALE LOVER/PARTNER/FIANCE 0 3 3
101 FEMALE LOVER/PARTNER/FIANCE 3 1 4
102 LOVER/PARTNER/FIANCE(E) (GENDER UNSPECIFIED) 1 3 4
105 FRIEND(S) 15 60 75
106 CO-WORKER(S) 1 1 2
120 PHYSICIAN/HEALTHCARE PROFESSIONAL 29 41 70
121 HOSPITAL/CLINIC 0 1 1
122 NURSING HOME, ASSISTED LIVING, OR OTHER LONG-TERM CARE FACILITY 1 0 1
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 1 5 6
126 SOCIAL WORKER 1 0 1
130 INSURANCE COMPANY/AGENT 5 2 7
131 FINANCIAL ADVISOR/PLANNER 5 3 8
132 ATTORNEY/LAWYER 60 46 106
134 TRUST/REVOCABLE TRUST/TRUSTEE(S) 0 1 1
160 FORMER HUSBAND 0 1 1
161 FORMER WIFE 4 0 4
168 MULTIPLE: KID(S) AND OTHER RELATIVES 1 1 2
171 MULTIPLE: KIDS/GRANDKIDS AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 1 6 7
173 MULTIPLE: OTHER RELATIVE(S) AND NON-RELATIVE(S) 0 1 1
174 MULTIPLE: NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY, BANK) 1 0 1
190 NO ONE 0 1 1
199 OTHER 3 2 5

gy118rec: Pattern variable indicating which child/ren, if any, with whom the respondent has discussed their plans and preferences about the types of medical treatment they want if they become seriously ill in the future.

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4d, z2t

Frequencies
Value Label Male Female Total
System missing - NR 1621 1431 3052
"-2" 2716 2751 5467
"-5" Partial Interview 65 70 135
"11" 69 67 136
"11112" 0 3 3
"122221" 0 1 1
"1222222" 2 2 4
"1222222222" 0 1 1
"211" 5 14 19
"2111" 0 3 3
"2222212" 0 2 2
"2222222222" 0 1 1
Note: Only 12 of 95 values are listed.
Note: This variable is provided for convenience, but it is NOT guaranteed to capture all cases when R named a child in GY018RE. Omissions may occur if 1) R did not select "2 CHILD/CHILD-IN-LAW/GRANDCHILD" in response to wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9, but did indicate one or more children via some other route, such as in an open-ended response to "9 OTHER"; or 2) the child(ren) named did not appear in the child roster at the time that this variable was coded. However, whenever R selected "2 CHILD/CHILD-IN-LAW/GRANDCHILD" and went on to name specific children, a best effort was made to match those first names with names in the child roster, generating this pattern variable.
Each digit in this variable represents one child from R's child roster (and the digits are listed in the same order as the children in the roster). If R named a given child in GY018RE, that child's digit is set to 1; otherwise the child's digit is set to 2. E.g., a respondent with 3 children who named the eldest child and the youngest child would have this variable set to "121"; a respondent with 5 children who named none of them would have it set to "22222".
Please note that the child roster includes deceased children, as well as adopted and other non-biological children.
This variable is set to -2 INAP if R is not in sample (GY002RE == 0); if R did not discuss health care plans and preferences with a second person (GY018RE < 1); if R did not answer "2 CHILDCHILD-IN-LAW/GRANDCHILD" in response to any of wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9; or if R does not have any children listed in the child roster. It is set to -5 if the R dropped out of the interview before reaching this module ("-5 PARTIAL INTERVIEW").

gy019re: How well does the second person with whom you discussed your plans and preferences about the types of medical treatment you want if you become seriously ill in the future understand these plans?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4e

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 2488 2377 4865
-1 DON'T KNOW 2 4 6
1 EXTREMELY WELL 463 954 1417
2 SOMEWHAT WELL 325 458 783
3 NOT VERY WELL 25 30 55
4 NOT AT ALL 2 2 4

gy020re: Who is the third person with whom you discussed your plans and preferences about the types of medical treatment you want if you become seriously ill in the future?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4g

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 3034 3220 6254
-1 DON'T KNOW 0 1 1
1 SPOUSE 2 9 11
10 SON 62 126 188
11 MULTIPLE SONS 4 11 15
12 DAUGHTER 68 136 204
13 MULTIPLE DAUGHTERS 5 11 16
14 CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) 14 11 25
15 MULTIPLE CHILDREN (GENDER UNSPECIFIED) 16 41 57
16 MULTIPLE CHILDREN, MIXED SEX 9 19 28
20 BROTHER 10 15 25
21 MULTIPLE BROTHERS 1 0 1
22 SISTER 7 32 39
23 MULTIPLE SISTERS 0 3 3
25 MULTIPLE SIBLINGS (GENDER UNSPECIFIED) 0 2 2
26 MULTIPLE SIBLINGS, MIXED SEX 0 2 2
29 WHOLE FAMILY 0 1 1
30 GRANDSON 0 1 1
31 FATHER 1 0 1
33 NEPHEW 0 1 1
34 MULTIPLE NEPHEWS 0 1 1
42 SON-IN-LAW 0 1 1
46 STEPSON 0 1 1
51 MOTHER 0 5 5
53 NIECE 0 4 4
54 MULTIPLE NIECES 0 2 2
61 SISTER-IN-LAW 1 3 4
62 DAUGHTER-IN-LAW 1 4 5
66 STEPDAUGHTER 1 0 1
69 OTHER FEMALE RELATIVE 0 1 1
70 SON AND DAUGHTER-IN-LAW 0 1 1
72 MULTIPLE CHILDREN AND CHILDREN-IN-LAW 0 1 1
81 BOTH PARENTS 0 1 1
82 COUSIN (GENDER UNSPECIFIED) 0 1 1
90 BOTH PARENTS-IN-LAW 1 0 1
95 MULTIPLE IN-LAWS 3 1 4
98 OTHER RELATIVE (GENDER UNSPECIFIED) 3 5 8
99 OTHER MULTIPLE RELATIVES 2 4 6
101 FEMALE LOVER/PARTNER/FIANCE 1 1 2
102 LOVER/PARTNER/FIANCE(E) (GENDER UNSPECIFIED) 1 1 2
105 FRIEND(S) 14 60 74
106 CO-WORKER(S) 2 1 3
109 ROOMMATE (GENDER UNSPECIFIED) 1 0 1
120 PHYSICIAN/HEALTHCARE PROFESSIONAL 18 41 59
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 0 2 2
130 INSURANCE COMPANY/AGENT 1 0 1
131 FINANCIAL ADVISOR/PLANNER 0 1 1
132 ATTORNEY/LAWYER 20 36 56
135 BANK OFFICER/TRUST DEPARTMENT AT BANK 0 1 1
173 MULTIPLE: OTHER RELATIVE(S) AND NON-RELATIVE(S) 0 1 1
174 MULTIPLE: NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY, BANK) 1 0 1
180 SOMEONE'S NAME, RELATIONSHIP UNKNOWN 1 0 1
199 OTHER 0 2 2

gy120rec: Pattern variable indicating which child/ren, if any, with whom the respondent discussed their plans and preferences with about the types of medical treatment they want if they become seriously ill in the future.

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4g, z3t

Frequencies
Value Label Male Female Total
System missing - NR 1621 1431 3052
"-2" 3094 3371 6465
"-5" Partial Interview 65 70 135
"1111111" 0 1 1
"11111121" 0 1 1
"1122" 1 0 1
"122" 7 16 23
"12222" 2 3 5
"2111112" 0 1 1
"21222" 3 7 10
"22212" 1 4 5
"2222122222" 1 0 1
"22222222" 0 2 2
Note: Only 13 of 64 values are listed.
Note: This variable is provided for convenience, but it is NOT guaranteed to capture all cases when R named a child in GY020RE. Omissions may occur if 1) R did not select "2 CHILD/CHILD-IN-LAW/GRANDCHILD" in response to wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9, but did indicate one or more children via some other route, such as in an open-ended response to "9 OTHER"; or 2) the child(ren) named did not appear in the child roster at the time that this variable was coded. However, whenever R selected "2 CHILD/CHILD-IN-LAW/GRANDCHILD" and went on to name specific children, a best effort was made to match those first names with names in the child roster, generating this pattern variable.
Each digit in this variable represents one child from R's child roster (and the digits are listed in the same order as the children in the roster). If R named a given child in GY020RE, that child's digit is set to 1; otherwise the child's digit is set to 2. E.g., a respondent with 3 children who named the eldest child and the youngest child would have this variable set to "121"; a respondent with 5 children who named none of them would have it set to "22222".
Please note that the child roster includes deceased children, as well as adopted and other non-biological children.
This variable is set to -2 INAP if R is not in sample (GY002RE == 0); if R did not discuss health care plans and preferences with a third person (GY020RE < 1); if R did not answer "2 CHILDCHILD-IN-LAW/GRANDCHILD" in response to any of wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9; or if R does not have any children listed in the child roster. It is set to -5 if the R dropped out of the interview before reaching this module ("-5 PARTIAL INTERVIEW").

gy021re: How well does this third person with whom you discussed your plans and preferences about the types of medical treatment you want if you become seriously ill in the future understand these plans?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpa4h

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 0 1 1
-2 3034 3221 6255
-1 DON'T KNOW 1 4 5
1 EXTREMELY WELL 151 389 540
2 SOMEWHAT WELL 100 193 293
3 NOT VERY WELL 16 15 31
4 NOT AT ALL 3 2 5
Note: In very rare cases, not all people named in GY020RE had the same level of understanding in GY021RE. In those cases, the level of understanding of the *first* person named was recorded.

gy022re: Have you made any legal arrangements for someone to make decisions about your medical care if you become unable to make those decisions yourself? This is sometimes call a Durable Power of Attorney for Health Care.

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpb1

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 4 0 4
-2 1016 1143 2159
-1 DON'T KNOW 5 8 13
1 YES 1155 1423 2578
2 NO 1123 1240 2363
4 IN PROCESS OF MAKING THIS 2 11 13
Note: Though this question appeared in the instrument as a yes-or-no question, respondents volunteering the information that they were in the process of making such legal arrangements were coded as "4 IN PROCESS OF MAKING THIS".

gy023rec: Does your spouse have the legal authority to make decisions about your medical care if you become unable to make those decisions yourself?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY022RE, GY025RE

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 2154 2408 4562
1 YES 767 664 1431
2 NO 384 753 1137
Note: This variable is set to 1 "YES" if "spouse" is mentioned in GY025RE (i.e., if GY025RE is set to 1 SPOUSE; 2 SPOUSE AND CHILDREN; 167 SPOUSE AND OTHER RELATIVES; 169 SPOUSE,KID(S),&OTHER RELATIVES; 170 SPOUSE AND NONRELATIVES; or 172 SPOUSE, KID/GKID & NONRELATIVES). It is set to "no" if only non-spouses are mentioned in GY025RE. It is set to -2 "INAPPROPRIATE" if GY025RE is -1 DON'T KNOW or -3 REFUSED, or if this question doesn't apply because R is not in the End-of-Life sample or didn't give medical authority to anyone. In a few (very rare) cases, respondents who in our records are not currently married nonetheless list a spouse. These cases are retained.

gy024rec: Does one or more of your children have the legal authority to make decisions about your medical care if you become unable to make those decisions yourself?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY022RE, GY025RE

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 2154 2408 4562
1 YES 367 728 1095
2 NO 784 689 1473
Note: This variable is set to 1 "YES" if one or more children (including stepchildren) is mentioned in GY025RE (i.e., if GY025RE is set to 2 SPOUSE AND CHILD/CHILDREN; 10 SON; 11 MULTIPLE SONS; 12 DAUGHTER; 13 MULTIPLE DAUGHTERS; 14 CHILD/CHILD-IN-LAW/GRANDCHILD (M or F); 15 MULTIPLE CHILDREN (GENDER UNSPECIFIED); 16 MULTIPLE CHILDREN, MIXED SEX; 46 STEPSON; 66 STEPDAUGHTER; 70 SON AND DAUGHTER-IN-LAW; 71 DAUGHTER AND SON-IN-LAW; 72 MULTIPLE CHILDREN AND CHILDREN-IN-LAW; 73 CHILD(REN) AND STEPCHILD(REN); 168 CHILDREN AND OTHER RELATIVES; 169 SPOUSE,KID(S),&OTHER RELATIVES; 171 MULTIPLE: KIDS/GRANDKIDS & NONRELATIVES; or 172 MULTIPLE:SPOUSE, KID/GKID & NONRELATIVES).
This variable is set to "no" if none of the people mentioned in GY025RE is a child. It is set to -2 "INAPPROPRIATE" if GY025RE is -1 "DON'T KNOW" or -3 "REFUSED", or if this question doesn't apply because R is not in the End-of-Life sample or didn't give medical authority to anyone. In rare cases, respondents who according to our records are childless may nonetheless name a child. These cases are retained.

gy025re: Who has the legal authority to make decisions about your medical care if you become unable to make those decisions?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpb2

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 3 3 6
-2 2150 2402 4552
-1 DON'T KNOW 1 3 4
1 SPOUSE 701 572 1273
2 SPOUSE AND CHILD/CHILDREN 59 83 142
10 SON 94 186 280
11 MULTIPLE SONS 8 12 20
12 DAUGHTER 111 264 375
13 MULTIPLE DAUGHTERS 7 24 31
14 CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) 19 31 50
15 MULTIPLE CHILDREN (GENDER UNSPECIFIED) 3 14 17
16 MULTIPLE CHILDREN, MIXED SEX 27 58 85
20 BROTHER 14 10 24
21 MULTIPLE BROTHERS 0 1 1
22 SISTER 12 29 41
26 MULTIPLE SIBLINGS, MIXED SEX 0 1 1
29 WHOLE FAMILY 2 1 3
30 GRANDSON 1 0 1
32 MALE COUSIN 0 2 2
33 NEPHEW 2 2 4
41 BROTHER-IN-LAW 0 1 1
42 SON-IN-LAW 0 5 5
46 STEPSON 1 0 1
52 FEMALE COUSIN 1 0 1
53 NIECE 4 6 10
54 MULTIPLE NIECES 0 1 1
61 SISTER-IN-LAW 1 2 3
62 DAUGHTER-IN-LAW 1 0 1
66 STEPDAUGHTER 2 2 4
69 OTHER FEMALE RELATIVE 0 1 1
70 SON AND DAUGHTER-IN-LAW 0 3 3
71 DAUGHTER AND SON-IN-LAW 0 1 1
73 CHILD(REN) AND STEPCHILD(REN) 1 0 1
82 COUSIN (GENDER UNSPECIFIED) 1 2 3
84 MULTIPLE NEPHEWS AND NIECES, MIXED SEX 0 1 1
98 OTHER RELATIVE (GENDER UNSPECIFIED) 1 3 4
99 OTHER MULTIPLE RELATIVES 4 9 13
100 MALE LOVER/PARTNER/FIANCE 3 1 4
101 FEMALE LOVER/PARTNER/FIANCE 3 0 3
102 LOVER/PARTNER/FIANCE(E) (GENDER UNSPECIFIED) 1 2 3
105 FRIEND(S) 16 19 35
106 CO-WORKER(S) 0 1 1
108 FEMALE ROOMMATE 1 0 1
109 ROOMMATE (GENDER UNSPECIFIED) 2 0 2
120 PHYSICIAN/HEALTHCARE PROFESSIONAL 3 10 13
121 HOSPITAL/CLINIC 0 2 2
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 1 2 3
131 FINANCIAL ADVISOR/PLANNER 0 1 1
132 ATTORNEY/LAWYER 21 24 45
134 TRUST/REVOCABLE TRUST/TRUSTEE(S) 0 1 1
139 AT BANK 0 1 1
160 FORMER HUSBAND 0 1 1
167 MULTIPLE: SPOUSE AND OTHER RELATIVES 0 2 2
168 MULTIPLE: KID(S) AND OTHER RELATIVES 2 2 4
170 MULTIPLE: SPOUSE AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 2 4 6
171 MULTIPLE: KIDS/GRANDKIDS AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 2 5 7
172 MULTIPLE: SPOUSE, KID/GRANDKID AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 5 3 8
173 MULTIPLE: OTHER RELATIVE(S) AND NON-RELATIVE(S) 2 4 6
180 SOMEONE'S NAME, RELATIONSHIP UNKNOWN 1 1 2
190 NO ONE 0 2 2
199 OTHER 9 2 11

gy125rec: Pattern variable indicating which child/ren, if any, the respondent named as having the legal authority to make decisions about their medical care if they become unable to make those decisions.

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpb2, z4t

Frequencies
Value Label Male Female Total
System missing - NR 1621 1431 3052
"-2" 2644 2844 5488
"-5" Partial Interview 65 70 135
"111" 10 16 26
"121" 1 3 4
"1212222" 0 1 1
"1221" 0 3 3
"21121" 0 1 1
"212" 22 39 61
"2122" 14 25 39
"2122122" 0 1 1
"222122" 0 1 1
Note: Only 12 of 83 values are listed.
Note: This variable is provided for convenience, but it is NOT guaranteed to capture all cases when R named a child in GY025RE. Omissions may occur if 1) R did not select "2 CHILD/CHILD-IN-LAW/GRANDCHILD" in response to wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9, but did indicate one or more children via some other route, such as in an open-ended response to "9 OTHER"; or 2) the child(ren) named did not appear in the child roster at the time that this variable was coded. However, whenever R selected "2 CHILD/CHILD-IN-LAW/GRANDCHILD" and went on to name specific children, a best effort was made to match those first names with names in the child roster, generating this pattern variable.
Each digit in this variable represents one child from R's child roster (and the digits are listed in the same order as the children in the roster). If R named a given child in GY025RE, that child's digit is set to 1; otherwise the child's digit is set to 2. E.g., a respondent with 3 children who named the eldest child and the youngest child would have this variable set to "121"; a respondent with 5 children who named none of them would have it set to "22222".
Please note that the child roster includes deceased children, as well as adopted and other non-biological children.
This variable is set to -2 INAP if R is not in sample (GY002RE == 0); if R did not give anyone legal authority to make decisions about R's medical care (GY025RE < 1); if R did not answer "2 CHILDCHILD-IN-LAW/GRANDCHILD" in response to any of wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9; or if R does not have any children listed in the child roster. It is set to -5 if the R dropped out of the interview before reaching this module ("-5 PARTIAL INTERVIEW").

gy026re: If you were to pick a person to make medical decisions for you, who would you choose?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpb3

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-4 NOT ASCERTAINED 1 0 1
-3 REFUSED 3 0 3
-2 2171 2567 4738
-1 DON'T KNOW 35 37 72
1 SPOUSE 743 507 1250
2 SPOUSE AND CHILD/CHILDREN 11 9 20
10 SON 106 159 265
11 MULTIPLE SONS 4 7 11
12 DAUGHTER 102 331 433
13 MULTIPLE DAUGHTERS 4 15 19
14 CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) 13 25 38
15 MULTIPLE CHILDREN (GENDER UNSPECIFIED) 1 13 14
16 MULTIPLE CHILDREN, MIXED SEX 8 24 32
20 BROTHER 19 17 36
22 SISTER 26 39 65
25 MULTIPLE SIBLINGS (GENDER UNSPECIFIED) 1 0 1
26 MULTIPLE SIBLINGS, MIXED SEX 0 3 3
29 WHOLE FAMILY 1 2 3
33 NEPHEW 5 0 5
42 SON-IN-LAW 0 1 1
46 STEPSON 1 1 2
50 GRANDDAUGHTER 1 2 3
51 MOTHER 2 1 3
52 FEMALE COUSIN 0 1 1
53 NIECE 4 10 14
61 SISTER-IN-LAW 0 1 1
62 DAUGHTER-IN-LAW 1 2 3
66 STEPDAUGHTER 1 1 2
69 OTHER FEMALE RELATIVE 0 2 2
70 SON AND DAUGHTER-IN-LAW 0 1 1
71 DAUGHTER AND SON-IN-LAW 0 1 1
82 COUSIN (GENDER UNSPECIFIED) 0 1 1
84 MULTIPLE NEPHEWS AND NIECES, MIXED SEX 0 1 1
98 OTHER RELATIVE (GENDER UNSPECIFIED) 1 2 3
99 OTHER MULTIPLE RELATIVES 0 4 4
100 MALE LOVER/PARTNER/FIANCE 1 1 2
101 FEMALE LOVER/PARTNER/FIANCE 7 1 8
102 LOVER/PARTNER/FIANCE(E) (GENDER UNSPECIFIED) 3 2 5
105 FRIEND(S) 10 21 31
106 CO-WORKER(S) 1 1 2
120 PHYSICIAN/HEALTHCARE PROFESSIONAL 7 2 9
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 1 2 3
132 ATTORNEY/LAWYER 2 1 3
161 FORMER WIFE 1 0 1
170 MULTIPLE: SPOUSE AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 1 0 1
173 MULTIPLE: OTHER RELATIVE(S) AND NON-RELATIVE(S) 0 1 1
180 SOMEONE'S NAME, RELATIONSHIP UNKNOWN 2 0 2
190 NO ONE 1 3 4
199 OTHER 3 3 6

gy126rec: Pattern variable indicating which child/ren, if any, the respondent named they would choose if they were to pick a person to make medical decisions for them.

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpb3, z5t

Frequencies
Value Label Male Female Total
System missing - NR 1621 1431 3052
"-2" 2875 3080 5955
"-5" Partial Interview 65 70 135
"11111" 2 1 3
"11122111" 0 1 1
"12222222222" 0 1 1
"2121" 0 1 1
"212222222" 0 1 1
"2221" 12 20 32
"222122222" 0 1 1
"2222122" 0 2 2
"222221" 0 2 2
"22222221" 0 1 1
Note: Only 13 of 71 values are listed.
Note: This variable is provided for convenience, but it is NOT guaranteed to capture all cases when R named a child in GY026RE. Omissions may occur if 1) R did not select "2 CHILD/CHILD-IN-LAW/GRANDCHILD" in response to wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9, but did indicate one or more children via some other route, such as in an open-ended response to "9 OTHER"; or 2) the child(ren) named did not appear in the child roster at the time that this variable was coded. However, whenever R selected "2 CHILD/CHILD-IN-LAW/GRANDCHILD" and went on to name specific children, a best effort was made to match those first names with names in the child roster, generating this pattern variable.
Each digit in this variable represents one child from R's child roster (and the digits are listed in the same order as the children in the roster). If R named a given child in GY026RE, that child's digit is set to 1; otherwise the child's digit is set to 2. E.g., a respondent with 3 children who named the eldest child and the youngest child would have this variable set to "121"; a respondent with 5 children who named none of them would have it set to "22222".
Please note that the child roster includes deceased children, as well as adopted and other non-biological children.
This variable is set to -2 INAP if R is not in sample (GY002RE == 0); if R would not pick anyone to make decisions about R's medical care (GY026RE < 1); if R did not answer "2 CHILDCHILD-IN-LAW/GRANDCHILD" in response to any of wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9; or if R does not have any children listed in the child roster. It is set to -5 if the R dropped out of the interview before reaching this module ("-5 PARTIAL INTERVIEW").

gy030re: Do you have a living will or an advance directive, which is written instructions about the type of medical treatment you would want to receive if you were unconscious or somehow unable to communicate?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpc1

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 6 2 8
-2 1016 1143 2159
-1 DON'T KNOW 7 11 18
1 YES 1253 1447 2700
2 NO 1017 1218 2235
4 IN PROCESS OF MAKING THIS 6 4 10
Note: These are written instructions about the type of medical treatment R would want to receive if R were unconscious or somehow unable to communicate. Note also that, though this question appeared in the instrument as a yes-or-no question, respondents volunteering the information that they were in the process of making a living will or advance directive were coded as "4 IN PROCESS OF MAKING THIS".

gy031rec: Have you given your living will or advance directive to anyone?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY030RE, GY034RE
Revisions: Updated 10/06     

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 1 1 2
-2 2052 2378 4430
-1 DON'T KNOW 3 2 5
1 YES 1204 1368 2572
2 NO 45 76 121
Note: Please see change notice #24 for update details.

gy032rec: Have you given your living will or advance directive to your spouse?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY030RE, GY034RE-GY038RE
Revisions: Updated 10/06     

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 2101 2458 4559
1 YES 695 528 1223
2 NO 509 839 1348
Note: Please see change notice #24 for update details.
Note: This variable is set to 1 "YES" if "spouse" is mentioned in GY034RE, GY035RE, GY036re, GY037RE, or GY038RE (i.e., if any of those variables are set to 1 SPOUSE; 2 SPOUSE AND CHILDREN; 167 SPOUSE AND OTHER RELATIVES; 169 SPOUSE,KID(S),&OTHER RELATIVES; 170 SPOUSE AND NONRELATIVES; or 172 SPOUSE, KID/GKID & NONRELATIVES). It is set to "NO" if none of the people mentioned in those variable is the spouse. It is set to -2 "INAPPROPRIATE" if a spouse is not listed and any of the five constituent variables is -1 or -3, or if this question doesn't apply because R is not in the End-of-Life sample or didn't give the living will to anyone. In a few (very rare) cases, respondents who in our records are not currently married nonetheless list a spouse. These cases are retained. NOTE also that due to instrument error, some cases of -3 "refusal" in GY034RE through GY038RE may have been lost (and coded as -2). Thus, there may be a small number of cases in which this variable (GY032REC) will be set to 2 "NO" when it should in fact be set to -2 "INAPPROPRIATE".

gy033rec: Have you given your living will or advance directive to one or more of your children?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: GY031RE, GY034RE-GY038RE
Revisions: Updated 10/06     

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 2101 2457 4558
1 YES 723 878 1601
2 NO 481 490 971
Note: Please see change notice #24 for update details.
Note: This variable is set to 1 "YES" if one or more children (including stepchildren) are mentioned in any of the variables GY034RE through GY038RE (i.e., if any of those five variables is set to 2 SPOUSE AND CHILD/CHILDREN; 10 SON; 11 MULTIPLE SONS; 12 DAUGHTER; 13 MULTIPLE DAUGHTERS; 14 CHILD/CHILD-IN-LAW/GRANDCHILD (M or F); 15 MULTIPLE CHILDREN (GENDER UNSPECIFIED); 16 MULTIPLE CHILDREN, MIXED SEX; 46 STEPSON; 66 STEPDAUGHTER; 70 SON AND DAUGHTER-IN-LAW; 71 DAUGHTER AND SON-IN-LAW; 72 MULTIPLE CHILDREN AND CHILDREN-IN-LAW; 73 CHILD(REN) AND STEPCHILD(REN); 168 CHILDREN AND OTHER RELATIVES; 169 SPOUSE,KID(S),&OTHER RELATIVES; 171 MULTIPLE: KIDS/GRANDKIDS & NONRELATIVES; or 172 MULTIPLE:SPOUSE, KID/GKID & NONRELATIVES).
This variable is set to 2 "NO" if none of the people mentioned in GY034RE through GY038RE is a child. It is set to -2 "INAPPROPRIATE" if any of the five constituent variables is -1 or -3, or if this question doesn't apply because R is not in the End-of-Life sample or R hasn't given the living will to anyone. In rare cases, respondents who according to our records are childless may nonetheless name a child. These cases are retained.
NOTE also that due to instrument error, some cases of -3 "refusal" in GY034RE through GY038RE may have been lost (and coded as -2). Thus, there may be a small number of cases in which this variable (GY033REC) will be set to 2 "NO" when it should in fact be set to -2 "INAPPROPRIATE".

gy034re: Who is the first person you gave your living will or advance directive to?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpc2_a

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 1 1 2
-2 2081 2416 4497
-1 DON'T KNOW 3 2 5
1 SPOUSE 567 404 971
11 MULTIPLE SONS 0 1 1
12 DAUGHTER 1 1 2
14 CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) 403 566 969
20 BROTHER 13 11 24
21 MULTIPLE BROTHERS 0 1 1
22 SISTER 9 18 27
23 MULTIPLE SISTERS 3 2 5
26 MULTIPLE SIBLINGS, MIXED SEX 0 2 2
29 WHOLE FAMILY 3 1 4
32 MALE COUSIN 0 1 1
33 NEPHEW 3 3 6
41 BROTHER-IN-LAW 2 0 2
42 SON-IN-LAW 0 3 3
46 STEPSON 1 0 1
49 OTHER MALE RELATIVE 0 1 1
51 MOTHER 0 1 1
53 NIECE 2 7 9
61 SISTER-IN-LAW 3 0 3
82 COUSIN (GENDER UNSPECIFIED) 1 2 3
99 OTHER MULTIPLE RELATIVES 2 5 7
101 FEMALE LOVER/PARTNER/FIANCE 2 1 3
102 LOVER/PARTNER/FIANCE(E) (GENDER UNSPECIFIED) 2 1 3
105 FRIEND(S) 12 18 30
106 CO-WORKER(S) 1 0 1
109 ROOMMATE (GENDER UNSPECIFIED) 2 0 2
120 PHYSICIAN/HEALTHCARE PROFESSIONAL 41 128 169
121 HOSPITAL/CLINIC 10 19 29
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 2 2 4
131 FINANCIAL ADVISOR/PLANNER 1 3 4
132 ATTORNEY/LAWYER 79 106 185
134 TRUST/REVOCABLE TRUST/TRUSTEE(S) 1 2 3
135 BANK OFFICER/TRUST DEPARTMENT AT BANK 1 2 3
138 IN SAFE DEPOSIT BOX 19 33 52
150 AT HOME 9 18 27
161 FORMER WIFE 1 0 1
167 MULTIPLE: SPOUSE AND OTHER RELATIVES 1 0 1
173 MULTIPLE: OTHER RELATIVE(S) AND NON-RELATIVE(S) 1 1 2
180 SOMEONE'S NAME, RELATIONSHIP UNKNOWN 1 1 2
190 NO ONE 16 37 53
199 OTHER 5 4 9
Note: Due to instrument error, the distinction between a -3 "refusal" and a -2 "inappropriate" was lost in the wpc2_a-j loop. Thus, some of the answers coded here as -2, "INAPPROPRIATE" might in fact be -3, "REFUSED"s.

gy035re: Who is the second person you gave your living will or advance directive to?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpc2_b

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 2694 3098 5792
1 SPOUSE 111 96 207
2 SPOUSE AND CHILD/CHILDREN 6 3 9
10 SON 79 66 145
11 MULTIPLE SONS 16 12 28
12 DAUGHTER 73 81 154
13 MULTIPLE DAUGHTERS 18 18 36
14 CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) 24 25 49
15 MULTIPLE CHILDREN (GENDER UNSPECIFIED) 41 48 89
16 MULTIPLE CHILDREN, MIXED SEX 41 39 80
20 BROTHER 6 12 18
22 SISTER 6 18 24
23 MULTIPLE SISTERS 0 1 1
25 MULTIPLE SIBLINGS (GENDER UNSPECIFIED) 0 1 1
29 WHOLE FAMILY 1 1 2
42 SON-IN-LAW 0 1 1
46 STEPSON 2 0 2
51 MOTHER 1 1 2
52 FEMALE COUSIN 1 0 1
53 NIECE 0 2 2
54 MULTIPLE NIECES 0 1 1
61 SISTER-IN-LAW 2 1 3
62 DAUGHTER-IN-LAW 0 1 1
66 STEPDAUGHTER 0 1 1
70 SON AND DAUGHTER-IN-LAW 0 2 2
71 DAUGHTER AND SON-IN-LAW 1 0 1
73 CHILD(REN) AND STEPCHILD(REN) 1 0 1
98 OTHER RELATIVE (GENDER UNSPECIFIED) 1 1 2
102 LOVER/PARTNER/FIANCE(E) (GENDER UNSPECIFIED) 1 1 2
105 FRIEND(S) 13 17 30
107 MALE ROOMMATE 0 1 1
120 PHYSICIAN/HEALTHCARE PROFESSIONAL 43 110 153
121 HOSPITAL/CLINIC 10 22 32
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 0 7 7
131 FINANCIAL ADVISOR/PLANNER 1 2 3
132 ATTORNEY/LAWYER 92 93 185
134 TRUST/REVOCABLE TRUST/TRUSTEE(S) 2 1 3
138 IN SAFE DEPOSIT BOX 13 12 25
150 AT HOME 2 15 17
168 MULTIPLE: KID(S) AND OTHER RELATIVES 1 2 3
169 MULTIPLE: SPOUSE, KID(S), AND OTHER RELATIVES 0 1 1
171 MULTIPLE: KIDS/GRANDKIDS AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 0 2 2
173 MULTIPLE: OTHER RELATIVE(S) AND NON-RELATIVE(S) 0 1 1
180 SOMEONE'S NAME, RELATIONSHIP UNKNOWN 1 0 1
190 NO ONE 0 1 1
199 OTHER 1 7 8
Note: Due to instrument error, the distinction between a -3 "refusal" and a -2 "inappropriate" was lost in the wpc2_a-j loop. Thus, some of the answers coded here as -2, "INAPPROPRIATE" might in fact be -3, "REFUSED"s.

gy036re: Who is the third person you gave your living will or advance directive to?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpc2_c

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 3164 3620 6784
-1 DON'T KNOW 0 1 1
1 SPOUSE 14 21 35
10 SON 3 12 15
11 MULTIPLE SONS 2 1 3
12 DAUGHTER 10 11 21
13 MULTIPLE DAUGHTERS 2 1 3
14 CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) 2 0 2
15 MULTIPLE CHILDREN (GENDER UNSPECIFIED) 11 9 20
16 MULTIPLE CHILDREN, MIXED SEX 0 4 4
20 BROTHER 2 4 6
22 SISTER 3 5 8
29 WHOLE FAMILY 1 1 2
33 NEPHEW 0 1 1
41 BROTHER-IN-LAW 2 1 3
42 SON-IN-LAW 1 0 1
51 MOTHER 0 1 1
53 NIECE 2 0 2
61 SISTER-IN-LAW 0 1 1
62 DAUGHTER-IN-LAW 0 1 1
95 MULTIPLE IN-LAWS 1 0 1
102 LOVER/PARTNER/FIANCE(E) (GENDER UNSPECIFIED) 1 0 1
105 FRIEND(S) 0 4 4
120 PHYSICIAN/HEALTHCARE PROFESSIONAL 29 54 83
121 HOSPITAL/CLINIC 2 18 20
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 2 1 3
131 FINANCIAL ADVISOR/PLANNER 0 1 1
132 ATTORNEY/LAWYER 35 30 65
133 PROBATE COURT/JUDGE/THE STATE 0 1 1
134 TRUST/REVOCABLE TRUST/TRUSTEE(S) 2 0 2
138 IN SAFE DEPOSIT BOX 9 9 18
150 AT HOME 2 8 10
169 MULTIPLE: SPOUSE, KID(S), AND OTHER RELATIVES 0 1 1
171 MULTIPLE: KIDS/GRANDKIDS AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 0 1 1
172 MULTIPLE: SPOUSE, KID/GRANDKID AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 2 0 2
199 OTHER 1 2 3
Note: Due to instrument error, the distinction between a -3 "refusal" and a -2 "inappropriate" was lost in the wpc2_a-j loop. Thus, some of the answers coded here as -2, "INAPPROPRIATE" might in fact be -3, "REFUSED"s.

gy037re: Who is the fourth person you gave your living will or advance directive to?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpc2_d

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 3275 3790 7065
1 SPOUSE 2 6 8
11 MULTIPLE SONS 0 1 1
12 DAUGHTER 1 0 1
13 MULTIPLE DAUGHTERS 0 1 1
15 MULTIPLE CHILDREN (GENDER UNSPECIFIED) 1 2 3
22 SISTER 1 0 1
33 NEPHEW 0 1 1
41 BROTHER-IN-LAW 0 1 1
61 SISTER-IN-LAW 1 0 1
99 OTHER MULTIPLE RELATIVES 0 1 1
106 CO-WORKER(S) 1 0 1
120 PHYSICIAN/HEALTHCARE PROFESSIONAL 3 6 9
121 HOSPITAL/CLINIC 4 4 8
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 0 3 3
132 ATTORNEY/LAWYER 8 4 12
135 BANK OFFICER/TRUST DEPARTMENT AT BANK 1 0 1
138 IN SAFE DEPOSIT BOX 4 4 8
150 AT HOME 2 0 2
171 MULTIPLE: KIDS/GRANDKIDS AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 0 1 1
199 OTHER 1 0 1
Note: Due to instrument error, the distinction between a -3 "refusal" and a -2 "inappropriate" was lost in the wpc2_a-j loop. Thus, some of the answers coded here as -2, "INAPPROPRIATE" might in fact be -3, "REFUSED"s.

gy038re: Who is the fifth person you gave your living will or advance directive to?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpc2_e

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 3298 3818 7116
1 SPOUSE 0 1 1
121 HOSPITAL/CLINIC 3 0 3
132 ATTORNEY/LAWYER 0 2 2
138 IN SAFE DEPOSIT BOX 3 4 7
174 MULTIPLE: NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY, BANK) 1 0 1
Note: Due to instrument error, the distinction between a -3 "refusal" and a -2 "inappropriate" was lost in the wpc2_a-j loop. Thus, some of the answers coded here as -2, "INAPPROPRIATE" might in fact be -3, "REFUSED"s.

gy040re: If you were to die tomorrow, who would get your assets, including your home, savings, life insurance and the like?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpe1

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 13 22 35
-2 1016 1143 2159
-1 DON'T KNOW 26 29 55
1 SPOUSE 1570 1376 2946
2 SPOUSE AND CHILDREN 129 133 262
5 ALL CHILDREN 271 767 1038
6 ONLY SOME CHILD(REN) 31 67 98
7 GRANDCHILDREN 0 1 1
8 CHILDREN AND GRANDCHILDREN 3 8 11
9 SPOUSE, CHILDREN, AND GRANDCHILDREN 1 2 3
20 BROTHERS OR SISTERS 34 49 83
21 PARENTS 2 4 6
30 SPOUSE AND SIBLING(S) 2 2 4
40 THE WHOLE FAMILY 3 2 5
45 OTHER RELATIVES (OR COMBINATIONS OF RELATIVES) 23 34 57
50 ROMANTIC/NON-SPOUSE PARTNER 6 2 8
55 FRIENDS 7 4 11
60 CHARITY (INCLUDING CHURCH) 3 7 10
61 CHARITY AND FAMILY MEMBERS 11 8 19
65 TRUST FUND 62 38 100
66 TRUST FUND AND FAMILY MEMBERS 5 2 7
70 THE ESTATE 1 0 1
75 WHOMEVER SURVIVORS DECIDE IT SHOULD BE 1 1 2
85 AS SPECIFIED IN WILL/WRITING 2 2 4
90 NOTHING SPECIFIED IN WRITING 3 0 3
95 DON'T HAVE MUCH TO DISTRIBUTE 1 4 5
99 OTHER 79 118 197

gy140re: If you were to die tomorrow, who would benefit from your trust fund?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpe1aa, wpe1ba

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 3248 3793 7041
1 SPOUSE 9 2 11
2 SPOUSE AND CHILDREN 25 6 31
5 ALL CHILDREN 6 13 19
6 ONLY SOME CHILD(REN) 1 0 1
8 CHILDREN AND GRANDCHILDREN 3 4 7
40 THE WHOLE FAMILY 3 2 5
45 OTHER RELATIVES (OR COMBINATIONS OF RELATIVES) 1 2 3
55 FRIENDS 0 1 1
61 CHARITY AND FAMILY MEMBERS 3 1 4
99 OTHER 6 1 7
Note: this item was added to the grad phone instrument on 1 Oct 2003.

gy041re: If you outlived your spouse, who would your assets, including home, savings, life insurance and the like, go to?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpe2c

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 1 1 2
-2 1611 2324 3935
-1 DON'T KNOW 34 5 39
3 PARTICIPANT 5 1 6
5 ALL CHILDREN 1453 1333 2786
6 ONLY SOME CHILD(REN) 85 57 142
7 GRANDCHILDREN 3 3 6
8 CHILDREN AND GRANDCHILDREN 17 23 40
20 BROTHERS OR SISTERS 15 10 25
21 PARENTS 2 0 2
40 THE WHOLE FAMILY 1 3 4
45 OTHER RELATIVES (OR COMBINATIONS OF RELATIVES) 30 18 48
55 FRIENDS 0 1 1
60 CHARITY (INCLUDING CHURCH) 9 4 13
61 CHARITY AND FAMILY MEMBERS 9 20 29
65 TRUST FUND 15 6 21
66 TRUST FUND AND FAMILY MEMBERS 0 3 3
70 THE ESTATE 3 2 5
85 AS SPECIFIED IN WILL/WRITING 0 2 2
90 NOTHING SPECIFIED IN WRITING 2 1 3
99 OTHER 10 8 18

gy042re: Do you have a signed and witnessed will?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpe5

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 4 4 8
-2 1016 1143 2159
-1 DON'T KNOW 3 4 7
1 YES 1677 2046 3723
2 NO 595 622 1217
3 SIGNED, BUT NOT WITNESSED 6 4 10
4 IN PROCESS OF MAKING THIS 4 2 6
Note: Though this question appeared in the instrument as a yes-or-no question, respondents volunteering the information that they had a signed but not witnessed will were coded as "3 SIGNED, BUT NOT WITNESSED", and those volunteering that they were in the process of making a will were coded as "4 IN PROCESS OF MAKING THIS".

gy043re: Do you have a revocable trust?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpe4

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 5 9 14
-2 1016 1143 2159
-1 DON'T KNOW 51 100 151
1 YES 613 675 1288
2 NO 1619 1895 3514
4 IN PROCESS OF MAKING THIS 1 3 4
Note: "Revocable trusts designate who will get property in that trust after their death." Note also that, though this question appeared in the instrument as a yes-or-no question, respondents volunteering the information that they were in the process of creating a revocable trust were coded as "4 IN PROCESS OF MAKING THIS".

gy044re: Do you have assets or property that will go to someone through a joint ownership or beneficiary designation, for example, a joint bank account or a beneficiary designation on a life insurance policy or pension?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpe6

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 8 12 20
-2 1016 1143 2159
-1 DON'T KNOW 26 94 120
1 YES 1064 1377 2441
2 NO 1191 1199 2390

gy045sp: If your spouse were to die tomorrow, how would most of your spouse's assets be distributed?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpe7

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 9 16 25
-2 1344 1876 3220
-1 DON'T KNOW 22 26 48
1 SPOUSE 1 0 1
3 PARTICIPANT 1626 1736 3362
4 PARTICIPANT AND CHILDREN 112 86 198
5 ALL CHILDREN 75 31 106
6 ONLY SOME CHILD(REN) 11 5 16
7 GRANDCHILDREN 1 0 1
8 CHILDREN AND GRANDCHILDREN 1 0 1
9 SPOUSE, CHILDREN, AND GRANDCHILDREN 1 0 1
20 BROTHERS OR SISTERS 3 0 3
33 SPOUSE'S CHILDREN (WHO AREN'T PARTICIPANT'S CHILDREN) 17 8 25
36 PARTICIPANT AND SPOUSE'S CHILD(REN) 3 2 5
38 PARTICIPANT AND SPOUSE'S SIBLING(S) 3 1 4
40 THE WHOLE FAMILY 0 1 1
45 OTHER RELATIVES (OR COMBINATIONS OF RELATIVES) 8 3 11
60 CHARITY (INCLUDING CHURCH) 1 0 1
61 CHARITY AND FAMILY MEMBERS 3 1 4
65 TRUST FUND 48 25 73
66 TRUST FUND AND FAMILY MEMBERS 5 5 10
70 THE ESTATE 1 0 1
85 AS SPECIFIED IN WILL/WRITING 2 2 4
90 NOTHING SPECIFIED IN WRITING 1 0 1
95 DON'T HAVE MUCH TO DISTRIBUTE 1 0 1
99 OTHER 6 1 7

gy046re: Who is designated as the executor of your estate or would be responsible for the distribution of your estate?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpe9

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 17 19 36
-2 1016 1143 2159
-1 DON'T KNOW 129 158 287
1 SPOUSE 708 533 1241
2 SPOUSE AND CHILD/CHILDREN 20 24 44
10 SON 394 565 959
11 MULTIPLE SONS 20 39 59
12 DAUGHTER 347 534 881
13 MULTIPLE DAUGHTERS 16 42 58
14 CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) 13 14 27
15 MULTIPLE CHILDREN (GENDER UNSPECIFIED) 29 81 110
16 MULTIPLE CHILDREN, MIXED SEX 30 77 107
20 BROTHER 0 4 4
21 MULTIPLE BROTHERS 0 1 1
22 SISTER 2 4 6
24 SIBLING (GENDER UNSPECIFIED) 95 114 209
29 WHOLE FAMILY 2 0 2
30 GRANDSON 1 0 1
32 MALE COUSIN 0 1 1
33 NEPHEW 1 1 2
41 BROTHER-IN-LAW 10 6 16
42 SON-IN-LAW 1 7 8
46 STEPSON 1 2 3
50 GRANDDAUGHTER 1 0 1
51 MOTHER 1 1 2
53 NIECE 1 5 6
61 SISTER-IN-LAW 0 2 2
62 DAUGHTER-IN-LAW 1 3 4
66 STEPDAUGHTER 2 0 2
69 OTHER FEMALE RELATIVE 2 0 2
71 DAUGHTER AND SON-IN-LAW 1 3 4
72 MULTIPLE CHILDREN AND CHILDREN-IN-LAW 0 2 2
73 CHILD(REN) AND STEPCHILD(REN) 2 7 9
81 BOTH PARENTS 1 0 1
82 COUSIN (GENDER UNSPECIFIED) 1 0 1
95 MULTIPLE IN-LAWS 2 1 3
98 OTHER RELATIVE (GENDER UNSPECIFIED) 43 57 100
99 OTHER MULTIPLE RELATIVES 5 10 15
100 MALE LOVER/PARTNER/FIANCE 0 1 1
101 FEMALE LOVER/PARTNER/FIANCE 3 1 4
102 LOVER/PARTNER/FIANCE(E) (GENDER UNSPECIFIED) 4 1 5
105 FRIEND(S) 40 39 79
106 CO-WORKER(S) 1 0 1
125 MINISTER/RABBI/PRIEST/CHURCH/ETC 0 1 1
131 FINANCIAL ADVISOR/PLANNER 5 1 6
132 ATTORNEY/LAWYER 66 79 145
133 PROBATE COURT/JUDGE/THE STATE 3 3 6
134 TRUST/REVOCABLE TRUST/TRUSTEE(S) 6 3 9
135 BANK OFFICER/TRUST DEPARTMENT AT BANK 21 18 39
139 AT BANK 2 0 2
160 FORMER HUSBAND 0 2 2
161 FORMER WIFE 6 0 6
170 MULTIPLE: SPOUSE AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 1 1 2
171 MULTIPLE: KIDS/GRANDKIDS AND NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY) 4 0 4
173 MULTIPLE: OTHER RELATIVE(S) AND NON-RELATIVE(S) 3 7 10
174 MULTIPLE: NON-RELATIVES (HEALTHCARE PROFESSIONAL, HEALTHCARE FACILITY, ATTORNEY, BANK) 1 0 1
180 SOMEONE'S NAME, RELATIONSHIP UNKNOWN 6 0 6
190 NO ONE 209 193 402
199 OTHER 9 15 24
Note: NOTE TO INTERVIEWER: If multiple executors are named, ask who is most important.

gy146rec: Pattern variable indicating which child/ren, if any, the respondent named as executor of their estate or child/ren who would be responsible for the distribution of their estate.

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpe9, z6t

Frequencies
Value Label Male Female Total
System missing - NR 1621 1431 3052
"-2" 2237 2174 4411
"-5" Partial Interview 65 70 135
"111" 12 37 49
"121" 1 3 4
"1212222222" 0 1 1
"1221" 0 2 2
"2112" 2 3 5
"21121" 0 1 1
"2122" 23 52 75
"21222222" 1 1 2
"221212222" 0 1 1
Note: Only 12 of 105 values are listed.
Note: This variable is provided for convenience, but it is NOT guaranteed to capture all cases when R named a child in GY046RE. Omissions may occur if 1) R did not select "2 CHILD/CHILD-IN-LAW/GRANDCHILD" in response to wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9, but did indicate one or more children via some other route, such as in an open-ended response to "9 OTHER"; or 2) the child(ren) named did not appear in the child roster at the time that this variable was coded. However, whenever R selected "2 CHILD/CHILD-IN-LAW/GRANDCHILD" and went on to name specific children, a best effort was made to match those first names with names in the child roster, generating this pattern variable.
Each digit in this variable represents one child from R's child roster (and the digits are listed in the same order as the children in the roster). If R named a given child in GY046RE, that child's digit is set to 1; otherwise the child's digit is set to 2. E.g., a respondent with 3 children who named the eldest child and the youngest child would have this variable set to "121"; a respondent with 5 children who named none of them would have it set to "22222".
Please note that the child roster includes deceased children, as well as adopted and other non-biological children.
This variable is set to -2 INAP if R is not in sample (GY002RE == 0); if no one is designated as executor of R's estate or would be responsible for distribution of R's estate (GY046RE < 1); if R did not answer "2 CHILDCHILD-IN-LAW/GRANDCHILD" in response to any of wpa4a, wpa4d, wpa4g, wpb2, wpb3, or wpe9; or if R does not have any children listed in the child roster. It is set to -5 if the R dropped out of the interview before reaching this module ("-5 PARTIAL INTERVIEW").

gy060re: How do you hope to spend the last few days or weeks of your life?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpg1

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 5 4 9
-2 1016 1143 2159
-1 DON'T KNOW 50 46 96
1 HOME (INCLUDES FAMILY MEMBER'S HOME) 2022 2292 4314
2 HOSPITAL 23 31 54
3 HOSPICE (NOT AT HOME) 48 104 152
4 IN-HOME HOSPICE CARE 20 51 71
5 'AT HOME OR HOSPICE' 0 7 7
6 NURSING HOME/ASSISTED LIVING FACILTY/ETC 24 44 68
20 AT WORK / WHILE WORKING 3 1 4
25 DOING RECREATIONAL ACTIVITY OR OUTDOORS 32 15 47
30 SUDDEN OR ACCIDENTAL DEATH 6 1 7
40 DEPENDS ON THE SITUATION 10 24 34
45 NO PREFERENCE 41 51 92
99 OTHER 5 11 16

gy061re: If you had a serious illness today with very low chances of survival and were mentally intact, but in severe and constant physical pain, would you want to continue all medical treatments or stop all life prolonging treatments?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wph1

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 17 26 43
-2 1016 1143 2159
-1 DON'T KNOW 132 181 313
1 CONTINUE ALL TREATMENT SO R COULD SURVIVE 449 544 993
2 STOP ALL TREATMENT TO PROLONG R'S LIFE 1668 1893 3561
3 HAVE SOME TREATMENTS, BUT NOT OTHERS 9 16 25
4 DEPENDS ON THE SITUATION 11 13 24
5 LEAVE IT UP TO FAMILY/DOCTOR/GOD 0 5 5
6 OTHER 3 4 7
Note: Full text of answer categories on instrument was as follows:
<1> CONTINUE ALL TREATMENT SO I COULD SURVIVE ("STAYING ALIVE
IS MOST IMPORTANT TO ME NO MATTER WHAT.")
<2> STOP ALL TREATMENT TO PROLONG MY LIFE ("FOR ME,
QUALITY OF LIFE IS MORE IMPORTANT THAN LENGTH OF LIFE.")
Respondents volunteering other responses were coded into one of 4 other categories: "3 HAVE SOME TREATMENTS, BUT NOT OTHERS", "4 DEPENDS ON THE SITUATION", "5 LEAVE IT UP TO FAMILY/DOCTOR/GOD", or "6 OTHER".

gy062re: If you had a serious illness today with very low chances of survival and had no physical pain, but were unable to speak, walk, or recognize others, would you want to continue all medical treatments or stop all life prolonging treatments?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wph2

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 16 26 42
-2 1016 1143 2159
-1 DON'T KNOW 95 114 209
1 CONTINUE ALL TREATMENT SO R COULD SURVIVE 209 191 400
2 STOP ALL TREATMENT TO PROLONG R'S LIFE 1960 2328 4288
3 HAVE SOME TREATMENTS, BUT NOT OTHERS 1 12 13
4 DEPENDS ON THE SITUATION 2 3 5
5 LEAVE IT UP TO FAMILY/DOCTOR/GOD 3 6 9
6 OTHER 3 2 5
Note: Full text of answer categories on instrument was as follows:
<1> CONTINUE ALL TREATMENT SO I COULD SURVIVE ("STAYING ALIVE
IS MOST IMPORTANT TO ME NO MATTER WHAT.")
<2> STOP ALL TREATMENT TO PROLONG MY LIFE ("FOR ME,
QUALITY OF LIFE IS MORE IMPORTANT THAN LENGTH OF LIFE.")
Respondents volunteering other responses were coded into one of 4 other categories: "3 HAVE SOME TREATMENTS, BUT NOT OTHERS", "4 DEPENDS ON THE SITUATION", "5 LEAVE IT UP TO FAMILY/DOCTOR/GOD", or "6 OTHER".

gy063sp: If your spouse had a serious illness today with very low chances of survival and were mentally intact, but in severe and constant physical pain, would he/she want to continue all medical treatments or stop all life prolonging treatments?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpi1a

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 18 16 34
-2 1344 1875 3219
-1 DON'T KNOW 192 210 402
1 CONTINUE ALL TREATMENT SO S/HE COULD SURVIVE 338 327 665
2 STOP ALL TREATMENT TO PROLONG HIS/HER LIFE 1408 1384 2792
3 HAVE SOME TREATMENTS, BUT NOT OTHERS 2 9 11
4 DEPENDS ON THE SITUATION 2 2 4
5 LEAVE IT UP TO FAMILY/DOCTOR/GOD 0 2 2
6 OTHER 1 0 1
Note: Full text of answer categories on instrument was as follows:
<1> CONTINUE ALL TREATMENT SO HE/SHE COULD SURVIVE ("STAYING
ALIVE IS MOST IMPORTANT TO HIM/HER NO MATTER WHAT.")
<2> STOP ALL TREATMENT TO PROLONG HIS/HER LIFE. ("FOR HIM/HER,
QUALITY OF LIFE IS MORE IMPORTANT THAN LENGTH OF LIFE.")
Respondents volunteering other responses were coded into one of 4 other categories: "3 HAVE SOME TREATMENTS, BUT NOT OTHERS", "4 DEPENDS ON THE SITUATION", "5 LEAVE IT UP TO FAMILY/DOCTOR/GOD", or "6 OTHER".

gy064sp: If your spouse had a serious illness today with very low chances of survival and had no physical pain, but were unable to speak, walk, or recognize others, would he/she want to continue all medical treatments or stop all life prolonging treatments?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpi2

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 19 15 34
-2 1344 1875 3219
-1 DON'T KNOW 155 148 303
1 CONTINUE ALL TREATMENT SO S/HE COULD SURVIVE 192 133 325
2 STOP ALL TREATMENT TO PROLONG HIS/HER LIFE 1592 1646 3238
3 HAVE SOME TREATMENTS, BUT NOT OTHERS 1 6 7
4 DEPENDS ON THE SITUATION 1 1 2
5 LEAVE IT UP TO FAMILY/DOCTOR/GOD 1 1 2
Note: Full text of answer categories on instrument was as follows:
<1> CONTINUE ALL TREATMENT SO HE/SHE COULD SURVIVE ("STAYING
ALIVE IS MOST IMPORTANT TO HIM/HER NO MATTER WHAT.")
<2> STOP ALL TREATMENT TO PROLONG HIS/HER LIFE. ("FOR HIM/HER,
QUALITY OF LIFE IS MORE IMPORTANT THAN LENGTH OF LIFE.")
Respondents volunteering other responses were coded into one of 4 other categories: "3 HAVE SOME TREATMENTS, BUT NOT OTHERS", "4 DEPENDS ON THE SITUATION", "5 LEAVE IT UP TO FAMILY/DOCTOR/GOD", or "6 OTHER".

gy065re: How strictly do you want your family or care provider to follow your wishes for end of life medical care?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wph4

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 9 14 23
-2 1016 1143 2159
-1 DON'T KNOW 39 56 95
1 STRICTLY FOLLOW R'S WISHES 1779 2067 3846
2 DO WHAT THEY THINK BEST AT THE TIME 457 538 995
4 DEPENDS ON THE SITUATION 3 3 6
5 LEAVE IT UP TO FAMILY/DOCTOR/GOD 0 2 2
6 OTHER 2 2 4
Note: The answer categories on the instrument were "1 STRICTLY FOLLOW R's WISHES" and "2 DO WHAT THEY THINK IS BEST AT THE TIME". Respondents volunteering other responses were coded into one of 3 other categories: "4 DEPENDS ON THE SITUATION", "5 LEAVE IT UP TO FAMILY/DOCTOR/GOD", or "6 OTHER".

gy066sp: How strictly would your spouse want you to follow their wishes for end of life medical care?

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: wpi4

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-3 REFUSED 10 9 19
-2 1344 1875 3219
-1 DON'T KNOW 54 70 124
1 STRICTLY FOLLOW SPOUSE'S WISHES 1597 1532 3129
2 DO WHAT R THINKS BEST AT TIME, EVEN IF.. 300 337 637
4 DEPENDS ON THE SITUATION 0 2 2
Note: The answer categories on the instrument were "1 STRICTLY FOLLOW SPOUSE'S WISHES" and "2 DO WHAT I THINK IS BEST AT THE TIME, EVEN IF I AM UNAWARE OF HIS/HER PREFERENCES OR THINK IT MAY BE DIFFERENT FROM HIS/HER WISHES". Respondents volunteering other responses were coded into one of 3 other categories: "4 DEPENDS ON THE SITUATION", "5 LEAVE IT UP TO FAMILY/DOCTOR/GOD", or "6 OTHER".

gy070rec: Stage of Terri Schiavo case when respondent completed WLS phone interview.

Data source: Graduate Respondent      Collected in: 2004      Mode: phone
Source variables: tmpyear, tmpmonth, tmpday

Frequencies
Value Label Male Female Total
. System missing - NR 1621 1431 3052
-5 PARTIAL INTERVIEW 65 70 135
-2 1016 1143 2159
1 BEFORE HEAVY MEDIA COVERAGE(PRE 14FEB2005) 2212 2601 4813
2 COVERAGE OF LEGAL BATTLES(14FEB-17MAR 2005) 26 18 44
3 AFTER FEEDING TUBE REMOVAL(18MAR-31MAR 2005) 10 12 22
4 AFTER SCHIAVO'S DEATH ON 31MAR2005 41 51 92

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