WLS Codebooks

Note: Codebooks contain frequency data from the private data release. For some variables, these differ from the frequencies in the public release. Variables that differ between the public and private versions include "(not available on public release)" as part of the variable description, or a note indicating the difference between the public and private versions.

Mail: Non-Normative Extension Mailback

Sibling Mail: Non-Normative Extension 

OVERVIEW

Participants with non-normative children, those diagnosed with a developmental
disability or a serious and long-term mental illness, were identified during
the Non-Normative Screener module of the CAPI interview. In addition, existing
records of non-normative children were checked from prior collection waves.

For those participants that were identified as having a non-normative child, an
additional series of questions was administered by CAPI (the Non-Normative
Extension Interview). Self-administered questionnaires (SAQs) were also given
to these participants to mail back, which is what this section (previously
named "dhnonnorm") addresses.

The 2011 SAQ and analysis variables are almost identical to those from the
previous collection wave. There is an additional SAQ item (PH121) regarding
positive or negative experiences related to the care of the participant's
child. There is also a new section including analysis variables about
medications taken by the participant's child (PH200 - PH218E).


BRIEF VARIABLE DESCRIPTIONS

    Variable ranges reference dataset/codebook order and are not necessarily 
    alphabetical.
    _____________________________________________________________________

    PH001-PH009:    	Child's General Health

    PH010-PH390C:       Child's Serious Health Problems
  
    PH040-PH061:    	Services Child Receives or Needs

    PH062-PH070:    	What Child Does to Help Participant

    PH071-PH080:    	True/False Questions Regarding Participant's 
    			Feelings Towards their Child

    PH081-PH110:    	Percieved Burden Placed on Participant Due to 
    			Their Child

    PH111-PH121:    	Strengths and Skills Participant has Developed 
    			Due to their Child

    PH200:          	Medication Inventory Screener

    PH200A:         	Number of Medications Taken by Participant's
    			Child
    
    PH201N-PH218E:	Name, Purpose, and Effectiveness of Each 
    			Medication Taken by Participant's Child

ph001: What is your child's approximate height, feet component?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q1_hf
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 7 8
-1 DON'T KNOW 0 2 2
4 4 4 8
5 46 73 119
6 17 14 31

ph002: What is your child's approximate height, inches component?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q1_hi
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 8 14 22
-1 DON'T KNOW 0 2 2
0 2 1 3
1 5 3 8
2 5 7 12
3 3 3 6
3.50 0 1 1
4 8 7 15
5 3 5 8
6 3 12 15
7 5 8 13
8 8 7 15
9 3 8 11
10 9 12 21
10.50 0 1 1
11 6 9 15

ph003: What is your child's approximate weight in pounds?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q1_w
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 5 6
-1 DON'T KNOW 0 4 4
105 - 140 19 17 36
141 - 160 13 20 33
165 - 190 15 23 38
195 - 240 13 18 31
245 - 400 7 13 20

ph004: Does your child currently smoke on a regular basis?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 0 1
-1 DON'T KNOW 0 1 1
1 YES 17 29 46
2 NO 50 70 120

ph005: How many years has your child been smoking?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q2, y_q2a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 1 2
-4 NOT ASCERTAINED 0 1 1
-2 50 70 120
-1 DON'T KNOW 1 0 1
4 1 0 1
5 1 1 2
8 1 0 1
9 0 1 1
10 1 0 1
14 0 1 1
15 3 1 4
20 5 8 13
22 0 1 1
23 0 1 1
25 1 1 2
26 2 3 5
27 0 1 1
30 1 7 8
32 0 1 1
40 0 1 1

ph006: How would you rate your child's overall health at the present time?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 0 1
1 EXCELLENT 6 10 16
2 VERY GOOD 21 23 44
3 GOOD 22 28 50
4 FAIR 13 24 37
5 POOR 5 15 20

ph007: Does your child have trouble walking one block because of a health problem?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 1 2
-4 NOT ASCERTAINED 0 1 1
-1 DON'T KNOW 0 2 2
1 YES 11 18 29
2 NO 56 78 134

ph008: Does your child have trouble walking uphill or climbing a few flights of stairs because of a health problem?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 2 3
-1 DON'T KNOW 0 2 2
1 YES 16 28 44
2 NO 51 68 119

ph009: Does your child exercise on a regular basis?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q6
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 2 2 4
-1 DON'T KNOW 1 1 2
1 YES 26 35 61
2 NO 39 62 101
Note: On the self-administered questionnaire, a "regular basis" was defined as "weekly or more often and does not include walking just to get somewhere; must be for exercise".

ph010: Has your child been diagnosed with allergies?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 17 28 45
2 NO 51 70 121
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph011: Has your child been diagnosed with anemia?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 1 4 5
2 NO 67 94 161
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph012: Has your child been diagnosed with arthritis?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 2 20 22
2 NO 66 78 144
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph013: Has your child been diagnosed with asthma?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_d
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 4 12 16
2 NO 64 86 150
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph014: Has your child been diagnosed with serious back problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_e
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 10 20 30
2 NO 58 78 136
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph015: Has your child been diagnosed with cancer?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_f
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 2 2 4
2 NO 66 96 162
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph016: Has your child been diagnosed with colitis?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_g
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 1 0 1
2 NO 67 98 165
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph017: Has your child been diagnosed with persistent dental problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_h
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 11 15 26
2 NO 57 83 140
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph018: Has your child been diagnosed with diabetes?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_i
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 3 16 19
2 NO 65 82 147
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph019: Has your child been diagnosed with emphysema or chronic bronchitis?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_j
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 1 4 5
2 NO 67 94 161
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph020: Has your child been diagnosed with persistent foot problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_k
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 1 2 3
1 YES 5 13 18
2 NO 62 85 147
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph021: Has your child been diagnosed with hearing problems or hearing loss?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_l
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 4 5 9
2 NO 64 93 157
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph022: Has your child been diagnosed with a heart attack?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_m
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 0 1 1
2 NO 68 97 165
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph023: Has your child been diagnosed with heart disease?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_n
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 0 5 5
2 NO 68 93 161
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph024: Has your child been diagnosed with high blood pressure or hypertension?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_o
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 7 12 19
2 NO 61 86 147
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph025: Has your child been diagnosed with high cholesterol?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 6 19 25
2 NO 62 79 141
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph026: Has your child been diagnosed with kidney/bladder problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_q
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 1 1
1 YES 4 9 13
2 NO 64 90 154
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph027: Has your child been diagnosed with chronic liver problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_r
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 0 1 1
2 NO 68 97 165
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph028: Has your child been diagnosed with memory problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_s
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 6 11 17
2 NO 62 87 149
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph029: Has your child been diagnosed with multiple sclerosis?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_t
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 2 3 5
2 NO 66 95 161
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph030: Has your child been diagnosed with osteoporsis or brittle bones?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_u
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 1 2 3
1 YES 1 3 4
2 NO 66 95 161
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph031: Has your child been diagnosed with Parkinson's disease?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_v
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 0 2 2
2 NO 68 96 164
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph032: Has your child been diagnosed with recurring stomach trouble, indigestion, or diarrhea?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_w
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 10 17 27
2 NO 58 81 139
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph033: Has your child been diagnosed with shortness of breath?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_x
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 4 10 14
2 NO 64 88 152
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph034: Has your child been diagnosed with skin problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_y
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 5 14 19
2 NO 63 84 147
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph035: Has your child been diagnosed with a stroke?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_z
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 1 1 2
2 NO 67 97 164
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph036: Has your child been diagnosed with thyroid problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_aa
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 1 2 3
1 YES 1 9 10
2 NO 66 89 155
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph037: Has your child been diagnosed with an ulcer?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_bb
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 2 6 8
2 NO 66 92 158
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph038: Has your child been diagnosed with uncorrected visual impairment?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_cc
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 5 11 16
2 NO 63 87 150
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph039: Has your child been diagnosed with other health problems?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_dd
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-1 DON'T KNOW 0 2 2
1 YES 13 30 43
2 NO 55 68 123
Note: This variable stems from a check box on the mail survey prefaced by the following statement: "Below is a list of serious health problems. For each one, please check 'yes' if your son/daughter has ever been told by a doctor that he/she has this health problem". Thus, if the participant did not check the box, it was assumed that their son/daughter did not have the specified health problem (such cases were assigned a value of 2, signifying "no").

ph390: First reported other health problem Participant's child has been diagnosed with? These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q7_dd, c_y_q7_dd
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 1 1 2
-2 55 70 125
237 Neoplasm of uncertain behavior of endocrine glands and nervous system 1 0 1
296 Affective psychoses 1 5 6
300 Neurotic disorder 0 1 1
303 Alcohol dependence syndrome 0 1 1
306 Physiological malfunction arising from mental factors 1 2 3
308 Acute reaction to stress 0 1 1
311 Depressive disorder, not elsewhere classified 0 1 1
315 Specific delays in development 0 1 1
319 Unspecified mental retardation 1 1 2
343 Infantile cerebral palsy 3 0 3
345 Epilepsy 2 1 3
356 Hereditary and idiopathic peripheral neuropathy 0 1 1
379 Other eye disorders 0 1 1
457 Noninfectious disorders of lymphatic channels 1 0 1
530 Diseases of esophagus 0 1 1
553 Other hernia of abdominal cavity without mention of obstruction or gangrene 0 1 1
596 Other disorders of bladder 1 0 1
719 Other and unspecified disorders of joint 0 2 2
729 Other disorders of soft tissues 0 2 2
758 Chromosomal anomalies 0 2 2
759 Other and unspecified congenital anomalies 0 1 1
760 Fetus or newborn affected by maternal conditions which may be unrelated to present pregnancy 0 1 1
784 Symptoms involving head and neck 1 2 3
7080 Incision and excision of joint structures 0 1 1
Note: Participants may have listed additional diagnoses that can be made available upon request.

ph390c: First reported other health problem Participant's child has been diagnosed with? These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: ph390
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 1 1 2
-2 55 70 125
20 Neoplasms 1 0 1
50 Mental Disorders 3 13 16
60 Nervous System and Sense Organs 5 3 8
70 Circulatory System 1 0 1
90 Digestive System 0 2 2
100 Genitourinary system 1 0 1
130 Musculoskeletal System and Connective Tissue 0 4 4
140 Congenital Anomalies 0 3 3
150 Conditions in the Perinatal Period 0 1 1
160 Symptoms, Signs, and Ill-Defined Conditions 1 2 3
200 ICD-9 Volume 3 Headings 0 1 1
Note: Participants may have listed additional diagnoses that can be made available upon request.

ph040: Does your child receive case management services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9a_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 16 34 50
-1 DON'T KNOW 2 1 3
1 YES 21 24 45
2 NO 29 41 70
Note: It was specifically noted to the participant that case management services "involve a person who helps to coordinate services, may help find a job, find housing or help with daily living activities".

ph041: Does your child need case management services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9a_ser, y_q9a_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 14 18
-2 21 24 45
-1 DON'T KNOW 2 1 3
1 NEEDED 7 6 13
2 NOT NEEDED 34 55 89
Note: It was specifically noted to the participant that case management services "involve a person who helps to coordinate services, may help find a job, find housing or help with daily living activities".
Note: Only asked if the child does not receive this service.

ph042: Does your child receive recreational or social activities services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9b_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 16 31 47
-1 DON'T KNOW 2 1 3
1 YES 18 18 36
2 NO 32 50 82
Note: It was specifically noted to the participant that recreational or social activities are activities "provided by an organization or agency, such as bowling, dances or other organized activities".

ph043: Does your child need recreational or social activities services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9b_ser, y_q9b_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 6 15 21
-2 18 18 36
-1 DON'T KNOW 3 1 4
1 NEEDED 8 7 15
2 NOT NEEDED 33 59 92
Note: It was specifically noted to the participant that recreational or social activities are activities "provided by an organization or agency, such as bowling, dances or other organized activities".
Note: Only asked if the child does not receive this service.

ph044: Does your child receive transportation services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9c_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 16 32 48
-1 DON'T KNOW 2 1 3
1 YES 20 19 39
2 NO 30 48 78

ph045: Does your child need transportation services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9c_ser, y_q9c_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 5 12 17
-2 20 19 39
-1 DON'T KNOW 2 1 3
1 NEEDED 5 6 11
2 NOT NEEDED 36 62 98
Note: Only asked if the child does not receive this service.

ph046: Does your child receive income support services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9d_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 12 30 42
-1 DON'T KNOW 2 1 3
1 YES 30 38 68
2 NO 24 31 55
Note: It was specifically noted to the participant that income support services are services "such as SSDI (Social Security Disability Insurance) or SSI (Supplemental Security Income)".

ph047: Does your child need income support services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9d_ser, y_q9d_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 12 16
-2 30 38 68
-1 DON'T KNOW 2 1 3
1 NEEDED 3 9 12
2 NOT NEEDED 29 40 69
Note: It was specifically noted to the participant that income support services are services "such as SSDI (Social Security Disability Insurance) or SSI (Supplemental Security Income)".
Note: Only asked if the child does not receive this service.

ph048: Does your child receive medical assistance or medicaid?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9e_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 12 30 42
-1 DON'T KNOW 2 1 3
1 YES 34 36 70
2 NO 20 33 53

ph049: Does your child need medical assistance or medicaid?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9e_ser, y_q9e_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 13 16
-2 34 36 70
-1 DON'T KNOW 2 1 3
1 NEEDED 3 7 10
2 NOT NEEDED 26 43 69
Note: Only asked if the child does not receive this service.

ph050: Does your child receive crisis intervention services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9f_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 19 36 55
-1 DON'T KNOW 2 1 3
1 YES 11 10 21
2 NO 36 53 89
Note: It was specifically noted to the participant that crisis intervention programs include crisis respite services.

ph051: Does your child need crisis intervention services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9f_ser, y_q9f_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 10 21 31
-4 NOT ASCERTAINED 0 1 1
-2 11 10 21
-1 DON'T KNOW 3 1 4
1 NEEDED 1 4 5
2 NOT NEEDED 43 63 106
Note: It was specifically noted to the participant that crisis intervention programs include crisis respite services.
Note: Only asked if the child does not receive this service.

ph052: Does your child receive psychological or psychiatric services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9g_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 12 27 39
-1 DON'T KNOW 2 1 3
1 YES 29 49 78
2 NO 25 23 48
Note: It was specifically noted to the participant that psychological or psychiatric services include services "such as therapy, counseling, medication review, or behavioral consultation".

ph053: Does your child need psychological or psychiatric services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9g_ser, y_q9g_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 7 8 15
-2 29 49 78
-1 DON'T KNOW 2 1 3
1 NEEDED 7 10 17
2 NOT NEEDED 23 32 55
Note: It was specifically noted to the participant that psychological or psychiatric services include services "such as therapy, counseling, medication review, or behavioral consultation".
Note: Only asked if the child does not receive this service.

ph054: Does your child receive physical therapy?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9h_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 19 33 52
-1 DON'T KNOW 2 1 3
1 YES 6 10 16
2 NO 41 56 97
Note: It was specifically noted to the participant that physical therapy "is a specialized service to help with gross motor skills, but not general exercise".

ph055: Does your child need physical therapy?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9h_ser, y_q9h_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 9 13 22
-4 NOT ASCERTAINED 0 1 1
-2 6 10 16
-1 DON'T KNOW 3 1 4
1 NEEDED 1 3 4
2 NOT NEEDED 49 72 121
Note: It was specifically noted to the participant that physical therapy "is a specialized service to help with gross motor skills, but not general exercise".
Note: Only asked if the child does not receive this service.

ph056: Does your child receive occupational therapy?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9i_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 21 34 55
-1 DON'T KNOW 2 1 3
1 YES 7 4 11
2 NO 38 61 99
Note: It was specifically noted to the participant that occupational therapy "is a specialized service to help with small motor exercises, such as writing, using scissors, or self-help skills".

ph057: Does your child need occupational therapy?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9i_ser, y_q9i_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 11 12 23
-2 7 4 11
-1 DON'T KNOW 2 2 4
1 NEEDED 3 2 5
2 NOT NEEDED 45 80 125
Note: It was specifically noted to the participant that occupational therapy "is a specialized service to help with small motor exercises, such as writing, using scissors, or self-help skills".
Note: Only asked if the child does not receive this service.

ph058: Does your child receive speech therapy?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9j_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 20 37 57
-1 DON'T KNOW 2 1 3
1 YES 4 2 6
2 NO 42 60 102

ph059: Does your child need speech therapy?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9j_ser, y_q9j_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 9 13 22
-2 4 2 6
-1 DON'T KNOW 2 1 3
1 NEEDED 3 5 8
2 NOT NEEDED 50 79 129
Note: Only asked if the child does not receive this service.

ph060: Does your child receive respite services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9k_ser
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 21 38 59
-1 DON'T KNOW 2 1 3
1 YES 3 4 7
2 NO 42 57 99

ph061: Does your child need respite services?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q9k_ser, y_q9k_need
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 12 15 27
-2 3 4 7
-1 DON'T KNOW 3 1 4
1 NEEDED 2 2 4
2 NOT NEEDED 48 78 126
Note: Only asked if the child does not receive this service.

ph062: How much does your child help with indoor household tasks?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q10_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 6 12 18
0 NONE 43 63 106
1 A LITTLE 7 11 18
2 SOME 9 9 18
3 A LOT 3 5 8
Note: The survey question this variable was based on was accompanied by the following examples of indoor household tasks: "cleaning, vacuuming, etc."

ph063: How much does your child help you with outdoor household tasks?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q10_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 5 11 16
0 NONE 38 61 99
1 A LITTLE 10 7 17
2 SOME 11 10 21
3 A LOT 4 11 15
Note: The survey question this variable was based on was accompanied by the following examples of outdoor household tasks: "yard work, shoveling snow, etc."

ph064: How much does your child help you by preparing meals?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q10_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 5 10 15
0 NONE 49 70 119
1 A LITTLE 10 12 22
2 SOME 4 6 10
3 A LOT 0 2 2

ph065: How much does your child drive you places you need to go?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q10_d
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 6 9 15
0 NONE 54 75 129
1 A LITTLE 5 2 7
2 SOME 3 8 11
3 A LOT 0 6 6
Note: The survey question this variable was based on was accompanied by the following examples of places you need to go: "to an appointment, shopping, etc."

ph066: How much does your child share household expenses?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q10_e
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 7 10 17
0 NONE 53 73 126
1 A LITTLE 3 9 12
2 SOME 5 5 10
3 A LOT 0 3 3

ph067: How much does your child help you with shopping for food, groceries and other things?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q10_f
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 7 10 17
0 NONE 45 67 112
1 A LITTLE 12 10 22
2 SOME 3 8 11
3 A LOT 1 5 6

ph068: How much does your child help you out when you are sick?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q10_g
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 7 10 17
0 NONE 47 57 104
1 A LITTLE 7 16 23
2 SOME 4 11 15
3 A LOT 3 6 9

ph069: How much does your child listen to your problems and provide advice?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q10_h
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 6 9 15
0 NONE 40 55 95
1 A LITTLE 12 20 32
2 SOME 7 9 16
3 A LOT 3 7 10

ph070: How much does your child provide companionship?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q10_i
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 6 9 15
0 NONE 19 34 53
1 A LITTLE 20 20 40
2 SOME 13 24 37
3 A LOT 10 13 23

ph071: Is the following statement true or false: I worry about what will happen to my son/daughter when I can no longer take care of him/her?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 12 15
0 FALSE 33 53 86
1 TRUE 32 35 67

ph072: Is the following statement true or false: I have accepted the fact that my son/daughter might have to live out his/her life in some special setting?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 10 13
0 FALSE 35 64 99
1 TRUE 30 26 56

ph073: Is the following statement true or false: It bothers me that my son/daughter will always be this way?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 10 13
0 FALSE 29 39 68
1 TRUE 36 51 87

ph074: Is the following statement true or false: My son/daughter doesn't do as much as he/she should be able to do?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_d
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 10 14
-4 NOT ASCERTAINED 0 1 1
-1 DON'T KNOW 1 0 1
0 FALSE 43 52 95
1 TRUE 20 37 57

ph075: Is the following statement true or false: My son/daughter is over-protected?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_e
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 5 11 16
0 FALSE 54 80 134
1 TRUE 9 9 18

ph076: Is the following statement true or false: My son/daughter has too much time on his/her hands?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_f
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 11 15
0 FALSE 43 55 98
1 TRUE 21 34 55

ph077: Is the following statement true or false: I am disappointed that my son/daughter does not lead a normal life?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_g
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 10 13
0 FALSE 30 48 78
1 TRUE 35 42 77

ph078: Is the following statement true or false: Time drags for my son/daughter, especially free time?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_h
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 11 15
-1 DON'T KNOW 0 1 1
0 FALSE 45 64 109
1 TRUE 19 24 43

ph079: Is the following statement true or false: I worry about what will be done with my son/daughter when he/she gets older?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_i
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 11 15
0 FALSE 34 59 93
1 TRUE 30 30 60

ph080: Is the following statement true or false: My son/daughter will always be a problem to us?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q11_j
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 11 15
0 FALSE 41 68 109
1 TRUE 23 21 44

ph081: Extent to which Participant agrees with the following statement: I feel resentful of other relatives who could, but who do not do things for my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 7 8
0 NOT AT ALL 54 81 135
1 SOMEWHAT 12 12 24
2 EXTREMELY 1 0 1

ph082: Extent to which Participant agrees with the following statement: I feel that my son/daughter makes requests which I perceive to be over and above what he/she needs.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 2 8 10
0 NOT AT ALL 51 69 120
1 SOMEWHAT 12 20 32
2 EXTREMELY 3 3 6

ph083: Extent to which Participant agrees with the following statement: Because of my involvement with my son/daughter, I don't have enough time for myself.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 2 8 10
0 NOT AT ALL 59 87 146
1 SOMEWHAT 6 5 11
2 EXTREMELY 1 0 1

ph084: Extent to which Participant agrees with the following statement: I feel stressed between trying to give to my son/daughter as well as to other family responsibilities, job, etc.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_d
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 8 12
0 NOT AT ALL 51 77 128
1 SOMEWHAT 10 13 23
2 EXTREMELY 3 2 5

ph085: Extent to which Participant agrees with the following statement: I feel embarrassed over my son/daughter's behavior.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_e
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 8 11
0 NOT AT ALL 46 58 104
1 SOMEWHAT 17 30 47
2 EXTREMELY 2 4 6

ph086: Extent to which Participant agrees with the following statement: I feel guilty about my interactions with my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_f
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 8 11
0 NOT AT ALL 51 75 126
1 SOMEWHAT 14 16 30
2 EXTREMELY 0 1 1

ph087: Extent to which Participant agrees with the following statement: I feel that I don't do as much for my son/daughter as I could or should.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_g
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 9 12
0 NOT AT ALL 42 71 113
1 SOMEWHAT 22 19 41
2 EXTREMELY 1 1 2

ph088: Extent to which Participant agrees with the following statement: I feel angry about my interactions with my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_h
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 5 8 13
0 NOT AT ALL 56 76 132
1 SOMEWHAT 7 14 21
2 EXTREMELY 0 2 2

ph089: Extent to which Participant agrees with the following statement: I feel that in the past, I haven't done as much for my son/daughter as I could have or should have.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_i
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 9 12
0 NOT AT ALL 38 68 106
1 SOMEWHAT 24 17 41
2 EXTREMELY 3 6 9

ph090: Extent to which Participant agrees with the following statement: I feel nervous or depressed about my interactions with my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_j
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 2 5
0 NOT AT ALL 45 71 116
1 SOMEWHAT 20 25 45
2 EXTREMELY 0 2 2

ph091: Extent to which Participant agrees with the following statement: I feel that my son/daughter currently affects my relationships with other family members and friends in a negative way.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_k
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 2 6
0 NOT AT ALL 51 76 127
1 SOMEWHAT 11 19 30
2 EXTREMELY 2 3 5

ph092: Extent to which Participant agrees with the following statement: I feel resentful about my interactions with my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_l
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 3 7
0 NOT AT ALL 60 84 144
1 SOMEWHAT 4 10 14
2 EXTREMELY 0 3 3

ph093: Extent to which Participant agrees with the following statement: I am afraid of what the future holds for my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_m
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 2 5
0 NOT AT ALL 23 31 54
1 SOMEWHAT 27 54 81
2 EXTREMELY 15 13 28

ph094: Extent to which Participant agrees with the following statement: I feel pleased about my interactions with my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_n
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 3 6
0 NOT AT ALL 14 25 39
1 SOMEWHAT 32 36 68
2 EXTREMELY 19 36 55

ph095: Extent to which Participant agrees with the following statement: It's painful to watch my son/daughter age.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_o
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 4 7
0 NOT AT ALL 38 63 101
1 SOMEWHAT 23 28 51
2 EXTREMELY 4 5 9

ph096: Extent to which Participant agrees with the following statement: I feel useful in my interactions with my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 3 6
0 NOT AT ALL 13 21 34
1 SOMEWHAT 37 43 80
2 EXTREMELY 15 33 48

ph097: Extent to which Participant agrees with the following statement: I feel my son/daughter is dependent.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_q
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 3 7
0 NOT AT ALL 24 42 66
1 SOMEWHAT 22 33 55
2 EXTREMELY 18 22 40

ph098: Extent to which Participant agrees with the following statement: I feel strained in my interactions with my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_r
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 3 6
0 NOT AT ALL 45 71 116
1 SOMEWHAT 18 21 39
2 EXTREMELY 2 5 7

ph099: Extent to which Participant agrees with the following statement: I feel that my health has suffered because of my involvement with my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_s
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 3 6
0 NOT AT ALL 57 81 138
1 SOMEWHAT 7 15 22
2 EXTREMELY 1 1 2

ph100: Extent to which Participant agrees with the following statement: I feel that I am contributing to the well-being of my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_t
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 4 7
0 NOT AT ALL 10 15 25
1 SOMEWHAT 33 46 79
2 EXTREMELY 22 35 57

ph101: Extent to which Participant agrees with the following statement: I feel that the present situation with my son/daughter doesn't allow me as much privacy as I'd like.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_u
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 5 8
0 NOT AT ALL 59 84 143
1 SOMEWHAT 4 11 15
2 EXTREMELY 2 0 2

ph102: Extent to which Participant agrees with the following statement: I feel that my social life has suffered because of my involvement with my son/daughter.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_v
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 4 7
0 NOT AT ALL 53 86 139
1 SOMEWHAT 9 10 19
2 EXTREMELY 3 0 3

ph103: Extent to which Participant agrees with the following statement: I wish that my son/daughter and I had a better relationship.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_w
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 2 6 8
0 NOT AT ALL 32 64 96
1 SOMEWHAT 29 20 49
2 EXTREMELY 5 10 15

ph104: Extent to which Participant agrees with the following statement: I feel that my son/daughter doesn't appreciate what I do for him/her as much as I would like.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_x
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 5 8
0 NOT AT ALL 44 63 107
1 SOMEWHAT 17 25 42
2 EXTREMELY 4 7 11

ph105: Extent to which Participant agrees with the following statement: I feel uncomfortable when I have friends over.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_y
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 6 9
-4 NOT ASCERTAINED 1 0 1
0 NOT AT ALL 57 85 142
1 SOMEWHAT 7 8 15
2 EXTREMELY 0 1 1

ph106: Extent to which Participant agrees with the following statement: I feel that my son/daughter tries to manipulate me.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_z
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 5 4 9
-4 NOT ASCERTAINED 0 1 1
0 NOT AT ALL 46 64 110
1 SOMEWHAT 15 23 38
2 EXTREMELY 2 8 10

ph107: Extent to which Participant agrees with the following statement: I feel that my son/daughter seems to expect me to take care of him/her as if I were the only one he/she could depend on.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_aa
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 6 9
0 NOT AT ALL 51 74 125
1 SOMEWHAT 11 16 27
2 EXTREMELY 3 4 7

ph108: Extent to which Participant agrees with the following statement: I feel that I don't have enough money to support my son/daughter in addition to the rest of our expenses.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_bb
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 7 10
0 NOT AT ALL 44 72 116
1 SOMEWHAT 14 12 26
2 EXTREMELY 7 9 16

ph109: Extent to which Participant agrees with the following statement: I feel that I would like to be able to provide more money to support my son/daughter than I am able to now.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_cc
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 3 6 9
0 NOT AT ALL 39 71 110
1 SOMEWHAT 19 13 32
2 EXTREMELY 7 10 17

ph110: Extent to which Participant agrees with the following statement: I worry about what will happen to my son/daughter when I can no longer care for him/her.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q12_dd
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
0 NOT AT ALL 30 55 85
1 SOMEWHAT 21 29 50
2 EXTREMELY 13 9 22

ph111: How much have you become more aware of your inner strengths?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: q13_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 6 10
0 NOT AT ALL 13 11 24
1 JUST A LITTLE 17 16 33
2 SOMEWHAT 17 35 52
3 VERY MUCH 17 32 49
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?"

ph112: How much have you become more self-confident?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q13_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
0 NOT AT ALL 18 19 37
1 JUST A LITTLE 21 17 38
2 SOMEWHAT 18 35 53
3 VERY MUCH 7 22 29
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?"

ph113: How much have you gotten a better idea of what is important in life?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q13_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
0 NOT AT ALL 13 7 20
1 JUST A LITTLE 9 10 19
2 SOMEWHAT 21 30 51
3 VERY MUCH 21 46 67
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?"

ph114: How much have you gained a sense of fulfilling your duty?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q13_d
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 6 10
0 NOT AT ALL 12 22 34
1 JUST A LITTLE 12 13 25
2 SOMEWHAT 22 34 56
3 VERY MUCH 18 25 43
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?"

ph115: How much have you grown as a person?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q13_e
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
0 NOT AT ALL 13 13 26
1 JUST A LITTLE 9 13 22
2 SOMEWHAT 24 31 55
3 VERY MUCH 18 36 54
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?"

ph116: How much have you learned to do things you didn't do before?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q13_f
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
0 NOT AT ALL 18 29 47
1 JUST A LITTLE 12 13 25
2 SOMEWHAT 20 27 47
3 VERY MUCH 14 24 38
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?"

ph117: How much have you become closer to your family?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q13_g
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 9 13
0 NOT AT ALL 15 21 36
1 JUST A LITTLE 10 15 25
2 SOMEWHAT 24 32 56
3 VERY MUCH 15 23 38
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?"

ph118: How much have you become more sensitive to persons with disabilities?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q13_h
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 6 10
0 NOT AT ALL 9 10 19
1 JUST A LITTLE 6 11 17
2 SOMEWHAT 20 27 47
3 VERY MUCH 29 46 75
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?"

ph119: How much have you made new friends?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q13_i
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
0 NOT AT ALL 24 36 60
1 JUST A LITTLE 15 13 28
2 SOMEWHAT 19 23 42
3 VERY MUCH 6 21 27
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?"

ph120: How much have you become more patient?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q13_j
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
0 NOT AT ALL 8 9 17
1 JUST A LITTLE 14 16 30
2 SOMEWHAT 27 38 65
3 VERY MUCH 15 30 45
Note: This question was prefaced by the following statement: "Sometimes people discover strengths and skills they never knew they had when a family member has a long-term disability. How about you?

ph121: Do you think your experiences as a parent caring for a child with a disability have been mostly positive or mostly negative?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q14
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 9 26 35
1 MOSTLY POSITIVE 48 61 109
2 MOSTLY NEGATIVE 11 13 24

ph200: Does your son/daughter currently take prescription medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
-4 NOT ASCERTAINED 1 1 2
-1 DON'T KNOW 22 15 37
1 YES 24 56 80
2 NO 17 21 38

ph200a: Number of prescription medications son/daughter is currently taking.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: ph200, ph201n-ph218n
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 39 36 75
0 1 0 1
1 14 34 48
2 4 10 14
3 4 4 8
4 2 4 6
5 1 3 4
6 0 1 1
7 1 0 1
8 0 3 3
9 2 2 4
10 0 1 1
12 0 1 1
18 0 1 1

ph201n: Name of first medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8a_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-1" DONT KNOW 3 8 11
"-2" 40 36 76
"-29" LEFT BLANK ON SAQ 4 5 9
"-4" NOT ASCERTAINED 1 14 15
"Advair Diskus" 0 1 1
"Famotidine 40 mcg Tablets" 0 1 1
"Fluoxitine" 0 1 1
"Loratab" 0 1 1
"Peroxetine" 0 1 1
"Seroquel" 0 1 1
"Xanex" 1 0 1
"antibiotic" 0 1 1
"atavan" 1 0 1
Note: Only 14 of 58 values are listed.

ph201p: Purpose first medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8a_b, c_y_q8a_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
-4 NOT ASCERTAINED 2 19 21
-2 40 36 76
-1 DON'T KNOW 3 1 4
244 Acquired hypothyroidism 0 1 1
272 Disorders of lipoid metabolism 0 3 3
295 Schizophrenic disorders 0 1 1
296 Affective psychoses 4 7 11
297 Paranoid states 1 0 1
300 Neurotic disorder 1 3 4
311 Depressive disorder, not elsewhere classified 2 5 7
314 Hyperkinetic syndrome of childhood 0 2 2
457 Noninfectious disorders of lymphatic channels 1 0 1
493 Asthma 0 1 1
530 Diseases of esophagus 0 1 1
724 Other and unspecified disorders of back 1 0 1
729 Other disorders of soft tissues 0 1 1
1134 Sleep functions 1 3 4
1152 Emotional functions 1 3 4
1280 Sensation of pain 0 2 2
1435 Immunological system functions 0 1 1
1525 Defecation functions 1 0 1
1535 Sensations associated with the digestive system 0 1 1
1765 Involuntary movement functions 6 2 8

ph201pc: Purpose first medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph201p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 4 7 11
-4 NOT ASCERTAINED 2 19 21
-2 40 36 76
-1 DON'T KNOW 3 1 4
30 Endocrine, Nutritional, Metabolic, Immunity 0 4 4
50 Mental Disorders 8 18 26
70 Circulatory System 1 0 1
80 Respiratory System 0 1 1
90 Digestive System 0 1 1
130 Musculoskeletal System and Connective Tissue 1 1 2
210 ICF Body Functions 9 12 21

ph201e: How effective is first medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8a_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 6 26 32
-2 40 36 76
-1 DON'T KNOW 3 1 4
0 NOT AT ALL EFFECTIVE 1 0 1
1 SOMEWHAT EFFECTIVE 6 14 20
2 VERY EFFECTIVE 12 23 35

ph202n: Name of second medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8b_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
"" System missing - NR 4369 4241 8610
"-1" DONT KNOW 1 1 2
"-2" 54 70 124
"-4" NOT ASCERTAINED 0 1 1
"Carbamazepine" 1 0 1
"Depakote 5 a day 250 mg" 0 1 1
"Glimepiricle 2 mg" 0 1 1
"Hydroclorote" 0 1 1
"Lamictal" 1 0 1
"Lamotriqine" 0 1 1
"lexepro" 1 0 1
"seroquel" 0 1 1
Note: Only 13 of 44 values are listed.

ph202p: Purpose second medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8b_b, c_y_q8b_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 3 3
-2 54 70 124
250 Diabetes mellitus 1 0 1
272 Disorders of lipoid metabolism 1 0 1
295 Schizophrenic disorders 1 0 1
296 Affective psychoses 2 7 9
297 Paranoid states 0 1 1
300 Neurotic disorder 1 1 2
311 Depressive disorder, not elsewhere classified 2 3 5
314 Hyperkinetic syndrome of childhood 0 1 1
345 Epilepsy 0 1 1
401 Essential hypertension 1 1 2
530 Diseases of esophagus 0 1 1
716 Other and unspecified arthropathies 0 1 1
1134 Sleep functions 0 2 2
1152 Emotional functions 0 4 4
1420 Blood pressure functions 1 0 1
1499 Functions of the cardiovascular, haematological, immunological and respiratory systems, unspecified 0 1 1
1535 Sensations associated with the digestive system 0 2 2
1765 Involuntary movement functions 3 0 3
1780 Sensations related to muscles and movement functions 0 1 1
1850 Functions of hair 1 0 1

ph202pc: Purpose second medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph202p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 3 3
-2 54 70 124
30 Endocrine, Nutritional, Metabolic, Immunity 2 0 2
50 Mental Disorders 6 13 19
60 Nervous System and Sense Organs 0 1 1
70 Circulatory System 1 1 2
90 Digestive System 0 1 1
130 Musculoskeletal System and Connective Tissue 0 1 1
210 ICF Body Functions 5 10 15

ph202e: How effective is second medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8b_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 3 4
-2 54 70 124
1 SOMEWHAT EFFECTIVE 8 10 18
2 VERY EFFECTIVE 5 17 22

ph203n: Name of third medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8c_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-1" DONT KNOW 0 1 1
"-2" 58 80 138
"DivalProex" 0 1 1
"Lamictal 100 mg" 1 0 1
"Omenapazole" 1 0 1
"Seroquel" 0 1 1
"Topinamate 100 mg" 0 1 1
"acetaminaphen 50 mg" 0 1 1
"spironlactone" 1 0 1
"trazodone" 1 0 1
Note: Only 13 of 33 values are listed.

ph203p: Purpose third medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8c_b, c_y_q8c_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 1 2
-2 58 80 138
250 Diabetes mellitus 0 1 1
295 Schizophrenic disorders 1 0 1
296 Affective psychoses 1 3 4
311 Depressive disorder, not elsewhere classified 0 1 1
333 Other extrapyramidal disease and abnormal movement disorders 0 1 1
346 Migraine 0 2 2
493 Asthma 0 2 2
530 Diseases of esophagus 1 1 2
724 Other and unspecified disorders of back 1 0 1
1134 Sleep functions 2 2 4
1152 Emotional functions 0 2 2
1280 Sensation of pain 0 1 1
1545 Water, mineral and electrolyte balance functions 1 0 1
1670 Sensations associated with genital and reproductive functions 0 1 1
1765 Involuntary movement functions 2 0 2
1849 Functions of the skin, other specified and unspecified 0 1 1
5947 Other And Unspecified Drugs And Medicinal Substances Causing Adverse Effects In Therapeutic Use 0 1 1

ph203pc: Purpose third medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph203p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 1 2
-2 58 80 138
30 Endocrine, Nutritional, Metabolic, Immunity 0 1 1
50 Mental Disorders 2 4 6
60 Nervous System and Sense Organs 0 3 3
80 Respiratory System 0 2 2
90 Digestive System 1 1 2
130 Musculoskeletal System and Connective Tissue 1 0 1
180 ICD-9 E Codes 0 1 1
210 ICF Body Functions 5 7 12

ph203e: How effective is third medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8c_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 0 1
-2 58 80 138
1 SOMEWHAT EFFECTIVE 3 9 12
2 VERY EFFECTIVE 6 11 17

ph204n: Name of fourth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8d_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
"" System missing - NR 4369 4241 8610
"-1" DONT KNOW 0 1 1
"-2" 62 84 146
"Ambien" 1 0 1
"Crestor" 0 1 1
"Diazapam" 0 1 1
"Prempro 0.625-2.5 mg" 0 1 1
"Simistatin" 0 1 1
"Xanax 1 mg 4 a day" 0 1 1
"Zetia" 1 0 1
"diphenhydramine HCL 25 mg" 0 1 1
Note: Only 13 of 25 values are listed.

ph204p: Purpose fourth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8d_b, c_y_q8d_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 62 84 146
272 Disorders of lipoid metabolism 1 1 2
295 Schizophrenic disorders 0 1 1
300 Neurotic disorder 1 3 4
311 Depressive disorder, not elsewhere classified 0 1 1
314 Hyperkinetic syndrome of childhood 0 1 1
333 Other extrapyramidal disease and abnormal movement disorders 0 1 1
346 Migraine 0 1 1
401 Essential hypertension 0 1 1
493 Asthma 0 1 1
784 Symptoms involving head and neck 1 0 1
1134 Sleep functions 1 1 2
1152 Emotional functions 0 1 1
1435 Immunological system functions 0 1 1
1679 Genital and reproductive functions, other specified and unspecified 0 1 1
1765 Involuntary movement functions 1 0 1
3570 Looking after one's health 1 0 1

ph204pc: Purpose fourth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph204p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 62 84 146
30 Endocrine, Nutritional, Metabolic, Immunity 1 1 2
50 Mental Disorders 1 6 7
60 Nervous System and Sense Organs 0 2 2
70 Circulatory System 0 1 1
80 Respiratory System 0 1 1
160 Symptoms, Signs, and Ill-Defined Conditions 1 0 1
210 ICF Body Functions 2 4 6
230 ICF Activities and Participation 1 0 1

ph204e: How effective is fourth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8d_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 0 1
-2 62 84 146
0 NOT AT ALL EFFECTIVE 0 1 1
1 SOMEWHAT EFFECTIVE 1 3 4
2 VERY EFFECTIVE 4 12 16

ph205n: Name of fifth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8e_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-1" DONT KNOW 0 1 1
"-2" 64 88 152
"Fish Oil" 0 1 1
"Hydrocodone" 1 0 1
"Levothyroxine" 1 0 1
"Pantoprazole" 0 1 1
"Saphris" 1 0 1
"Valium" 0 1 1
"lisinapril" 0 1 1
Note: Only 12 of 20 values are listed.

ph205p: Purpose fifth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8e_b, c_y_q8e_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 64 88 152
246 Other disorders of thyroid 1 0 1
272 Disorders of lipoid metabolism 0 1 1
296 Affective psychoses 1 0 1
314 Hyperkinetic syndrome of childhood 0 1 1
346 Migraine 0 1 1
356 Hereditary and idiopathic peripheral neuropathy 0 1 1
493 Asthma 0 1 1
530 Diseases of esophagus 1 0 1
729 Other disorders of soft tissues 0 1 1
1240 Sensations associated with hearing and vestibular function 0 1 1
1280 Sensation of pain 1 0 1
1435 Immunological system functions 0 2 2
1525 Defecation functions 0 1 1
5947 Other And Unspecified Drugs And Medicinal Substances Causing Adverse Effects In Therapeutic Use 0 1 1

ph205pc: Purpose fifth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph205p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 64 88 152
30 Endocrine, Nutritional, Metabolic, Immunity 1 1 2
50 Mental Disorders 1 1 2
60 Nervous System and Sense Organs 0 2 2
80 Respiratory System 0 1 1
90 Digestive System 1 0 1
130 Musculoskeletal System and Connective Tissue 0 1 1
180 ICD-9 E Codes 0 1 1
210 ICF Body Functions 1 4 5

ph205e: How effective is fifth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8e_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 64 88 152
1 SOMEWHAT EFFECTIVE 3 6 9
2 VERY EFFECTIVE 1 6 7

ph206n: Name of sixth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8f_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 65 91 156
"Baby aspirin" 0 1 1
"Fexofendaine" 1 0 1
"Hydroxozine" 1 0 1
"Lamictal" 0 1 1
"Metoprotel" 0 1 1
"Morphine" 0 1 1
"Niaspan" 0 1 1
"maxalt" 0 1 1
"multivitamins" 0 1 1
"propranolol" 1 0 1
"savella 50 mg" 0 1 1
"ventoline" 0 1 1

ph206p: Purpose sixth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8f_b, c_y_q8f_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 65 91 156
346 Migraine 1 2 3
493 Asthma 0 1 1
724 Other and unspecified disorders of back 0 1 1
729 Other disorders of soft tissues 0 1 1
1152 Emotional functions 1 1 2
1420 Blood pressure functions 0 1 1
1435 Immunological system functions 1 0 1
3570 Looking after one's health 0 1 1

ph206pc: Purpose sixth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph206p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 65 91 156
60 Nervous System and Sense Organs 1 2 3
80 Respiratory System 0 1 1
130 Musculoskeletal System and Connective Tissue 0 2 2
210 ICF Body Functions 2 2 4
230 ICF Activities and Participation 0 1 1

ph206e: How effective is sixth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8f_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 1 0 1
-2 65 91 156
1 SOMEWHAT EFFECTIVE 1 2 3
2 VERY EFFECTIVE 1 7 8

ph207n: Name of seventh medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8g_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 65 92 157
"Abilify" 0 1 1
"Aspirin" 0 1 1
"Clotrimazole Bethamethasone" 1 0 1
"Excedrin Migraine" 0 1 1
"Hydrochodone" 0 1 1
"Lutera" 1 0 1
"Para Fon Forte" 0 1 1
"advair" 0 1 1
"clonazepam" 1 0 1
"marcalt 5 mg" 0 1 1
"phenobarbital 32.4 mg" 0 1 1

ph207p: Purpose seventh medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8g_b, c_y_q8g_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 65 92 157
311 Depressive disorder, not elsewhere classified 0 1 1
346 Migraine 0 2 2
493 Asthma 0 1 1
724 Other and unspecified disorders of back 0 1 1
1147 Psychomotor functions 1 0 1
1280 Sensation of pain 0 1 1
1660 Procreation functions 1 0 1
1765 Involuntary movement functions 0 1 1
1840 Sensation related to the skin 1 0 1

ph207pc: Purpose seventh medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph207p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 65 92 157
50 Mental Disorders 0 1 1
60 Nervous System and Sense Organs 0 2 2
80 Respiratory System 0 1 1
130 Musculoskeletal System and Connective Tissue 0 1 1
210 ICF Body Functions 3 2 5

ph207e: How effective is seventh medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8g_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 65 92 157
1 SOMEWHAT EFFECTIVE 2 5 7
2 VERY EFFECTIVE 1 3 4

ph208n: Name of eighth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8h_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-1" DONT KNOW 0 1 1
"-2" 66 92 158
"Cogentin" 0 1 1
"Plavix" 0 1 1
"Polyathylane Glycol" 1 0 1
"Tylenol quick release" 0 1 1
"Valium" 0 1 1
"geodon 60 mg" 0 1 1
"polyethylene glycol-3350" 0 1 1
"travatin" 0 1 1
"ventolin HFA" 1 0 1

ph208p: Purpose eighth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8h_b, c_y_q8h_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 0 1 1
-4 NOT ASCERTAINED 0 1 1
-2 66 92 158
300 Neurotic disorder 0 1 1
311 Depressive disorder, not elsewhere classified 0 1 1
346 Migraine 0 1 1
365 Glaucoma 0 1 1
428 Heart failure 0 1 1
493 Asthma 1 0 1
995 Certain adverse effects not elsewhere classified 0 1 1
1525 Defecation functions 1 0 1

ph208pc: Purpose eighth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph208p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 0 1 1
-4 NOT ASCERTAINED 0 1 1
-2 66 92 158
50 Mental Disorders 0 2 2
60 Nervous System and Sense Organs 0 2 2
70 Circulatory System 0 1 1
80 Respiratory System 1 0 1
170 Injury and Poisoning 0 1 1
210 ICF Body Functions 1 0 1

ph208e: How effective is eighth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8h_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 66 92 158
1 SOMEWHAT EFFECTIVE 0 6 6
2 VERY EFFECTIVE 2 2 4

ph209n: Name of ninth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8i_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 66 95 161
"Atrovent HFA" 1 0 1
"Gluticasone" 0 1 1
"Soma" 0 1 1
"Vitamin D" 0 1 1
"eye drops" 1 0 1
"flonase" 0 1 1
"hasix" 0 1 1

ph209p: Purpose ninth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8i_b, c_y_q8i_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 1 1 2
-2 66 95 161
493 Asthma 1 0 1
1435 Immunological system functions 0 1 1
1545 Water, mineral and electrolyte balance functions 0 1 1
1780 Sensations related to muscles and movement functions 0 1 1
3570 Looking after one's health 0 1 1

ph209pc: Purpose ninth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph209p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 1 1 2
-2 66 95 161
80 Respiratory System 1 0 1
210 ICF Body Functions 0 3 3
230 ICF Activities and Participation 0 1 1

ph209e: How effective is ninth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8i_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 66 95 161
1 SOMEWHAT EFFECTIVE 1 1 2
2 VERY EFFECTIVE 1 4 5

ph210n: Name of tenth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8j_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 68 97 165
"Alprazolam" 0 1 1
"Multi vitamin-Mineral" 0 1 1
"Repenitol" 0 1 1

ph210p: Purpose tenth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8j_b, c_y_q8j_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 0 1 1
-4 NOT ASCERTAINED 0 1 1
-2 68 97 165
333 Other extrapyramidal disease and abnormal movement disorders 0 1 1

ph210pc: Purpose tenth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph210p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 0 1 1
-4 NOT ASCERTAINED 0 1 1
-2 68 97 165
60 Nervous System and Sense Organs 0 1 1

ph210e: How effective is tenth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8j_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 0 1 1
-2 68 97 165
1 SOMEWHAT EFFECTIVE 0 1 1
2 VERY EFFECTIVE 0 1 1

ph211n: Name of eleventh medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8k_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 68 98 166
"Hydrocodone" 0 1 1
"Ibuprofen" 0 1 1

ph211p: Purpose eleventh medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8k_b, c_y_q8k_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 2 2
-2 68 98 166

ph211pc: Purpose eleventh medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph211p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 2 2
-2 68 98 166

ph211e: How effective is eleventh medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8k_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 68 98 166
1 SOMEWHAT EFFECTIVE 0 2 2

ph212n: Name of twelfth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8l_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 68 98 166
"-4" NOT ASCERTAINED 0 1 1
"Hydroxyzine" 0 1 1

ph212p: Purpose twelfth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8l_b, c_y_q8l_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 2 2
-2 68 98 166

ph212pc: Purpose twelfth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph212p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 2 2
-2 68 98 166

ph212e: How effective is twelfth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8l_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-29 LEFT BLANK ON SAQ 0 1 1
-2 68 98 166
1 SOMEWHAT EFFECTIVE 0 1 1

ph213n: Name of thirteenth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8m_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 68 99 167
"Hydrocodone" 0 1 1

ph213p: Purpose thirteenth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8m_b, c_y_q8m_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph213pc: Purpose thirteenth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph213p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph213e: How effective is thirteenth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8m_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 68 99 167
1 SOMEWHAT EFFECTIVE 0 1 1

ph214n: Name of fourteenth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8n_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 68 99 167
"Fish Oil" 0 1 1

ph214p: Purpose fourteenth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8n_b, c_y_q8n_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph214pc: Purpose fourteenth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph214p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph214e: How effective is fourteenth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8n_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 68 99 167
1 SOMEWHAT EFFECTIVE 0 1 1

ph215n: Name of fifteenth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8o_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 68 99 167
"Vitamin C" 0 1 1

ph215p: Purpose fifteenth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8o_b, c_y_q8o_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph215pc: Purpose fifteenth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph215p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph215e: How effective is fifteenth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8o_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 68 99 167
1 SOMEWHAT EFFECTIVE 0 1 1

ph216n: Name of sixteenth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8p_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 68 99 167
"Votaren Gel" 0 1 1

ph216p: Purpose sixteenth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8p_b, c_y_q8p_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph216pc: Purpose sixteenth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph216p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph216e: How effective is sixteenth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8p_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 68 99 167
0 NOT AT ALL EFFECTIVE 0 1 1

ph217n: Name of seventeenth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8q_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 68 99 167
"Pro Air" 0 1 1

ph217p: Purpose seventeenth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8q_b, c_y_q8q_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph217pc: Purpose seventeenth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph217p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph217e: How effective is seventeenth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8q_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 68 99 167
1 SOMEWHAT EFFECTIVE 0 1 1

ph218n: Name of eighteenth medication.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8r_a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
System missing - NR 4369 4241 8610
"-2" 68 99 167
"Metroprolol" 0 1 1

ph218p: Purpose eighteenth medication is primarily prescribed for. These are ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8r_b, c_y_q8r_b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph218pc: Purpose eighteenth medication is primarily prescribed for. These are collapsed ICD-9 and ICF codes.

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, ph218p
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-4 NOT ASCERTAINED 0 1 1
-2 68 99 167

ph218e: How effective is eighteenth medication?

Data source: Sibling Participant or Proxy      Collected in: 2011      Mode: Mail
Source variables: y_q8, y_q8r_c
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 4369 4241 8610
-2 68 99 167
1 SOMEWHAT EFFECTIVE 0 1 1

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