WLS Codebooks

Note: Codebooks contain frequency data from the private data release. For some variables, these differ from the frequencies in the public release. Variables that differ between the public and private versions include "(not available on public release)" as part of the variable description, or a note indicating the difference between the public and private versions.

Phone: End of Life Preparations

UEOLPREP -- End of Life Preparations Module
Sibling-Spouse Instrument, Phone

OVERVIEW 

With some minor exceptions (listed in the next paragraph), the sibling-spouse
version of the End of Life Preparations module is exactly like the sibling
version.  Thus, please read the COR for the sibling module
(cor929EOLPrepSIBLINGPhone.doc) for information about sampling, coding, and
problems experienced in preparing this module.

The only differences between the sibling and sibling-spouse versions of this
module are that 
1) sib-spouse variables begin with 'b' instead of 'c';
2) sib-spouses don't have variables by140re, by063sp, by064sp, or by066sp
(based on raw variables wep1aa/wpe1ba, wpi1a, wpi2, and wpi4, respectively);
3) sib-spouses don't have the 6 pattern variables -- by116rec, by118rec,
by120rec, by125rec, by126rec, and by146rec -- which indicate which child in the
child roster received a given end-of-life instruction.  (This is because, due
to remarriages, the spouse's children may be different than the grad's
children, and thus sometimes don't appear in the child roster at all);
4) sib-spouses were explicitly asked whether they have lived in the Wiscville
area in the past 10 years (see next paragraph).

The EOL questions were administered to a randomly selected 70% subsample to
reduce the overall length of the survey.  However, all sibling-spouses who were
Wiscville residents were asked these questions, because, in the mid-1990s,
major health care organizations in this area implemented a large-scale advance
directive education program.  Grad-spouses were considered to be in the
Wiscville sample if they lived in the Wiscville area 1) at the time of the
1992-93 survey, 2) when tracked for 2003-2005 survey, and/or 3) at the time of
the 2003-2005 interview; or if 4) they reported that they had lived in the
Wiscville area at some point in the last 10 years (in response to questions
wpa2 or wpa2a in this module).  


BRIEF VARIABLE DESCRIPTIONS

by001re:          Wiscville resident flag (100% of Wiscville residents 
                  will get this module).  

by002re:          EOLFLAG for sample selection (70% of respondents will 
                  get this module, except for Wiscville residents, who 
                  are sampled at 100%, as mentioned).

by003re:          Has R made *any* preparations for end of life?  (I.e., 
                  positive response to at least one of ay004re, ay010re, 
                  ay020re, and ay030re.)

by004re:          Has R made medical plans in case of future serious 
                  illness?

by010re-by021re:  R's discussion of health care plans and 
                  preferences (With anyone?  Spouse?  Kids?                  
                  Whom?  How well does person understand?).

by022re-by026re:  Legal arrangements for someone to make 
                  decisions about R's medical care (Any?  Who 
                  has, or would have, that authority?  Spouse? Kids?).

by030re-by038re:  R's living will or advance directive (Exists?  
                  Given to spouse?  To kids?  To whom?).

by040re-by046re:  Inheritance plans (Who would get R's assets?  
                  Does R have will?  Etc.).

by060re-by062re:  R's hopes/plans for last days or weeks of life 
                  (Where spent?  Discontinue treatments?).

by065re:          How strictly to follow R's wishes for end of life 
                  medical care.

by070rec:         At what stage in the Terri Schiavo case did R complete 
                  the WLS phone survey?

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