WLS Codebooks

Note: Codebooks contain frequency data from the private data release. For some variables, these differ from the frequencies in the public release. Variables that differ between the public and private versions include "(not available on public release)" as part of the variable description, or a note indicating the difference between the public and private versions.

In Person: Non-Normative Extension Interview

JNNEXT  Non-normative Extension Interview

OVERVIEW

This module is an extension of the non-normative screener module of the 2011
collection wave. The purpose is to collect more information about the
participant's selected non-normative child. If a child with a developmental
disorder was identified in the 2004 collection wave, that child was also
discussed in this wave. If a non-normative child was not discussed in 2004,
they were identified in the non-normative screener and discussed further here. 
If a participant reported more than one child with a developmental disability
in the screener module, the one they had the most contact with was chosen to be
discussed here. The "selected non-normative child" refers to either the child
talked about in 2004, the child identified in the non-normative screener in the
2011 collection wave or the non-normative child that the participant had the
most contact with. Information was collected in the following ways:

	Once the correct child was verified, the participant was read a list of
possible developmental disorders and reported which the selected non-normative
child had. After version 17 of this survey, the participant was then asked if
they had contact with the selected non-normative child in the past year, such
as seeing them in person or talking to them on the phone.  If they had not had
contact in the past year they were not asked any more questions regarding the
selected non-normative child.
	
	Participants who had contact with the selected non-normative child in the past
year were then asked questions regarding details about their child such as
their overall physical health, employment, programs they participate in,
volunteering, activities of daily living, living situation, social activities,
behavior and care the child recieves.
	
The variables in this module have been, for the most part, replicated from
2004. However, the variables regarding the diagnoses (HH125REA-HH126REB) are
new to the 2011 wave, as well as the variable regarding whether the participant
had contact with their child in the past year (HH200).



BRIEF VARIABLE DESCRIPTIONS

    Variable ranges reference dataset/codebook order and are not necessarily 
    alphabetical.
    _____________________________________________________________________

    HNNESTAT-HNNEREL:	Module-Level Status Variables.
 
    HH125:           	Focus child's roster ID
    
    HH125REA-HH126REB:  Diagnoses of child
    
    HH200:		Interaction with child in past year

    HH001-HH002:     	Health of child
    
    HH003,HH126:     	Employment of the child

    HH006-HH021:     	Daily activities of child

    HH022:           	How many hours does respondent help child

    HH023-HH071:     	Activities of daily living

    HH077-HH083:     	Living situation of child

    HH084-HH089:     	Social participation of child

    HH090-HH103:     	Negative behavior problems of child

    HH105-HH114:     	Mental health care of child

    HH115-HH119:     	Future care for child

hnnestat: Was the Nonnormative Extension Interview Module completed by Participant alone, with help, or by proxy?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nneflag, y_nneproxy1, y_nnehelp0, capiproxy, y_proxy, y_ivwloc
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
1 R COMPLETED ALONE 2489 3023 5512
2 R COMPLETED ALONE WITH SOMEONE ELSE IN THE ROOM 245 139 384
3 R RECEIVED A LITTLE HELP 17 4 21
4 R RECEIVED A LOT OF HELP 4 6 10
5 HELPER RESPONDED TO ALL ITEMS 1 1 2
7 WHOLE INTERVIEW DONE BY PROXY 14 16 30
Note: For many cases a participant's spouse or other family member was present during the interview. This sometimes resulted in the participant relying on the other person for help in answering some or many of the questions. At the end of each module the interviewer indicated the amount of help the participant received and who provided that help. That assessment is covered by codes 1 through 5. Additionally, a code of 7 indicates that the entire interview was administered to a proxy while a code of 6 indicates that this particular module was answered by a proxy but other modules were answered by the participant.

hnnerel: Relationship of Nonnormative Extension Interview Module helper or proxy to Participant.

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: HNNESTAT, y_nneproxy1, y_nnehelp0, y_nnehelp1, y_nnehelp2_hfn, y_nnehelp3, y_h1fn-y_h4fn, y_pfn, prxyfnam, y_p1fn-y_p5fn, y_prel, prxyrel, y_p1rel-y_p5rel
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 0 1 1
-2 2734 3162 5896
0 SPOUSE 33 17 50
2 BROTHER 1 0 1
8 DAUGHTER 1 3 4
25 FRIEND 0 1 1
26 GRANDDAUGHTER 0 1 1
30 GRANDSON 0 1 1
48 SON 1 3 4
Note: If this module was administered via proxy or if the participant received help answering the questions in this module then the interviewer recorded the relationship of the proxy/helper to the participant. Although most participants relied on only one helper or proxy for the interview, some had more than one. Thus the value of the relationship code may vary across the modules.

hh125: Roster ID of the non-normative child about whom the questions in extension module are being asked.

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: nnID
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2629 2999 5628
101 44 61 105
102 50 53 103
103 27 38 65
104 9 17 26
105 5 15 20
106 5 1 6
107 0 2 2
108 0 1 1
109 1 1 2
110 0 1 1

hh125rea: Has the selected non-normative child ever been diagnosed with mental retardation or cognitive disability?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 2 4 6
1 YES 8 7 15
2 NO 52 97 149

hh125reb: Has the selected non-normative child ever been diagnosed with Down Syndrome?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 1 2 3
1 YES 1 0 1
2 NO 60 106 166

hh125rec: Has the selected non-normative child ever been diagnosed with Autism?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 0 2 2
1 YES 1 2 3
2 NO 61 104 165

hh125red: Has the selected non-normative child ever been diagnosed with Asperger's?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_4
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 3 4 7
1 YES 0 1 1
2 NO 59 103 162

hh125ree: Has the selected non-normative child ever been diagnosed with Pervasive Developmental Disorder (PDD)?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_5
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 3 4 7
1 YES 2 1 3
2 NO 57 103 160

hh125ref: Has the selected non-normative child ever been diagnosed with Rett's Syndrome?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_6
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 2 3 5
2 NO 60 105 165

hh125reg: Has the selected non-normative child ever been diagnosed with Epilepsy or seizure disorder?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_7
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 0 3 3
1 YES 2 7 9
2 NO 60 98 158

hh125reh: Has the selected non-normative child ever been diagnosed with Cerebral Palsy (CP)?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_8
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 0 2 2
1 YES 1 2 3
2 NO 61 104 165

hh125rei: Has the selected non-normative child ever been diagnosed with Muscular Dystrophy?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_9
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 0 2 2
2 NO 62 106 168

hh125rej: Has the selected non-normative child ever been diagnosed with traumatic brain injury (TBI)?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_10
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 1 3 4
1 YES 1 6 7
2 NO 60 99 159

hh125rek: Has the selected non-normative child ever been diagnosed with Attention Deficit Disorder or Attention Deficit Hyperactivity Disorder (ADD/ADHD)?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_11
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 2 3 5
1 YES 15 25 40
2 NO 45 80 125

hh125rel: Has the selected non-normative child ever been diagnosed with a learning disability, such as Dyslexia?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_12
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 3 5 8
1 YES 6 9 15
2 NO 53 94 147

hh125rem: Has the selected non-normative child ever been diagnosed with Obsessive Compulsive Disorder (OCD)?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_13
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 0 6 6
1 YES 13 12 25
2 NO 49 90 139

hh125ren: Has the selected non-normative child ever been diagnosed with an anxiety disorder?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_14
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 2 8 10
1 YES 26 39 65
2 NO 34 61 95

hh125reo: Has the selected non-normative child ever been diagnosed with Depression?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_15
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 3 4 7
1 YES 31 76 107
2 NO 28 28 56

hh125rep: Has the selected non-normative child ever been diagnosed with Bipolar Disorder, also known as manic depression?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_16
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 1 5 6
1 YES 46 79 125
2 NO 15 24 39

hh125req: Has the selected non-normative child ever been diagnosed with Schizophrenia or Schizoaffective Disorder?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_17
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 0 4 4
1 YES 7 15 22
2 NO 55 89 144

hh125rer: Has the selected non-normative child ever been diagnosed with a personality disorder?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_18
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 3 5 8
1 YES 6 12 18
2 NO 53 91 144

hh125res: Has the selected non-normative child ever been diagnosed with alcoholism?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne04_19
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 1 4
-2 2705 3080 5785
-1 DON'T KNOW 0 4 4
1 YES 12 24 36
2 NO 50 80 130

hh126rea: Has the selected non-normative child ever been diagnosed with fragile X syndrome?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne07
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 1 1 2
-2 2619 2987 5606
-1 DON'T KNOW 24 25 49
1 YES 0 1 1
2 NO 126 175 301

hh126reb: Has the selected non-normative child ever been tested for fragile X syndrome?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_nne08
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 2 1 3
-2 2619 2988 5607
-1 DON'T KNOW 64 68 132
1 YES 5 2 7
2 NO 80 130 210

hh200: Has Participant seen the selected non-normative child face-to-face or talked over the telephone in the past year?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_D413
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 1 1 2
-3 REFUSED 1 0 1
-2 2636 3010 5646
-1 DON'T KNOW 1 0 1
1 YES 124 167 291
2 NO 7 11 18
Note: This was not asked before version 18. If the participant reported not having seen or spoken to their selected non-normative child in the past year they were not asked any more questions in this module.

hh001: How would you rate the health of the selected non-normative child?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H080
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 1 1 2
-2 2629 2999 5628
-1 DON'T KNOW 2 1 3
1 EXCELLENT 29 32 61
2 GOOD 65 87 152
3 FAIR 27 44 71
4 POOR 16 18 34
5 VERY POOR 1 7 8

hh002: How is the health of the selected non-normative child compared to 5 years ago?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H081
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 1 1 2
-2 2629 2999 5628
-1 DON'T KNOW 1 0 1
1 BETTER 31 59 90
2 ABOUT THE SAME 80 80 160
3 WORSE 28 50 78

hh003: Does the selected non-normative child have a job without special supports?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H082
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 0 2 2
-3 REFUSED 1 0 1
-2 2629 2999 5628
-1 DON'T KNOW 1 0 1
1 YES 57 86 143
2 NO 82 102 184

hh126: How many hours a week does the selected non-normative child work at the job without special supports?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H083
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2713 3103 5816
-1 DON'T KNOW 2 3 5
4 - 20 10 17 27
22 - 35 11 16 27
36 - 40 22 35 57
45 - 60 12 15 27

hh006: Does the selected non-normative child participate in a supported or transitional employment program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H084
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 0 2 2
-3 REFUSED 1 0 1
-2 2629 2999 5628
-1 DON'T KNOW 2 6 8
1 YES 22 17 39
2 NO 116 165 281

hh007: How many hours per week does the selected non-normative child participate in a supported or transitional employment program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H085
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 0 2 2
-2 2748 3170 5918
-1 DON'T KNOW 1 2 3
1 1 0 1
2 1 0 1
3 2 0 2
4 1 0 1
5 0 1 1
6 2 0 2
8 0 1 1
14 0 1 1
15 4 1 5
18 1 1 2
20 0 4 4
24 1 0 1
25 2 0 2
30 4 4 8
32 1 0 1
35 0 2 2
40 1 0 1

hh008: Does the selected non-normative child attend a sheltered workshop?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H086
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 1 2 3
-3 REFUSED 1 0 1
-2 2714 3133 5847
1 YES 11 13 24
2 NO 43 41 84
Note: If the participant reported in 2004 that the selected non-normative child was diagnosed with mental illness, they were not asked questions regarding their child's participation in sheltered workshops or day activity programs. Such cases have been assigned a value of -2 on HH008-HH011.

hh009: How many hours per week does the selected non-normative child attend a sheltered workshop?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H087
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2759 3176 5935
8 0 1 1
15 1 3 4
18 2 1 3
20 1 2 3
24 1 0 1
25 2 0 2
30 2 2 4
32 1 0 1
35 1 2 3
40 0 1 1
56 0 1 1
Note: If the participant reported in 2004 that the selected non-normative child was diagnosed with mental illness, they were not asked questions regarding their child's participation in sheltered workshops or day activity programs. Such cases have been assigned a value of -2 on HH008-HH011.

hh010: Does the selected non-normative child attend a day activity program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H088
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 1 2 3
-3 REFUSED 1 0 1
-2 2714 3133 5847
-1 DON'T KNOW 1 2 3
1 YES 4 11 15
2 NO 49 41 90
Note: If the participant reported in 2004 that the selected non-normative child was diagnosed with mental illness, they were not asked questions regarding their child's participation in sheltered workshops or day activity programs. Such cases have been assigned a value of -2 on HH008-HH011.

hh011: How many hours per week does the selected non-normative child attend a day activity program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H089
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2766 3178 5944
-1 DON'T KNOW 0 1 1
4 0 1 1
5 1 0 1
8 1 1 2
10 0 2 2
16 0 1 1
30 1 2 3
35 1 1 2
40 0 1 1
56 0 1 1
Note: If the participant reported in 2004 that the selected non-normative child was diagnosed with mental illness, they were not asked questions regarding their child's participation in sheltered workshops or day activity programs. Such cases have been assigned a value of -2 on HH008-HH011.

hh012: Does the selected non-normative child go to a Department of Vocational Rehabilitation, day treatment or clubhouse program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H090
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 14 13 27
-2 2629 2999 5628
-1 DON'T KNOW 5 7 12
1 YES 5 5 10
2 NO 117 165 282
Note: This was supposed to be asked of all children with a developmental disability but those before version 23 were not asked.

hh013: Which of the three programs - a Department of Vocational Rehabilitation, day treatment program, or clubhouse program - does the selected non-normative child attend?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H090_1
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2765 3184 5949
1 DVR 2 1 3
2 DAY TREATMENT PROGRAM 1 1 2
3 CLUBHOUSE PROGRAM 2 3 5

hh014: Is that a DVR, day treatment program or clubhouse program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H090_2
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2770 3189 5959

hh015: Is that a DVR, day treatment program or clubhouse program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H090_3
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2770 3189 5959

hh016: How many hours per week does the selected non-normative child go to a Department of Vocational Rehabilitation program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H091
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2768 3188 5956
4 0 1 1
15 1 0 1
25 1 0 1

hh017: How many hours per week does the selected non-normative child go to a day treatment program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H092
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2769 3188 5957
5 1 0 1
40 0 1 1

hh018: How many hours per week does the selected non-normative child go to a clubhouse program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H093
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2768 3186 5954
-1 DON'T KNOW 0 1 1
2 1 0 1
3 0 1 1
4 1 0 1
15 0 1 1

hh019: Is the selected non-normative child involved in any volunteer activities?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H094
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 1 0 1
-2 2629 2999 5628
-1 DON'T KNOW 7 10 17
1 YES 36 41 77
2 NO 97 139 236

hh020: How many hours per week does the selected non-normative child participate in volunteer activities?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H095
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2734 3148 5882
-1 DON'T KNOW 9 6 15
0 0 3 3
0.50 0 1 1
1 4 4 8
2 9 10 19
3 5 2 7
4 2 1 3
5 0 1 1
6 3 0 3
8 0 3 3
10 2 3 5
12 1 3 4
20 0 2 2
30 1 0 1
40 0 1 1
60 0 1 1

hh021: Where does the selected non-normative child spend most of their day?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H096
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 1 0 1
-3 REFUSED 2 0 2
-2 2683 3075 5758
-1 DON'T KNOW 6 8 14
1 AT HOME 51 73 124
2 OUTSIDE OF HIS/HER HOME 27 33 60
Note: This is only asked of children who did not report participating in any activities or who are not flagged with a mental illness.

hh022: Not including social or entertainment activities or watching TV, how many hours in a typical week do you help your selected non-normative child in care related activities, such as getting dressed, grooming, shopping, transportation, chores or other activities?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H099a
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 5 8
-2 2629 2999 5628
-1 DON'T KNOW 3 1 4
0 100 150 250
1 - 25 34 29 63
29 - 97 1 5 6

hh023: How much help does the selected non-normative child need with grooming?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H099b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 0 1 1
-3 REFUSED 4 3 7
-2 2629 2999 5628
-1 DON'T KNOW 3 4 7
1 NONE 102 151 253
2 A LITTLE 14 10 24
3 SOME 12 13 25
4 A LOT 6 8 14

hh029: How much help does the selected non-normative child need with cooking and cleaning?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H100b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 6 7 13
1 NONE 90 133 223
2 A LITTLE 14 11 25
3 SOME 10 16 26
4 A LOT 18 19 37

hh035: How much help does the selected non-normative child need with getting up and going in the morning?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H101
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 5 7 12
1 NONE 106 141 247
2 A LITTLE 15 16 31
3 SOME 9 13 22
4 A LOT 3 9 12

hh041: How much help does the selected non-normative child need with traveling to places s/he needs to go?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H103
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 4 5 9
1 NONE 77 118 195
2 A LITTLE 19 18 37
3 SOME 17 16 33
4 A LOT 21 29 50

hh047: How much help does the selected non-normative child need with grocery shopping?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H105A
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 8 8 16
1 NONE 86 129 215
2 A LITTLE 14 12 26
3 SOME 11 13 24
4 A LOT 19 24 43

hh053: How much help does the selected non-normative child need with shopping for personal items?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H106A
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2640 3011 5651
-1 DON'T KNOW 0 1 1
1 NONE 84 133 217
2 A LITTLE 13 11 24
3 SOME 14 9 23
4 A LOT 19 24 43

hh059: How much help does the selected non-normative child need with doing household chores, such as dishes or cleaning?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H107
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 7 6 13
1 NONE 95 118 213
2 A LITTLE 9 23 32
3 SOME 15 18 33
4 A LOT 12 21 33

hh065: How much help does the selected non-normative child need with taking medications?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H109
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 6 8 14
1 NONE 85 125 210
2 A LITTLE 16 18 34
3 SOME 12 12 24
4 A LOT 13 19 32
7 NO MEDICATIONS 6 4 10

hh071: How much help does the selected non-normative child need with managing his/her money?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H111
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 6 10 16
1 NONE 53 87 140
2 A LITTLE 14 20 34
3 SOME 26 18 44
4 A LOT 39 51 90

hh077: Where does the selected non-normative child currently live?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H113A, y_H113B
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 1 6 7
-3 REFUSED 1 0 1
-2 2629 2999 5628
-1 DON'T KNOW 2 1 3
0 WITH RESPONDENT 19 17 36
1 GROUP LIVING 11 18 29
2 INDEPENDENT LIVING 89 136 225
3 FOSTER HOME 1 0 1
4 INSTITUTION 3 1 4
7 OTHER FAMILY MEMBER 13 11 24
9 OTHER 1 0 1

hh078: Has the selected non-normative child lived with the participant in the past six months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H113C
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 1 6 7
-2 2648 3016 5664
1 YES 15 19 34
2 NO 106 148 254

hh079: What level of supervision does the selected non-normative child have at his/her place of residence?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H114
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2020 4166
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 1 6 7
-2 2758 3165 5923
-1 DON'T KNOW 0 1 1
1 100% SUPERVISION BY STAFF 6 13 19
2 STAFF PRESENT SOME OF THE TIME 4 2 6
3 NO STAFF ARE PRESENT 1 1 2

hh080: How long does it take for the participant to drive to the residence of the selected non-normative child?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H115
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 1 6 7
-3 REFUSED 2 0 2
-2 2648 3016 5664
-1 DON'T KNOW 3 8 11
1 WITHIN 5 MINS 18 23 41
2 WITHIN 1/2 HOUR 40 57 97
3 WITHIN 1 HOUR 12 12 24
4 WITHIN 1/2 DAY 19 35 54
5 FURTHER THAN 1/2 DAY 27 32 59

hh081: How satisfied is the participant with the living situation of the selected non-normative child?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H116
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 1 6 7
-3 REFUSED 1 0 1
-2 2648 3016 5664
-1 DON'T KNOW 2 3 5
1 NOT AT ALL SATISFIED 15 18 33
2 SOMEWHAT SATISFIED 41 47 88
3 VERY SATISFIED 62 99 161

hh082: How satisfied are you with having the selected non-normative child living with you?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H117
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 0 1 1
-2 2751 3172 5923
1 NOT AT ALL SATISFIED 1 0 1
2 SOMEWHAT SATISFIED 5 3 8
3 VERY SATISFIED 13 13 26

hh083: Is the selected non-normative child on a waiting list for housing?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H118
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 1 2 3
-2 2629 2999 5628
-1 DON'T KNOW 7 7 14
1 YES 5 3 8
2 NO 128 178 306

hh084: How many times per year does the selected non-normative child socialize with relatives?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H119
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 3 6
-2 2629 2999 5628
-1 DON'T KNOW 14 23 37
0 - 4 22 43 65
5 - 24 25 39 64
26 - 52 27 32 59
60 - 156 31 27 58
208 - 365 19 23 42

hh085: How many times per year does the selected non-normative child socialize with friends?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H120
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 25 37 62
0 - 24 25 32 57
36 - 72 22 30 52
104 - 156 28 35 63
208 - 365 38 52 90

hh086: How many times per year does the selected non-normative child participate in recreational activities?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H121
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 3 6
-2 2629 2999 5628
-1 DON'T KNOW 21 42 63
0 40 59 99
1 0 1 1
2 2 3 5
3 1 1 2
4 3 0 3
6 1 1 2
8 1 0 1
12 16 10 26
24 12 10 22
36 1 2 3
48 0 1 1
52 21 29 50
60 1 0 1
104 9 17 26
156 2 2 4
208 3 2 5
260 1 2 3
300 0 1 1
365 3 4 7

hh087: How many times per year does the selected non-normative child work on a hobby?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H122
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 3 6
-2 2629 2999 5628
-1 DON'T KNOW 27 38 65
0 50 64 114
4 0 1 1
12 1 3 4
24 2 4 6
36 2 0 2
48 1 1 2
52 9 10 19
72 1 2 3
104 4 12 16
156 4 3 7
180 0 1 1
208 4 4 8
260 2 2 4
300 1 0 1
312 1 0 1
360 1 0 1
364 0 2 2
365 28 40 68

hh088: How many times per year does the selected non-normative child walk, play sports, or get some kind of physical exercise?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H123
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 3 6
-2 2629 2999 5628
-1 DON'T KNOW 23 28 51
0 19 39 58
1 0 1 1
4 1 0 1
12 3 1 4
20 0 2 2
24 2 3 5
52 8 16 24
84 1 0 1
104 10 12 22
144 1 0 1
156 12 9 21
208 5 5 10
260 8 8 16
300 0 1 1
365 45 62 107

hh089: How many times per year does the selected non-normative child attend services or an event at a church or synagogue, or participate in other religious ceremonies?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H124
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 20 19 39
0 57 79 136
1 - 36 24 36 60
48 - 52 31 41 72
104 - 365 6 11 17

hh090: Has the selected non-normative child hurt him/herself in last 6 months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H127
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 5 8
-2 2629 2999 5628
-1 DON'T KNOW 5 6 11
1 YES 7 8 15
2 NO 126 171 297

hh091: Has the selected non-normative child destroyed, deliberately broken, or defaced any property in last 6 months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H129
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 5 8
-2 2629 2999 5628
-1 DON'T KNOW 8 9 17
1 YES 5 9 14
2 NO 125 167 292

hh092: Has the selected non-normative child had any disruptive behaviors that interfered with the activity of others in the last 6 months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H130
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 5 8
-2 2629 2999 5628
-1 DON'T KNOW 6 11 17
1 YES 24 19 43
2 NO 108 155 263

hh093: Has the selected non-normative child had any repetitive behaviors in the last 6 months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H131
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 5 8
-2 2629 2999 5628
-1 DON'T KNOW 8 9 17
1 YES 20 28 48
2 NO 110 148 258

hh094: Has the selected non-normative child had any socially offensive behaviors in the last 6 months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H132
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 5 8
-2 2629 2999 5628
-1 DON'T KNOW 7 8 15
1 YES 23 27 50
2 NO 108 150 258

hh095: Has the selected non-normative child been withdrawn in last 6 months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H133
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 5 8
-2 2629 2999 5628
-1 DON'T KNOW 5 10 15
1 YES 42 56 98
2 NO 91 119 210

hh096: Has the selected non-normative child been uncooperative in last 6 months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H134
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 5 8
-2 2629 2999 5628
-1 DON'T KNOW 7 9 16
1 YES 19 19 38
2 NO 112 157 269

hh097: Has the selected non-normative child hurt people or animals in last 6 months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H128
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 5 8
-2 2629 2999 5628
-1 DON'T KNOW 5 5 10
1 YES 2 6 8
2 NO 131 174 305

hh098: Has the selected non-normative child hurt the participant or someone else in the household in the last 6 months?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H139
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2768 3183 5951
1 YES 1 0 1
2 NO 1 6 7

hh099: How often has the selected non-normative child hurt the participant or someone else in the household?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H140
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2769 3189 5958
3 ON SEVERAL OCCASSIONS 1 0 1

hh100: Has the selected non-normative child threatened physical violence?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H137
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2630 2999 5629
-1 DON'T KNOW 2 2 4
1 YES 2 2 4
2 NO 133 182 315

hh101: How often has the selected non-normative child threatened physical violence?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H138
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2768 3187 5955
1 ONCE 1 1 2
2 ON A COUPLE OF OCCASIONS 0 1 1
3 ON SEVERAL OCCASSIONS 1 0 1

hh102: Has the selected non-normative child been verbally abusive to you or someone in your household?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H135
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 4 7
-2 2629 2999 5628
-1 DON'T KNOW 2 2 4
1 YES 16 18 34
2 NO 120 166 286

hh103: How often has the selected non-normative child been verbally abusive?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H136
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2754 3171 5925
1 ONCE 1 0 1
2 ON A COUPLE OF OCCASIONS 5 7 12
3 ON SEVERAL OCCASSIONS 5 7 12
4 ON MORE THAN SEVERAL OCCASSIONS 5 4 9

hh105: How old was the selected non-normative child when s/he first started having mental health problems?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H142
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 2 1 3
-2 2723 3106 5829
-1 DON'T KNOW 8 7 15
0 - 12 7 16 23
13 - 17 9 14 23
18 - 30 13 20 33
32 - 42 7 17 24
43 - 49 1 8 9

hh106: What age category was the selected non-normative child in when s/he first started having mental health problems?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H142b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 2 1 3
-2 2760 3181 5941
-1 DON'T KNOW 0 1 1
1 DURING CHILDHOOD 1 0 1
2 DURING YOUNG ADULTHOOD 4 2 6
4 AFTER AGE 25 3 4 7

hh107: How old was the selected non-normative child when s/he first received a mental health diagnosis?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H143
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 2 1 3
-2 2723 3106 5829
-1 DON'T KNOW 4 10 14
1.50 - 16 8 16 24
17 - 27 11 11 22
28 - 33 10 12 22
34 - 40 10 18 28
41 - 50 2 15 17

hh108: What age category was the selected non-normative child in when s/he first received a mental health diagnosis?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H143b
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 2 1 3
-2 2764 3178 5942
-1 DON'T KNOW 0 1 1
1 DURING CHILDHOOD 0 2 2
2 DURING YOUNG ADULTHOOD 1 2 3
4 AFTER AGE 25 3 5 8

hh109: Has the selected non-normative child ever been admitted for an overnight stay in a hospital for mental health problems?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H144
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 2 1 3
-2 2723 3106 5829
-1 DON'T KNOW 2 3 5
1 YES 25 50 75
2 NO 18 29 47

hh112: How many times has the selected non-normative child been hospitalized for mental health or emotional problems?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H146
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2745 3139 5884
-1 DON'T KNOW 2 6 8
1 11 12 23
2 5 14 19
3 4 12 16
4 0 1 1
5 1 1 2
6 1 0 1
9 0 1 1
12 1 1 2
30 0 1 1
99 0 1 1
Note: In 2004, this was asked of all children with mental health conditions

hh113: During the past six months, has the selected non-normative child received services from a mental health community support program?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H168
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 3 3 6
-2 2629 2999 5628
-1 DON'T KNOW 20 20 40
1 YES 17 28 45
2 NO 101 139 240
Note: In 2004, this was asked of children with mental health conditions

hh114: Where does the selected non-normative child usually go for mental health care?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H169
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 4 1 5
-2 2646 3027 5673
-1 DON'T KNOW 19 22 41
1 NOWHERE 14 22 36
2 FAMILY DOCTOR 14 20 34
3 V.A. HOSPITAL 3 3 6
4 OUTPATIENT MENTAL HEALTH CLINIC 2 8 10
5 PRIVATE PSYCHIATRIST 15 26 41
6 EMERGENCY ROOM 1 0 1
8 OTHER 27 34 61
97 DOESN'T NEED TREATMENT 25 26 51

hh115: When you are no longer alive or able to care for or do what you do for the selected non-normative child, is there a family member who will be most involved with the child's care?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H170
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-3 REFUSED 5 4 9
-2 2629 2999 5628
-1 DON'T KNOW 6 12 18
1 YES 91 111 202
2 UNCERTAIN, BUT ABLE TO GUESS 5 10 15
3 NO, CHILD NEEDS NO HELP 14 24 38
4 NO ONE INVOLVED W/ CHILD 14 13 27
5 NO, R DOES NOT CARE FOR CHILD 6 16 22

hh116rec: Who will be involved in the future care of the selected non-normative child?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H171
Revisions: Updated June 2017 replaces hh116     
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2674 3068 5742
-1 DON'T KNOW 1 0 1
1 HUSBAND 6 8 14
6 BROTHER 26 34 60
7 FATHER 0 8 8
11 BROTHER-IN-LAW 1 0 1
17 STEP-FATHER 0 1 1
25 OTHER MALE NON-RELATIVE 0 1 1
31 WIFE 1 2 3
32 FORMER WIFE 0 1 1
34 DAUGHTER 0 2 2
36 SISTER 24 29 53
37 MOTHER 20 1 21
49 AUNT 2 1 3
59 SPOUSE, GENDER UNKNOWN 11 15 26
74 CHILD, GENDER UNKNOWN 1 10 11
91 FRIEND, GENDER UNKNOWN 0 1 1
106 MULTIPLE CAREGIVERS, FAMILY 1 5 6
108 MEDICAL PROFESSIONALS 1 0 1
114 COUSIN 0 1 1
119 CARETAKER, GENDER UNKNOWN 0 1 1
168 MULTIPLE RELATIVES 1 0 1
Note: The relationship listed on this variable refers to the relationship to the selected non-normative child, not the relationship to the participant.

hh117rec: Who will be second most involved in the care of the selected non-normative child after the person most involved is no longer able to care for the child?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H172
Revisions: Updated June 2017 replaces hh117     
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2752 3188 5940
-1 DON'T KNOW 6 0 6
6 BROTHER 5 1 6
36 SISTER 5 0 5
74 CHILD, GENDER UNKNOWN 1 0 1
161 STATE GOVERNMENT AGENCY OR PROGRAM 1 0 1
Note: If the parent or grandparent of the selected non-normative child was named as being involved in the future care of the child, a follow-up question was asked regarding the future care of the child if said parent or grandparent were to die or become unable to care for the child.
Note: The relationship listed on this variable refers to the relationship to the selected non-normative child, not the relationship to the participant.

hh118: Have you spoken with the person who will take care of the selected non-normative child about taking care of the child?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H173
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-4 NOT ASCERTAINED 0 1 1
-2 2681 3068 5749
-1 DON'T KNOW 1 0 1
1 YES 50 76 126
2 NO 38 44 82

hh119: Has the person named to take care of the selected non-normative child agreed to take care of the child?

Data source: Graduate Participant or Proxy      Collected in: 2011      Mode: In person & telephone
Source variables: y_H174
*NOT AVAILABLE ON PUBLIC RELEASE*

Frequencies
Value Label Male Female Total
. System missing - NR 2146 2019 4165
-30 NOT PART OF MOSAQ 68 116 184
-5 PARTIAL INTERVIEW 7 2 9
-2 2720 3113 5833
-1 DON'T KNOW 1 1 2
1 YES 43 72 115
2 NO 6 3 9

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