WLS Codebooks

Note: Codebooks contain frequency data from the private data release. For some variables, these differ from the frequencies in the public release. Variables that differ between the public and private versions include "(not available on public release)" as part of the variable description, or a note indicating the difference between the public and private versions.

In Person: Non-Normative Extension Interview

KNNEXT  Non-normative Extension Interview

OVERVIEW

This module is an extension of the non-normative screener module of the 2011
collection wave. The purpose is to collect more information about the
participant's selected non-normative child. If a child with a developmental
disorder was identified in the 2005 collection wave, that child was also
discussed in this wave. If a non-normative child was not discussed in 2005,
they were identified in the non-normative screener and discussed further here. 
If a participant reported more than one child with a developmental disability
in the screener module, the one they had the most contact with was chosen to be
discussed here. The "selected non-normative child" refers to either the child
talked about in 2005, the child identified in the non-normative screener in the
2011 collection wave or the non-normative child that the participant had the
most contact with. Information was collected in the following ways:

	Once the correct child was verified, the participant was read a list of
possible developmental disorders and reported which the selected non-normative
child had. After version 17 of this survey, the participant was then asked if
they had contact with the selected non-normative child in the past year, such
as seeing them in person or talking to them on the phone.  If they had not had
contact in the past year they were not asked any more questions regarding the
selected non-normative child.
	
	Participants who had contact with the selected non-normative child in the past
year were then asked questions regarding details about their child such as
their overall physical health, employment, programs they participate in,
volunteering, activities of daily living, living situation, social activities,
behavior and care the child recieves.
	
The variables in this module have been, for the most part, replicated from
2005. However, the variables regarding the diagnoses (KH125REA-KH126REB) are
new to the 2011 wave, as well as the variable regarding whether the participant
had contact with their child in the past year (KH200).


BRIEF VARIABLE DESCRIPTIONS

    Variable ranges reference dataset/codebook order and are not necessarily 
    alphabetical.
    _____________________________________________________________________

    KNNESTAT-KNNEREL:	Module-Level Status Variables.

    KH125:           	Focus child's roster ID
    
    KH125REA-KH126REB:	Diagnoses of child
    
    KH200:		Interaction with child in past year

    KH001-KH002:     	Health of child
    
    KH003,KH126:     	Employment of the child

    KH006-KH021:     	Daily activities of child

    KH022:           	How many hours does respondent help child

    KH023-KH071:     	Activities of daily living

    KH077-KH083:     	Living situation of child

    KH084-KH089:     	Social participation of child

    KH090-KH103:     	Negative behavior problems of child

    KH105-KH114:     	Mental health care of child

    KH115-KH119:     	Future care for child

knnestat: Was the Nonnormative Extension Interview Module completed by Participant alone, with help, or by proxy?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nneflag, y_nneproxy1, y_nnehelp0, capiproxy, y_proxy, y_ivwloc
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
1 R COMPLETED ALONE 1470 1667 3137
2 R COMPLETED ALONE WITH SOMEONE ELSE IN THE ROOM 135 74 209
3 R RECEIVED A LITTLE HELP 6 6 12
4 R RECEIVED A LOT OF HELP 5 4 9
5 HELPER RESPONDED TO ALL ITEMS 2 1 3
6 MODULE PROXY 0 3 3
7 WHOLE INTERVIEW DONE BY PROXY 7 12 19
Note: For many cases a participant's spouse or other family member was present during the interview. This sometimes resulted in the participant relying on the other person for help in answering some or many of the questions. At the end of each module the interviewer indicated the amount of help the participant received and who provided that help. That assessment is covered by codes 1 through 5. Additionally, a code of 7 indicates that the entire interview was administered to a proxy while a code of 6 indicates that this particular module was answered by a proxy but other modules were answered by the participant.

knnerel: Relationship of Nonnormative Extension Interview Module helper or proxy to Participant.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: KNNESTAT, y_nneproxy1, y_nnehelp0, y_nnehelp1, y_nnehelp2_hfn, y_nnehelp3, y_h1fn-y_h4fn, y_pfn, prxyfnam, y_p1fn-y_p5fn, y_prel, prxyrel, y_p1rel-y_p5rel
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 0 3 3
-2 1605 1741 3346
0 SPOUSE 17 9 26
2 BROTHER 0 2 2
8 DAUGHTER 1 5 6
26 GRANDDAUGHTER 0 1 1
43 SISTER 1 1 2
45 SISTER-IN-LAW 0 1 1
48 SON 1 3 4
54 OTHER 0 1 1
Note: If this module was administered via proxy or if the participant received help answering the questions in this module then the interviewer recorded the relationship of the proxy/helper to the participant. Although most participants relied on only one helper or proxy for the interview, some had more than one. Thus the value of the relationship code may vary across the modules.

kh125: Roster ID of the child about whom the questions in extension module are being asked.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nnID
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1553 1649 3202
101 28 49 77
102 16 35 51
103 14 17 31
104 8 11 19
105 2 3 5
106 1 2 3
107 1 0 1
108 2 1 3

kh125rea: Has the selected non-normative child ever been diagnosed with mental retardation or cognitive disability?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 3 2 5
1 YES 5 6 11
2 NO 34 44 78

kh125reb: Has the selected non-normative child ever been diagnosed with Down Syndrome?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 2 1 3
1 YES 0 1 1
2 NO 40 50 90

kh125rec: Has the selected non-normative child ever been diagnosed with Autism?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 3 1 4
1 YES 0 2 2
2 NO 39 49 88

kh125red: Has the selected non-normative child ever been diagnosed with Asperger's?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 2 2 4
2 NO 40 50 90

kh125ree: Has the selected non-normative child ever been diagnosed with Pervasive Developmental Disorder (PDD)?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 3 2 5
1 YES 0 2 2
2 NO 39 48 87

kh125ref: Has the selected non-normative child ever been diagnosed with Rett's Syndrome?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_6
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 2 1 3
2 NO 40 51 91

kh125reg: Has the selected non-normative child ever been diagnosed with Epilepsy or seizure disorder?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_7
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 2 1 3
1 YES 2 7 9
2 NO 38 44 82

kh125reh: Has the selected non-normative child ever been diagnosed with Cerebral Palsy (CP)?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_8
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 1 1 2
1 YES 2 1 3
2 NO 39 50 89

kh125rei: Has the selected non-normative child ever been diagnosed with Muscular Dystrophy?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_9
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 1 1 2
2 NO 41 51 92

kh125rej: Has the selected non-normative child ever been diagnosed with traumatic brain injury (TBI)?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_10
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 1 1 2
1 YES 1 4 5
2 NO 40 47 87

kh125rek: Has the selected non-normative child ever been diagnosed with Attention Deficit Disorder or Attention Deficit Hyperactivity Disorder (ADD/ADHD)?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_11
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 2 1 3
1 YES 10 10 20
2 NO 30 41 71

kh125rel: Has the selected non-normative child ever been diagnosed with a learning disability, such as Dyslexia?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_12
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 2 1 3
1 YES 3 7 10
2 NO 37 44 81

kh125rem: Has the selected non-normative child ever been diagnosed with Obsessive Compulsive Disorder (OCD)?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_13
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 4 2 6
1 YES 3 5 8
2 NO 35 45 80

kh125ren: Has the selected non-normative child ever been diagnosed with an anxiety disorder?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_14
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 6 4 10
1 YES 17 19 36
2 NO 19 29 48

kh125reo: Has the selected non-normative child ever been diagnosed with Depression?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_15
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 7 4 11
1 YES 21 30 51
2 NO 14 18 32

kh125rep: Has the selected non-normative child ever been diagnosed with Bipolar Disorder, also known as manic depression?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_16
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 4 2 6
1 YES 28 33 61
2 NO 10 17 27

kh125req: Has the selected non-normative child ever been diagnosed with Schizophrenia or Schizoaffective Disorder?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_17
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 5 1 6
1 YES 5 7 12
2 NO 32 44 76

kh125rer: Has the selected non-normative child ever been diagnosed with a personality disorder?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_18
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 6 4 10
1 YES 7 3 10
2 NO 29 45 74

kh125res: Has the selected non-normative child ever been diagnosed with alcoholism?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nne04_19
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1583 1714 3297
-1 DON'T KNOW 3 2 5
1 YES 7 10 17
2 NO 32 40 72

kh126rea: Has the selected non-normative child ever been diagnosed with fragile X syndrome?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne07
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1543 1646 3189
-1 DON'T KNOW 16 17 33
1 YES 0 1 1
2 NO 66 103 169

kh126reb: Has the selected non-normative child ever been tested for fragile X syndrome?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne08
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1543 1647 3190
-1 DON'T KNOW 31 35 66
1 YES 2 2 4
2 NO 49 83 132

kh200: Has Participant seen the selected non-normative child face-to-face or talked over the telephone in the past year?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_D413
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 2 1 3
-2 1547 1657 3204
1 YES 68 107 175
2 NO 8 2 10
Note: This was not asked before version 18. If the participant reported not having seen or spoken to their selected non-normative child in the past year they were not asked any more questions in this module.

kh001: How would you rate the health of the selected non-normative child?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H080
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1553 1649 3202
1 EXCELLENT 16 17 33
2 GOOD 34 54 88
3 FAIR 13 21 34
4 POOR 7 21 28
5 VERY POOR 2 5 7

kh002: How is the health of the selected non-normative child compared to 5 years ago?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H081
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1553 1649 3202
-1 DON'T KNOW 0 1 1
1 BETTER 20 21 41
2 ABOUT THE SAME 32 60 92
3 WORSE 20 36 56

kh003: Does the selected non-normative child have a job without special supports?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H082
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 1 1 2
-3 REFUSED 0 1 1
-2 1553 1649 3202
-1 DON'T KNOW 1 0 1
1 YES 33 47 80
2 NO 37 69 106

kh126: How many hours a week does the selected non-normative child work at the job without special supports?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H083
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 0 1 1
-2 1592 1719 3311
-1 DON'T KNOW 2 1 3
0 1 0 1
4 0 1 1
5 0 1 1
10 1 2 3
15 1 0 1
20 1 3 4
24 0 1 1
25 1 0 1
30 1 0 1
32 2 3 5
35 1 1 2
36 3 0 3
37 1 0 1
40 14 28 42
46 1 0 1
48 0 1 1
50 1 0 1
60 2 4 6
80 0 1 1

kh006: Does the selected non-normative child participate in a supported or transitional employment program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H084
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 1 1 2
-3 REFUSED 0 1 1
-2 1553 1649 3202
-1 DON'T KNOW 5 1 6
1 YES 9 15 24
2 NO 57 100 157

kh007: How many hours per week does the selected non-normative child participate in a supported or transitional employment program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H085
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1616 1752 3368
-1 DON'T KNOW 1 2 3
1 0 2 2
2 1 1 2
3 1 1 2
4 1 0 1
10 2 0 2
15 1 1 2
20 0 1 1
25 1 1 2
28 0 1 1
30 0 3 3
32 0 1 1
40 1 1 2

kh008: Does the selected non-normative child attend a sheltered workshop?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H086
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 0 1 1
-2 1589 1720 3309
-1 DON'T KNOW 1 0 1
1 YES 7 7 14
2 NO 28 39 67
Note: If the participant reported in 2004 that the selected non-normative child was diagnosed with mental illness, they were not asked questions regarding their child's participation in sheltered workshops or day activity programs. Such cases have been assigned a value of -2 on KH008-KH011.

kh009: How many hours per week does the selected non-normative child attend a sheltered workshop?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H087
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1618 1760 3378
4 1 1 2
8 0 1 1
10 0 1 1
18 1 0 1
20 1 0 1
21 0 1 1
25 1 0 1
28 0 1 1
30 1 1 2
32 0 1 1
35 2 0 2
Note: If the participant reported in 2004 that the selected non-normative child was diagnosed with mental illness, they were not asked questions regarding their child's participation in sheltered workshops or day activity programs. Such cases have been assigned a value of -2 on KH008-KH011.

kh010: Does the selected non-normative child attend a day activity program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H088
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 0 1 1
-2 1589 1720 3309
-1 DON'T KNOW 2 1 3
1 YES 7 4 11
2 NO 27 41 68
Note: If the participant reported in 2004 that the selected non-normative child was diagnosed with mental illness, they were not asked questions regarding their child's participation in sheltered workshops or day activity programs. Such cases have been assigned a value of -2 on KH008-KH011.

kh011: How many hours per week does the selected non-normative child attend a day activity program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H089
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1618 1763 3381
-1 DON'T KNOW 2 0 2
7 0 1 1
8 0 1 1
16 1 0 1
20 1 0 1
26 1 0 1
30 0 1 1
32 0 1 1
35 2 0 2
Note: If the participant reported in 2004 that the selected non-normative child was diagnosed with mental illness, they were not asked questions regarding their child's participation in sheltered workshops or day activity programs. Such cases have been assigned a value of -2 on KH008-KH011.

kh012: Does the selected non-normative child go to a Department of Vocational Rehabilitation, day treatment or clubhouse program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H090
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 8 10 18
-3 REFUSED 1 1 2
-2 1553 1649 3202
-1 DON'T KNOW 2 2 4
1 YES 3 4 7
2 NO 58 101 159
Note: This was supposed to be asked of all children with a developmental disability but those before version 23 were not asked.

kh013: Which of the three programs - a Department of Vocational Rehabilitation, day treatment program, or clubhouse program - does the selected non-normative child attend?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H090_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1622 1763 3385
-1 DON'T KNOW 1 1 2
1 DVR 2 2 4
3 CLUBHOUSE PROGRAM 0 1 1

kh014: Is that a DVR, day treatment program or clubhouse program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H090_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1625 1767 3392

kh015: Is that a DVR, day treatment program or clubhouse program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H090_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1625 1767 3392

kh016: How many hours per week does the selected non-normative child go to a Department of Vocational Rehabilitation program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H091
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1623 1765 3388
-1 DON'T KNOW 1 1 2
2 1 1 2

kh017: How many hours per week does the selected non-normative child go to a day treatment program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H092
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1625 1767 3392

kh018: How many hours per week does the selected non-normative child go to a clubhouse program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H093
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1625 1766 3391
8 0 1 1

kh019: Is the selected non-normative child involved in any volunteer activities?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H094
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 1 2
-2 1553 1649 3202
-1 DON'T KNOW 5 4 9
1 YES 13 23 36
2 NO 53 90 143

kh020: How many hours per week does the selected non-normative child participate in volunteer activities?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H095
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1612 1744 3356
-1 DON'T KNOW 4 3 7
0 1 0 1
1 1 1 2
2 3 4 7
3 1 2 3
4 1 4 5
5 1 3 4
7 0 1 1
8 1 0 1
10 0 2 2
12 0 1 1
24 0 2 2

kh021: Where does the selected non-normative child spend most of their day?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H096
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 1 2
-2 1579 1692 3271
-1 DON'T KNOW 4 5 9
1 AT HOME 24 44 68
2 OUTSIDE OF HIS/HER HOME 17 25 42
Note: This is only asked of children who did not report participating in any activities or who are not flagged with a mental illness.

kh022: Not including social or entertainment activities or watching TV, how many hours in a typical week do you help your selected non-normative child in care related activities, such as getting dressed, grooming, shopping, transportation, chores or other activities?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H099a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 4 3 7
0 52 84 136
1 - 35 12 23 35
40 - 168 3 5 8

kh023: How much help does the selected non-normative child need with grooming?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H099b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 3 2 5
1 NONE 48 88 136
2 A LITTLE 7 5 12
3 SOME 7 12 19
4 A LOT 6 8 14

kh029: How much help does the selected non-normative child need with cooking and cleaning?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H100b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 5 5 10
1 NONE 43 81 124
2 A LITTLE 8 6 14
3 SOME 4 9 13
4 A LOT 11 14 25

kh035: How much help does the selected non-normative child need with getting up and going in the morning?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H101
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 3 5 8
1 NONE 47 80 127
2 A LITTLE 7 12 19
3 SOME 7 7 14
4 A LOT 7 11 18

kh041: How much help does the selected non-normative child need with traveling to places s/he needs to go?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H103
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 3 4 7
1 NONE 36 70 106
2 A LITTLE 9 12 21
3 SOME 7 10 17
4 A LOT 16 19 35

kh047: How much help does the selected non-normative child need with grocery shopping?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H105A
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 3 8 11
1 NONE 40 75 115
2 A LITTLE 8 11 19
3 SOME 7 10 17
4 A LOT 13 11 24

kh053: How much help does the selected non-normative child need with shopping for personal items?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H106A
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1557 1660 3217
-1 DON'T KNOW 0 1 1
1 NONE 43 74 117
2 A LITTLE 9 11 20
3 SOME 3 5 8
4 A LOT 13 16 29

kh059: How much help does the selected non-normative child need with doing household chores, such as dishes or cleaning?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H107
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 4 6 10
1 NONE 44 67 111
2 A LITTLE 8 15 23
3 SOME 5 12 17
4 A LOT 10 15 25

kh065: How much help does the selected non-normative child need with taking medications?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H109
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 4 4 8
1 NONE 40 75 115
2 A LITTLE 9 11 20
3 SOME 3 8 11
4 A LOT 11 11 22
7 NO MEDICATIONS 4 6 10

kh071: How much help does the selected non-normative child need with managing his/her money?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H111
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 3 5 8
1 NONE 34 58 92
2 A LITTLE 4 11 15
3 SOME 9 13 22
4 A LOT 21 28 49

kh077: Where does the selected non-normative child currently live?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H113A, y_H113B
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 1 1 2
-3 REFUSED 1 2 3
-2 1553 1649 3202
-1 DON'T KNOW 0 4 4
0 WITH RESPONDENT 12 22 34
1 GROUP LIVING 9 8 17
2 INDEPENDENT LIVING 41 67 108
3 FOSTER HOME 0 1 1
4 INSTITUTION 2 1 3
5 JAIL/PRISON 0 3 3
6 HOMELESS 1 0 1
7 OTHER FAMILY MEMBER 4 8 12
9 OTHER 1 1 2

kh078: Has the selected non-normative child lived with the participant in the past six months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H113C
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 1 0 1
-3 REFUSED 1 2 3
-2 1565 1671 3236
1 YES 8 10 18
2 NO 50 84 134

kh079: What level of supervision does the selected non-normative child have at his/her place of residence?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H114
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2512 5248
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 1 0 1
-2 1615 1758 3373
1 100% SUPERVISION BY STAFF 5 7 12
2 STAFF PRESENT SOME OF THE TIME 3 0 3
3 NO STAFF ARE PRESENT 1 0 1

kh080: How long does it take for the participant to drive to the residence of the selected non-normative child?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H115
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 1 0 1
-3 REFUSED 1 3 4
-2 1565 1671 3236
-1 DON'T KNOW 3 4 7
1 WITHIN 5 MINS 5 14 19
2 WITHIN 1/2 HOUR 19 37 56
3 WITHIN 1 HOUR 6 12 18
4 WITHIN 1/2 DAY 7 8 15
5 FURTHER THAN 1/2 DAY 18 18 36

kh081: How satisfied is the participant with the living situation of the selected non-normative child?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H116
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 1 0 1
-3 REFUSED 1 2 3
-2 1565 1671 3236
-1 DON'T KNOW 1 0 1
1 NOT AT ALL SATISFIED 8 13 21
2 SOMEWHAT SATISFIED 17 26 43
3 VERY SATISFIED 32 55 87

kh082: How satisfied are you with having the selected non-normative child living with you?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H117
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 0 1 1
-2 1613 1745 3358
-1 DON'T KNOW 1 0 1
1 NOT AT ALL SATISFIED 1 3 4
2 SOMEWHAT SATISFIED 0 4 4
3 VERY SATISFIED 10 14 24

kh083: Is the selected non-normative child on a waiting list for housing?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H118
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 0 1 1
1 YES 4 6 10
2 NO 67 108 175

kh084: How many times per year does the selected non-normative child socialize with relatives?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H119
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 4 5
-2 1553 1650 3203
-1 DON'T KNOW 10 9 19
0 - 4 14 20 34
5 - 12 17 22 39
15 - 52 17 35 52
60 - 365 13 27 40

kh085: How many times per year does the selected non-normative child socialize with friends?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H120
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 13 21 34
0 7 17 24
2 0 1 1
8 0 1 1
12 1 5 6
20 0 1 1
24 2 2 4
48 1 2 3
52 11 12 23
96 0 3 3
99 1 0 1
104 4 18 22
156 2 6 8
208 6 5 11
260 2 3 5
312 1 0 1
364 0 2 2
365 20 16 36

kh086: How many times per year does the selected non-normative child participate in recreational activities?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H121
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 14 13 27
0 21 40 61
1 2 0 2
2 0 4 4
4 1 1 2
5 0 1 1
6 1 1 2
12 4 12 16
24 3 4 7
36 0 2 2
52 17 18 35
104 3 10 13
156 3 2 5
208 1 0 1
260 0 2 2
364 0 2 2
365 1 3 4

kh087: How many times per year does the selected non-normative child work on a hobby?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H122
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 4 5
-2 1553 1649 3202
-1 DON'T KNOW 14 19 33
0 18 37 55
6 1 0 1
12 3 0 3
20 0 2 2
24 2 2 4
52 9 5 14
72 0 1 1
104 3 5 8
156 3 3 6
208 0 1 1
260 1 2 3
364 0 2 2
365 17 35 52

kh088: How many times per year does the selected non-normative child walk, play sports, or get some kind of physical exercise?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H123
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 14 17 31
0 10 24 34
1 1 0 1
2 1 0 1
12 2 2 4
24 1 1 2
36 1 0 1
52 4 9 13
104 8 9 17
156 6 7 13
208 3 0 3
240 0 1 1
260 1 7 8
364 0 2 2
365 19 36 55

kh089: How many times per year does the selected non-normative child attend services or an event at a church or synagogue, or participate in other religious ceremonies?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H124
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 12 12 24
0 24 50 74
1 1 2 3
2 4 5 9
3 1 3 4
4 1 1 2
5 1 2 3
10 1 2 3
12 8 6 14
24 4 5 9
30 0 1 1
36 0 1 1
48 0 2 2
52 13 18 31
104 1 4 5
260 0 1 1

kh090: Has the selected non-normative child hurt him/herself in last 6 months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H127
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 4 5 9
1 YES 4 3 7
2 NO 63 107 170

kh091: Has the selected non-normative child destroyed, deliberately broken, or defaced any property in last 6 months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H129
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 7 5 12
1 YES 7 7 14
2 NO 57 103 160

kh092: Has the selected non-normative child had any disruptive behaviors that interfered with the activity of others in the last 6 months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H130
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 6 5 11
1 YES 15 19 34
2 NO 50 91 141

kh093: Has the selected non-normative child had any repetitive behaviors in the last 6 months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H131
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 6 5 11
1 YES 13 20 33
2 NO 52 90 142

kh094: Has the selected non-normative child had any socially offensive behaviors in the last 6 months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H132
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 4 6 10
1 YES 13 32 45
2 NO 54 77 131

kh095: Has the selected non-normative child been withdrawn in last 6 months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H133
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 4 6 10
1 YES 29 43 72
2 NO 38 66 104

kh096: Has the selected non-normative child been uncooperative in last 6 months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H134
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 4 6 10
1 YES 16 20 36
2 NO 51 89 140

kh097: Has the selected non-normative child hurt people or animals in last 6 months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H128
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 5 4 9
1 YES 5 6 11
2 NO 61 105 166

kh098: Has the selected non-normative child hurt the participant or someone else in the household in the last 6 months?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H139
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1620 1761 3381
1 YES 3 2 5
2 NO 2 4 6

kh099: How often has the selected non-normative child hurt the participant or someone else in the household?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H140
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1622 1765 3387
-1 DON'T KNOW 1 0 1
1 ONCE 1 0 1
2 ON A COUPLE OF OCCASIONS 0 1 1
4 ON MORE THAN SEVERAL OCCASSIONS 1 1 2

kh100: Has the selected non-normative child threatened physical violence?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H137
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1556 1651 3207
-1 DON'T KNOW 1 0 1
1 YES 1 0 1
2 NO 66 113 179

kh101: How often has the selected non-normative child threatened physical violence?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H138
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1624 1767 3391
4 ON MORE THAN SEVERAL OCCASSIONS 1 0 1

kh102: Has the selected non-normative child been verbally abusive to you or someone in your household?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H135
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 1 0 1
1 YES 11 15 26
2 NO 59 100 159

kh103: How often has the selected non-normative child been verbally abusive?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H136
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1614 1752 3366
-1 DON'T KNOW 1 0 1
1 ONCE 2 1 3
2 ON A COUPLE OF OCCASIONS 3 8 11
3 ON SEVERAL OCCASSIONS 2 5 7
4 ON MORE THAN SEVERAL OCCASSIONS 3 1 4

kh105: How old was the selected non-normative child when s/he first started having mental health problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H142
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 2 3
-2 1597 1731 3328
-1 DON'T KNOW 3 4 7
0 - 14 8 4 12
15 - 18 5 6 11
19 - 25 5 8 13
26 - 33 5 5 10
35 - 45 1 7 8

kh106: What age category was the selected non-normative child in when s/he first started having mental health problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H142b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 2 3
-2 1621 1761 3382
-1 DON'T KNOW 2 1 3
2 DURING YOUNG ADULTHOOD 1 2 3
4 AFTER AGE 25 0 1 1

kh107: How old was the selected non-normative child when s/he first received a mental health diagnosis?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H143
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 2 3
-2 1597 1731 3328
-1 DON'T KNOW 4 7 11
7 - 18 6 4 10
19 - 25 6 7 13
26 - 33 6 4 10
34 - 41 4 6 10
42 - 48 1 6 7

kh108: What age category was the selected non-normative child in when s/he first received a mental health diagnosis?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H143b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 2 3
-2 1620 1758 3378
-1 DON'T KNOW 1 0 1
2 DURING YOUNG ADULTHOOD 2 3 5
4 AFTER AGE 25 1 4 5

kh109: Has the selected non-normative child ever been admitted for an overnight stay in a hospital for mental health problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H144
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 2 3
-2 1597 1731 3328
-1 DON'T KNOW 2 0 2
1 YES 13 21 34
2 NO 12 13 25

kh112: How many times has the selected non-normative child been hospitalized for mental health or emotional problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H146
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1612 1746 3358
-1 DON'T KNOW 2 2 4
1 5 13 18
2 2 1 3
3 2 4 6
4 1 0 1
5 0 1 1
30 1 0 1
Note: In 2004 it was asked of all children with mental health conditions

kh113: During the past six months, has the selected non-normative child received services from a mental health community support program?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H168
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1553 1649 3202
-1 DON'T KNOW 10 9 19
1 YES 9 17 26
2 NO 52 89 141
Note: In 2004 it was asked of children with mental health conditions

kh114: Where does the selected non-normative child usually go for mental health care?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H169
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 3 4
-2 1562 1666 3228
-1 DON'T KNOW 15 12 27
1 NOWHERE 8 16 24
2 FAMILY DOCTOR 6 10 16
3 V.A. HOSPITAL 1 3 4
4 OUTPATIENT MENTAL HEALTH CLINIC 4 2 6
5 PRIVATE PSYCHIATRIST 3 17 20
8 OTHER 15 26 41
97 DOESN'T NEED TREATMENT 10 12 22

kh115: When you are no longer alive or able to care for or do what you do for the selected non-normative child, is there a family member who will be most involved with the child's care?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H170
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-3 REFUSED 1 4 5
-2 1553 1649 3202
-1 DON'T KNOW 8 8 16
1 YES 44 72 116
2 UNCERTAIN, BUT ABLE TO GUESS 4 2 6
3 NO, CHILD NEEDS NO HELP 5 13 18
4 NO ONE INVOLVED W/ CHILD 7 12 19
5 NO, R DOES NOT CARE FOR CHILD 3 7 10

kh116rec: Who will be involved in the future care of the selected non-normative child?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H171
Revisions: Updated June 2017 replaces kh116     
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1577 1693 3270
-1 DON'T KNOW 0 1 1
1 HUSBAND 2 4 6
6 BROTHER 11 23 34
7 FATHER 0 4 4
17 STEP-FATHER 0 1 1
19 UNCLE 1 1 2
31 WIFE 0 2 2
32 FORMER WIFE 0 1 1
36 SISTER 10 17 27
37 MOTHER 17 1 18
49 AUNT 1 1 2
51 FEMALE FRIEND 0 1 1
59 SPOUSE, GENDER UNKNOWN 3 12 15
65 ALL CHILDREN 0 1 1
74 CHILD, GENDER UNKNOWN 2 2 4
106 MULTIPLE CAREGIVERS, FAMILY 0 2 2
108 MEDICAL PROFESSIONALS 1 0 1
Note: The relationship listed on this variable refers to the relationship to the selected non-normative child, not the relationship to the participant.

kh117rec: Who will be second most involved in the care of the selected non-normative child after the person most involved is no longer able to care for the child?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H172
Revisions: Updated June 2017 replaces kh117     
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 1 0 1
-2 1608 1766 3374
-1 DON'T KNOW 2 0 2
6 BROTHER 3 0 3
7 FATHER 0 1 1
19 UNCLE 1 0 1
36 SISTER 7 0 7
59 SPOUSE, GENDER UNKNOWN 1 0 1
91 FRIEND, GENDER UNKNOWN 1 0 1
161 STATE GOVERNMENT AGENCY OR PROGRAM 1 0 1
Note: If the parent or grandparent of the selected non-normative child was named as being involved in the future care of the child, a follow-up question was asked regarding the future care of the child if said parent or grandparent were to die or become unable to care for the child.
Note: The relationship listed on this variable refers to the relationship to the selected non-normative child, not the relationship to the participant.

kh118: Have you spoken with the person who will take care of the selected non-normative child about taking care of the child?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H173
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-4 NOT ASCERTAINED 0 1 1
-2 1579 1694 3273
1 YES 21 39 60
2 NO 25 33 58

kh119: Has the person named to take care of the selected non-normative child agreed to take care of the child?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H174
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2736 2510 5246
-30 NOT PART OF MOSAQ 72 63 135
-5 PARTIAL INTERVIEW 4 1 5
-2 1604 1728 3332
-1 DON'T KNOW 2 0 2
1 YES 19 38 57
2 NO 0 1 1

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